... Hi, my name is Brooke. I have CVS. I am sorry that your boyfriend is sick. I don't know ezactly what you are going threw but I do know it is VERY hard...

He's been here a week and they've given him every med possible... so I guess now we play the waitng game. I wish I knew what to say to him to uplift his...

I am new to this group, and I truly hope no one minds that I am here. My best friend's 12-year-old son was diagnosed with CVS when he was 6 years old. I've...

Hi Lynn - I personally have no problems with you being here - and if there is anything I can do to help you get the word out about this horrendous disease you...

okay well I don't know first hand of cvs but I have to see it since my boyfriend has it... so you can ask me anything (or him) and we'll do our best to answer ...

... here. My best friend's 12-year-old son was diagnosed with CVS when he was 6 years old. I've been watching her stuggle with this since then--stuggle with...

I don't mind you being here either. I had never heard of CVS until 2 years ago when I tried to get my son diagnosed and my daughter was having mild symptoms...