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#58 From: Sheila Krein <sfkrein@...>
Date: Tue Feb 6, 2007 12:51 pm
Subject: Re: Autism course at ISU
sfkrein
Offline Offline
Send Email Send Email
 
Here it is.

January 22                                                      Free Online Training at ISU (Non-Credit)

Illinois State University, Normal-Bloomington
is sponsoring a beginning level training for individuals who work and live with children and adolescents with autism/PDD. Open to parents and other family members, special and general educators, teacher assistants, speech/language pathologists, social workers psychologists, behavior specialists, occupational and physical therapists and administrators.  54 CPDUs or CEUs available.   Graduate level credit course also available.   Number of participants is limited. Contact: Mindy Bolin at 630-889-7398 or mbolin@....

At 09:15 PM 2/5/2007, you wrote:

Hi everyone! someone at the support group meeting the other night
mentioned a course on Autism at ISU that is online. Anyone have info?
I got online at ISU, but didn't find anything. Thanks in advance... AMY


#57 From: "luvmy2arabians" <luvmy2arabians@...>
Date: Tue Feb 6, 2007 3:15 am
Subject: Autism course at ISU
luvmy2arabians
Offline Offline
Send Email Send Email
 
Hi everyone!  someone at the support group meeting the other night
mentioned a course on Autism at ISU that is online.  Anyone have info?
  I got online at ISU, but didn't find anything.  Thanks in advance...  AMY

#56 From: "jewettpr" <jewettpr@...>
Date: Mon Feb 5, 2007 2:59 pm
Subject: conference in Bloomington on March 10
jewettpr
Offline Offline
Send Email Send Email
 
There is a conference on Saturday, March 10 at The Chateau Hotel in
Bloomington (corner of Jumer Drive and North Veterans Parkway). It is
called 'New Dreams: Resources and Inspiration for
People with Disabilities and Their Families.' It is FREE--including
the noon meal! It will feature Karen Gaffney, a woman with Down
syndrome who has swum the English Channel and also attended college.
It also will feature Matt Cohen, a Chicago attorney who specializes
in special ed issues. Plus all kinds of information for disabled
individuals of any age and their families and teachers, including
resources, curriculum adaptations and modifications, visual
strategies, IEP Planning and Participation and much more.

The night before, Friday, March 9, is a dance and social from 7-9 in
the ballroom at The Chateau. This is open to anyone and no
registration is required--just come prepared to have a good time!

Details and registration can be found online at
http://www.wiu.edu/starnet/training/workshops/MAR10ND.php

Because StarNet is handling the registration, all their info about
priority to their clients, etc. comes up BUT this does not apply to
this conference--IT IS FIRST COME, FIRST SERVED for registration.
There are about 100 people signed up so far, and space for only
250--so, if people think they might be interested, they need to sign
up now! If they change their mind that week they can let StarNet know
and they can contact someone on the waiting list.

If you have questions I can try to find out the answer as the Down
syndrome group we belong to is one of the conference sponsors.

Barb

#55 From: "Ann Osterling" <aosterling@...>
Date: Sun Feb 4, 2007 8:18 pm
Subject: RE: Re: need advice on doctors
annosterling
Offline Offline
Send Email Send Email
 
Amy,
I hope that you are getting support through your son's school on things like
Visual Schedules, Social Stories, etc. In addition, many of the kids with
Asperger Syndrome benefit from a good look at their sensory needs and ability to
self-regulate. If you were at the January CU Network meeting you heard Debi
Bliss, an OT in private practice in Champaign talk abou this topic.

The CU Autism Network has some great parents who have gone through many of the
behavioral issues you are talking about....

Ann

Ann Osterling
Speech-Language Pathologist
510 South Staley Road, Suite A
Champaign, IL 61822

________________________________

From: cuan-listserve@yahoogroups.com on behalf of luvmy2arabians
Sent: Sun 2/4/07 1:54 PM
To: cuan-listserve@yahoogroups.com
Subject: [cuan-listserve] Re: need advice on doctors



Hi there!

We are new to the group as well. My son was diagnosed by Dr.
Elghammer, however he will only treat if you follow his protocol. I
have brought up numerous different therapies/tests etc to help with my
4 yr old Asperger son. I get shut down each and every time. He
wants us to go on the GFCF diet, and I asked about a blood test to see
if the diet is actually needed. He told me he didn't think it could
be done. So, finding out from the support group - to call our
allergist... and guess what?! Next week we will have the blood test
done. Dr. Elghammer is a DAN! doc and ONLY will go with herbal
biomedical remedies. My son is having numerous outbursts at school
and has become violent. I asked about adderall or clonidine. NOPE.
Got nothing. Try this try that etc. So, we are going to go see Dr.
Morton. I tried the biomedical and it is not working. We have been
"trying" things since October and it has done nothing but stress us
out. I have been reading books and talking to other Aspie parents...
but Elghammer wants to follow protocol. Im not recommending against
him, but he's not for us....

