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This is Bob's story in two parts.
PICS are available:
For 56ers: http://mywebpages.comcast.net/gnxfan/Bob.doc
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_BOB's Story
I've battled with several 'syndromes' and other tough to cure illnesses over the past 15 years. Many of the syndromes were a) hard to diagnose and b) even harder to treat. I've gone through years of suffering with Chronic Fatigue Syndrome (CFS), Irritable Bowel Syndrome (IBS), A distended bladder combined with insomnia, headaches, Leaky Gut Syndrome, tonsillitis, depression, etc.
I could write a full book on all the doctors that I've visited and all the prescriptions that I've taken, but I want to keep this as short as possible. I remember reading the title of a book, 'Sick and Tired of Feeling Sick and Tired' that would describe exactly how I felt a few years into what I now know to be CFS, IBS and a distended bladder. I remember reading about people who had suffered with CFS and who were now feeling better and thinking - there is no way that I am going to get over this. I am not going to feel better. I may as well kill myself now. I cried myself to bed many a night wondering 'why me?' Thankfully I had the love of a strong family and just that thought alone prevented me from taking thoughts of offing myself any further than just thinking about it.
OK - the short of it is that I got sick a lot growing up. Seemed like I had Strep throat or bronchitis once a month. Unfortunately I also had a doctor who loved antibiotics. You may even need antis for certain ailments like Strep (unless you have a strong background in Natural Healing) but I have faint recollection of going for a check up and walking out with a shot of penicillin! Shots, pills, that great tasting pink antibiotic - I was always on one or the other. It is only now that I can hypothesize that that was a major contributor to my later suffering.
It was November 1987 when I first developed the symptoms that combined to form my CFS. I came down with the 'flu' the first week of November - exactly one week before my family and I were heading to Florida for a week of fun in the sun. I was actually happy to be sick because I knew that I'd take some anti-biotic and that I'd be great to go to Florida. Unfortunately that didn't work out so well. I got the anti-biotic but the 'flu' was still there one week later. It was still there 2 months later. It was still there 2 years later. Remnants of it were still around 15 years later.
I won't mention every doctor that I went to looking for a diagnosis. I also will leave out the tedious details of the trek as much as possible. For what it's worth - I wound up at an internist a bit past Christmas - no fever, all blood work normal. Put me on Pamelor because it had to be depression - after all I was negative for EBV and Lyme.
I felt like I had the flu every single day for the next 2 years. Weakness permeated everything. It wasn't tiredness, where one needed to sleep, it was 'sapped' weakness, the kind you get with the flu. Missed lots of school and had to get a tutor. I then developed burning urination. Severe burning and an aching in my bladder area. My urine was clear but I wound up on Cipro 'Just in case'. The first of many that my urologist prescribed. Antis and sulfas. Over and over again - adding to my systems already torn down condition. At age 18 I had had my prostate examined more times that I should have had to endure in a lifetime! And the only thing that brought relief was a numbing med, Pyridium Plus, that dyed your urine red.
I continued seeking all kinds of doctors to try and track down why I felt weak all the time. Internists, allergists (did test positive for several allergies and started on allergy shots and medications), endocrinologists. Everything came back fine. Even saw a counselor and went through Prozac, amitryptiline, etc etc etc. I knew it wasn't depression causing me to feel like crap. It was feeling like crap making me depressed! But the docs just didn't get it - all those different anti-depressants not doing squat logically meant that depression wasn't my issue, but sometimes logic and medical just don't mix. As a matter of fact the only thing that ever came back 'out of range' was my temperature. I was always running low, 97.5 or so, but that never concerned anyone.
I headed to Johns Hopkins to see the best of the best. I waited 2 months for the appointment and then 8 hours in the office. My dad took off from work and drove me down. We met with a doc for about 45 minutes who thought that I may have had meningitis back in November and that I was probably suffering from a post viral syndrome that would correct itself by the prom in May. It didn't.
So - still trotting along with no diagnosis, feeling like crap, and with no answers whatsoever, my urologist performed a prostate biopsy and it came up clear. I don't need to emphasize that an 18 year old getting a needle anywhere near the prostate is not all that pleasant. He did find a varicose vein 'in that area' that he wanted to remove. I went under the knife and had the varicocele taken out. The burning did not subside. After we came up empty with this expedition I had no clue where to turn next.
A few months went by. Basically spending all day in my home, every minute of which I felt weak. Every minute - not one day passed that I didn't feel crappy. Weakness and frequent burning urination. What a pair!
It was a few months after the prostate biopsy that someone recommended a urologist a few towns over. We set up an appointment and my father and I headed over. He did a basic urological exam and tested urine. He then said, "It's not your prostate. You have a distended bladder." He prescribed the high blood pressure medication Hytrin to relax the bladder. I picked it up that night and started it the next day.
My burning urination started to fade. I couldn't believe that this doctor was able to find in 2 minutes what my first doctor was unable to find in 2 years and with several thousand dollars worth of tests as well as a surgery 'under my belt'. My burning was completely gone within 2 weeks. This was my first miracle.
Part Two will follow...............................................
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