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Reply | Forward Message #1183 of 1870 |
Re: [Cyclic Vomiting Syndrome] cyclic vomiting

Sandra,

My son started on Reglan before he was even diagnosed with CVS, he
was on it for over a year before we were even diagnosed and when we
finally got into the Gi and she did give us Cvs as a diagnosis she
has pulled him off of it on a daily basis and replaced it with
Cyproheptadine as preventative, Preacid for the volume of acid, and
then Zofran and Reglan only during an episode and for 3 days
following an episode. Hope that helps you some. Good Luck

Bevelry Wirght
Mom to Zacrie age 7




--- In cyclicvomitingsyndrome@yahoogroups.com, Sandra Baker
<carouselsb3@...> wrote:
>
> Alyson just started on Reglan 3x per day on Monday. How has your
success been with that? Does he only get Reglan during an episode?
Anyone else's kiddo on Reglan?
>
> Thanks,
> Sandra
>
>
> ----- Original Message ----
> From: Amber Matthews <amatthews10@...>
> To: cyclicvomitingsyndrome@yahoogroups.com
> Sent: Wednesday, June 28, 2006 9:50:30 AM
> Subject: Re: [Cyclic Vomiting Syndrome] cyclic vomiting
>
>
> My son and I both have it. I give him tylenol at the firs sign of
a stomach ache and now I follow that up with Reglan. That he stopped
the last three episodes. After vomitting one time he gets zofran,
sublingual. it will melt on the tongue that way even if he vomits it
is already in his system. Can also try Ativan.
> Good luck. I would relly try tylenol the few days prior to the
episode. Write everything down that she has eaten, when she has gone
to the bathroom, when she has her period. You will find a pattern.
It took me two years to find my sons and we found one major one but
the episodes still come at random.
>
> scoutmom3232003 <scoutmom32@aol. com> wrote:
> Is there anyone in North Carolina who is dealing with this
illness? my
> daughter whom is now 14 years old has been having these episodes
now
> going on three years, i'm looking for a doctor anywhere close to
North
> Carolina or anyone who can give me any advise as to what to have
her
> doctor try. My daughter's episodes come on every three months just
like
> clock work we know when she is going to have them. It's terrble to
see
> her so sick any avvise will be appreciated. .....Thanks The
Sigmon's
>
> [Non-text portions of this message have been removed]
>
>
>
>
> [Non-text portions of this message have been removed]
>







Tue Sep 19, 2006 12:43 am

beverlyw7570
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Message #1183 of 1870 |
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Is there anyone in North Carolina who is dealing with this illness? my daughter whom is now 14 years old has been having these episodes now going on three...
scoutmom3232003
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Jun 28, 2006
12:02 am

Hi. I'm in North Carolina. My daughter has CVS and we believe our second daughter has it also. Their pediatrician seems to know a lot about it and has helped...
Laura Alley
alleyfam51699
Offline Send Email
Jun 28, 2006
2:17 am

How does your episodes start, like in the mornings or evening. my daughter just wakes up with the vomiting there is no warning that i can see, that this is...
scoutmom32@...
scoutmom3232003
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Jul 1, 2006
2:47 am

Mine hit out of nowhere. I will all of a sudden get sick to my stomach. I take reglan first then the compazine. Maybe give her tylenol before she goes to bed....
Amber Matthews
amatthews10
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Jul 2, 2006
3:35 am

Alyson's episodes usually are not predictable (as far as I can chart, so far) but I can usually tell by her behavior that it is coming. Alyson is 6 and she...
Sandra Baker
carouselsb3
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Jul 3, 2006
2:20 pm

I have had this condition all of my life. One thing I have learned is there is no consistency. I used to have one episode per year, and they lasted exactly 7...
ucanttiemedown
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Jul 3, 2006
7:03 pm

I can relate to everything you said in your email. I had been accused of being a drug addict to, yet all the drug screens were negative. Have you gone to a...
Amber Matthews
amatthews10
Online Now Send Email
Jul 4, 2006
3:46 pm

My 6 year old daughter was put on Reglan about 2 weeks ago. She is already on Nexium 20 mg 2x per day. This week she had a reaction to the Reglan, and they...
Sandra Baker
carouselsb3
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Jul 21, 2006
6:52 pm

My son and I both have it. I give him tylenol at the firs sign of a stomach ache and now I follow that up with Reglan. That he stopped the last three episodes....
Amber Matthews
amatthews10
Online Now Send Email
Jun 28, 2006
2:28 pm

Alyson just started on Reglan 3x per day on Monday. How has your success been with that? Does he only get Reglan during an episode? Anyone else's kiddo on...
Sandra Baker
carouselsb3
Offline Send Email
Jun 30, 2006
2:23 pm

I just giveit to him when his tummy hurts but 3x a day might be a great thing. Sandra Baker <carouselsb3@...> wrote: Alyson just started on...
Amber Matthews
amatthews10
Online Now Send Email
Jun 30, 2006
8:42 pm

Sandra, My son started on Reglan before he was even diagnosed with CVS, he was on it for over a year before we were even diagnosed and when we finally got into...
Beverly
beverlyw7570
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Sep 19, 2006
12:53 am

Beverly - We tried Cyproheptadine and it did not work for us. I am glad it works for Zacrie! What does the Reglan do? I have not heard of this. Terry ... we ...
mamatlc2000
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Sep 19, 2006
7:44 am

My understanding of the Reglan is that it makes the stomach empty faster so that the food is not just sitting there waiting to come back up, if it's not there...
Beverly
beverlyw7570
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Sep 20, 2006
11:41 pm

Beverly - My daughter rarely ever throws up food. It is usually bile and water so I don't think the Reglan would work. Thanks for letting me know. Terry ... ...
mamatlc2000
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Sep 21, 2006
8:15 pm

We're in the Raleigh area and my son goes to UNC PedGI and sees Dr. Steven Lichtman. He was the first doctor we've found that even knew what CVS was. We've...
cmlamkins
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Sep 20, 2006
4:51 pm

... that doesn't even work if I don't catch it right when the first symptoms show. What about using Ativan or Nasal Imitrex to knock him out? Imitrex has...
mamatlc2000
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Sep 21, 2006
8:19 pm
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