Kristy,
I just wanted to let you know of our situation and hopefully give you a
glimmer of hope.
My daughter, who will turn 7 next sat., did this exact thing last year. I
don't know what was going on
but it hit a huge peak like that. Now she is taking daily Periactin and
Zofran when she starts feeling sick,
such as last night. She usually gets sick around her birthday. Well, last
night she came down and said she was feeling sick
so I got the Zofran out. Her sister is the exact same way.But once we
started on these meds and time, she's doing a lot better than last year.
If she is sleeping. try to have a cup of tea or take a bath. I will be
praying for you all. Keep us updated.
Love,
Laura
On 10/7/06, kristy_n_emily <kristy_n_emily@...> wrote:
> I am new to this group and I really just need to know that I am not
> alone.
> My daughter was diagnosed with this condition in April of this year.
> She had a 4 night hospital stay before GI felt good enough to let her
> go home. I had been figthing with her Ped's office for quite some
> time (close to 2yrs)to get them to send me to a GI. She is 6 and a
> thumb sucker and they kept telling me it was because she sucked her
> thumb. I work in the medical field (but with adults) and I wasn't
> buying into it. Well after we had a trip to ER, sent home, Dr office
> visit (who sent us right back to the hospital for dehaydration), and
> back to the hospital for an over night stay, they finally listened
> and sent her to the GI dr. We went to that appointment on a Thursday
> and Friday night she started all over again (which was our 4night
> stay). She is like clockwork, every 15 min and you could set your
> clock by it right on the nose. This was going on about every 6-8
> weeks. Needless to say, as a single mother, working full time, it has
> taken its toll on me. Staying up all night with her and then working
> all day (if she was well enough for me to even do that).
> The good news WAS that the GI doctor told me I wasn't crazy and it
> wasn't her thumb sucking causing it. She had CVS and we can treat
> that with some meds. The bad thing was her GI doctor said, 4-5
> episodes of this in a years time is too many but your dtr has had 14
> in less than 2 yrs. They put her on Zantac (for some reflux they seen
> on her Upper GI) and Periactin. They have been working wonderful. So
> I guess being a mother, I have had my hopes really high on how well
> she has been doing.
> Unfortunately, this evening, we have been up for the last hour and
> 15min 5 times. Guess what? That equals the every 15min we were at
> before. I have given her a suppository (phenergan 12.5mg) and her
> medicines orally and she is still laying here next to me on the couch
> crying that it feels "like a crab is pinching my belly!"
> I am soo sad that I cannot make her better. How do you deal with it
> emotionally?????? HELP!!!!!
> Thanks,
> Kristy - OH
>
>
>
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