I am new to this group, and I truly hope no one minds that I am here. My best
friend's 12-year-old son was diagnosed with CVS when he was 6 years old. I've
been watching her stuggle with this since then--stuggle with his episodes,
stuggle with how to help him, and struggle with blaming herself for causing it.
The doctor's say "no known cause" for the disease, and she still has to look for
one, and at times has felt it is her fault.

I am also a writer, and I am putting together an article on this disease for
publication. I have a few places in mind where I would like to sell it. I am
still working on the research. I've found lots of statistics,a nd of course, I
have Lori and Mike's experience to draw on. I've interviewed both of them
already. If it's not a problem with those of you here, I'd like to jsut get to
know a little more about how this disease affects patients and caregivers by
listening to what you say. But if that makes you uncomfortable, I will leave
the list.




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