--- In cyclicvomitingsyndrome@yahoogroups.com, "mcdolemom728"
<mcdolemom@...> wrote:
>We drive 10 hours to see Dr Fleisher and it is well worth it.
> Carolyn,
>
> I would strongly recommend finding a new doctor for your daughter.
> I know from experience that the treatment she is getting is
> dangerous. Severe dehydration can cause a lot of serious
> complications. It also sounds like she is very underweight for her
> age. Please go to www.cvsaonline.org and check their list of
> doctors. I know there is a doctor in CA that is supposed to be
very
> good. I think his name is Dr. Boles.
>
> My daughter got so severely dehydrated she nearly died. We tried
> every doctor and hospital we could find in our area and did not
> receive much help (and we live in a major city!). I finally went
> online and found Dr. Fleisher in Columbia, MO. We have to drive 2
> hours to see him, but it is well worth it. Since my daughter has
> been seeing him her health has improved dramatically. Help is
> available! You have to be persistant and don't give up. You are
> the only one that can be your daughters advocate.
>
> We too are using CO Q10 and L-Carnitine and it has worked well for
> my daughter.
>
> Please hang in there and find a doctor that knows CVS and is
willing
> to actually help.
>
> God bless,
>
> Mary
>