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Reply | Forward Message #1236 of 1865 |
My daughter (22) has recently been dx with CVS. She has been sick for
years when U of M finally gave us some answers. More questions than
answers really. This has been very hard on my daughter and I'm not
sure what the future holds for her. Perhaps I will have direct
questions but for now I just want to see how others cope and how they
manage to keep a job, attend school etc. I've really been in denial
about the whole thing but I know I have to come to terms with the fact
that my daughter is sick and may never be healthy.




Thu Feb 15, 2007 2:04 am

lisalangford2
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Message #1236 of 1865 |
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My daughter (22) has recently been dx with CVS. She has been sick for years when U of M finally gave us some answers. More questions than answers really....
lisalangford2
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Feb 15, 2007
2:11 am

Welcome, Once you find out about the dx of cvs, you search out a specialist in your area. CVS has no cure BUT, you need to manage the symptoms. It takes a...
Susan Rosmann
srosmann
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Feb 15, 2007
4:14 am

You just hang in there, There is lots of medications that doctors are trying treat this illness with. Both of my kids have suffered with cvs. My son had it...
scoutmom32@...
scoutmom3232003
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Feb 15, 2007
12:13 pm

Hi, My name is Holly; I'm 21 years old. 2 years ago I was diagnosed with gastroparesis, and this past January I was diagnosed with Ehlers-Danlos Sydrome (type...
pug_lover07
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Nov 8, 2009
1:01 pm

Holly - My son has CVS, HEDS and Dysautonomia. He has had issues with the vomiting starting before his 2nd birthday. I hope you find the help you need. Go...
ohgr8nowwhat
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Nov 9, 2009
9:11 pm

Nice to meet you Holly. There are a lot more parents of Children with CVS than there are true Adult CVS patients in this group. I am Tina, I am an Adult...
Sribbles 4U - Groups
scribbles_4u
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Nov 9, 2009
12:37 am

hi i just wanted to say wow ur story sounds like mine im 20yrs old diagnosed abt 3 yrs ago out of nowhere... i didnt what to do i felt like dyin my mom was so...
drama413
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Nov 14, 2009
1:58 pm

You have to focus on that she is totally WELL between episodes...the CVS itself , no doubt , SUCKS!!! as my 12 yr old who has it can attest to but she lives...
Vicki
mothROtwins
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Nov 14, 2009
4:11 pm

Thanks for your email, Vicki. I also was completely well between bouts. Absolutely nothing even mildly suspicious. Many years of that passed before I was...
Lucy Wiley
lucywiley...
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Nov 14, 2009
5:02 pm
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