I took my daughter who lived in LA to the Mayo Clinic in Scottsdale about 2-3
years ago and she is now normal. Please read thru the old communications for
our story and the changes that turned her life around. We made only one visit
and it made a huge difference. Look for the name of the Doctors who are on the
CVS board or in articles from Doctors who are doing research and they will be
your best bet to try and consult with.
Best of Luck.
Ann Van Lydegraf

Rubel and Tanya West <rdw223@...> wrote:
--- In cyclicvomitingsyndrome@yahoogroups.com, "mcdolemom728"
<mcdolemom@...> wrote:
>We drive 10 hours to see Dr Fleisher and it is well worth it.
> Carolyn,
>
> I would strongly recommend finding a new doctor for your daughter.
> I know from experience that the treatment she is getting is
> dangerous. Severe dehydration can cause a lot of serious
> complications. It also sounds like she is very underweight for her
> age. Please go to www.cvsaonline.org and check their list of
> doctors. I know there is a doctor in CA that is supposed to be
very
> good. I think his name is Dr. Boles.
>
> My daughter got so severely dehydrated she nearly died. We tried
> every doctor and hospital we could find in our area and did not
> receive much help (and we live in a major city!). I finally went
> online and found Dr. Fleisher in Columbia, MO. We have to drive 2
> hours to see him, but it is well worth it. Since my daughter has
> been seeing him her health has improved dramatically. Help is
> available! You have to be persistant and don't give up. You are
> the only one that can be your daughters advocate.
>
> We too are using CO Q10 and L-Carnitine and it has worked well for
> my daughter.
>
> Please hang in there and find a doctor that knows CVS and is
willing
> to actually help.
>
> God bless,
>
> Mary
>






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