Ann,

We have been homeschooling 11 years now. Our oldest, age 16, has
CVS. It is undoubtedly the best thing for her. I don't know where
you live, but there are plenty of homeschool groups across the U.S.
I know lots of people worry about socialization, but we have found
that to be the least of our problems. We actually have to be
careful not to get so busy with social activities we can't get
school done. I would encourage you to find some homeschool groups
in your area and check them out. I think you'll be surprised at how
much less stress there is in your life when you homeschool. I am on
the board of a homeschool group and would be glad to help you
contact someone in your area.

Our daughter always has to be hospitalized when she starts
vomiting. We have found that it actually decreases how long she is
sick (and the severity of it) and increases the time between
episodes. Are you familiar with Dr. Fleisher in Columbia, MO at the
University of Missouri? He is the best! Our daughter's health has
improved dramatically since he has been treating her.

Talking to people on this forum will help you to cope, it is very
stressful as a parent to watch your child be so ill. I think its
even more frustrating when you go so long between episodes to have
them return with a vengeance. Just about the time you stop thinking
about it and think that it may actually be getting better, it seems
like that's when it rears its ugly head again.

Hang in there, you are not alone. Let me know if I can help with
anything.

Mary




--- In cyclicvomitingsyndrome@yahoogroups.com, "daisyamk28"
<daisyamk28@...> wrote:
>
> Sam also has a learning disability and need extra help on top of
the
> whole CVS thing. It is hard enough to fight for his extra help
let
> alone the medical issue. The other day he asked me if he could be
> homeschooled. Which completely shocked me. He is a very social
kid
> and usually throws a fit if we say we are going to change
schools.
> We will see what happens when he goes back to school.
>
> So, this is the longest episode ever for him. At the longest his
> episodes have lasted for 10 hours. Right now, we are at the 34th
> hour and I think he might be coming out of it. His color is
somewhat
> back, he hasn't vomitted for 6 hours, and is just a little tired
> still. I am so glad we seem to be over the hump of this one.
This
> morning was bad. He started vomiting bile so I called his GI doc,
> who is usually awesome, and she pushed us off on the pediatrician
and
> blew it off to a bug. So I called his pediatrician and took him
in
> (40 minutes away). Thank goodness for phenergan suppositories.
Had
> they worked we would be in the hospital right now. He has never
used
> those before, so he was a little nervous about it. He has been so
> lucky not to have ever been hospitalized with CVS and I was so
scared
> of how close he got this time. I don't know if the 10 mon break
was
> a good thing, because the episode came back worse. I was so
worried
> about him this morning. I started 2nd guessing myself and
thinking I
> was blowing off something else for an episode. I am so glad his
> pediatrician knows about CVS and is so good with him.
>
> Well, I better go check on him and start dinner for my hubby and
> other little one. I hope everyone out there is doing well.
>
> ~Ann
>