Hi Rebecca,
That's great news! I am so glad you found a doctor who knows how to help you.
Check out cvsaonline.org if you have not done so already and get on their member
online group. You will meet other adults and young adults like yourself who also
suffer from cvs.
My son is 7 and he has been on supplements, coQ10 and carnitine, and his last ER
visit was over a year ago. Our doc is Dr. Boles in Los Angeles. I highly
recommend him if you live in L.A.
Best Wishes,
Susan
Rebecca Mulwane <rlamulwane@...> wrote:
Hi, I am Rebecca and age will be 25. I have cvs all my life.My cvs stop
at 12 year and start up again at 17.I now been out of the hospital for
18 month.The last time hospital was in Yune 15 of 2005.I am on alot
med and might go day to day.I found as adult the cvs is the hardest.I
hope I do get in tromble for said this but God was the one lead the
doctor to my regment. Thank you for read this.
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