Amy

--- In cuan-listserve@yahoogroups.com <mailto:cuan-listserve%40yahoogroups.com>
, "unzicker1971" <unzicker@...>
wrote:
>
> Hello! I am relatively new to this group but I have really learned
> from the postings. Our 13-year-old son was diagnosed with autism
> last June by Dr. Morton. I am extremely happy with his work. His
> initial interview was very throrough and he put the pieces together
> that others had previously missed. At the first meeting, he gave us
> a rough draft of his written report which really helped me because
> sometimes, after such a workup, I find it hard to remember anything
> but the basic information. We have two adolescent sons which see
> Dr. Morton regularly and they both LOVE him. He also is not afraid
> to try some medications that had never been considered for our sons
> and seems very knowledgable about some recent drug side-effects. My
> husband and I are both pleased with Dr. Morton's handling of our
> sons' cases.
> I hope this helps. Although this is my first post, I have been
> getting and reading daily posts from this group for several months
> now. Because we live near Champaign-Urbana and are too far away to
> participate in person, I have profited much from your discussions.
> I am impressed with the combined knowledge and caring of this
> group. Barb U.
>
>
> --- In cuan-listserve@yahoogroups.com
<mailto:cuan-listserve%40yahoogroups.com> , "jewettpr" <jewettpr@>
> wrote:
> >
> > Hello! I am new to the listserve. I had to work and was not able to
> > attend your meeting last night to ask this in person, so hope
> someone
> > will answer.
> >
> > Our 14 year old son has Down Syndrome and autism. He is also ADHD,
> for
> > which he takes Tenex--a very old blood pressure medicine with an
> > off-label use for ADHD. The last few months he has become very
> anxious
> > and very tense and seldom sleeps for more than 4 hours a night,
> which
> > means he is not up to coping with school the next day. Our doctor
> > feels we are getting out of his area of expertise and would be
> happy
> > to work with another doctor to monitor drug dosages, etc. but has
> no
> > clue what to try. We have gone to the Child Disabilities and
> > Development Clinic at the University of Iowa in the past (a
> wonderful
> > place!)but feel if we are going to add drugs into the mix we need
> > someone local.
> >
> > There were some early postings on Dr. Morton, but nothing after the
> > initial ones. Does anyone go to him? Developmental pediatrician we
> > have seen in the past diagnosed but never treated.
> >
> > I have heard Dr. Elghammer in Danville treats kids with autism--has
> > anyone gone to him?
> >
> > Others you'd recommend?
> >
> > Thanks!
> > Barb Jewett
> >
>

#54 From: "luvmy2arabians" <luvmy2arabians@...>
Date: Sun Feb 4, 2007 7:54 pm
Subject: Re: need advice on doctors
luvmy2arabians
Offline Offline
Send Email Send Email
 
Hi there!

We are new to the group as well.  My son was diagnosed by Dr.
Elghammer, however he will only treat if you follow his protocol.  I
have brought up numerous different therapies/tests etc to help with my
4 yr old Asperger son.   I get shut down each and every time.  He
wants us to go on the GFCF diet, and I asked about a blood test to see
if the diet is actually needed.  He told me he didn't think it could
be done.  So, finding out from the support group - to call our
allergist... and guess what?!  Next week we will have the blood test
done.   Dr. Elghammer is a DAN! doc and ONLY will go with herbal
biomedical remedies.  My son is having numerous outbursts at school
and has become violent.  I asked about adderall or clonidine.  NOPE.
Got nothing.  Try this try that etc.  So, we are going to go see Dr.
Morton.   I tried the biomedical and it is not working.   We have been
"trying" things since October and it has done nothing but stress us
out.   I have been reading books and talking to other Aspie parents...
but Elghammer wants to follow protocol.   Im not recommending against
him, but he's not for us....

Amy

--- In cuan-listserve@yahoogroups.com, "unzicker1971" <unzicker@...>
wrote:
>
> Hello!  I am relatively new to this group but I have really learned
> from the postings.  Our 13-year-old son was diagnosed with autism
> last June by Dr. Morton.  I am extremely happy with his work.  His
> initial interview was very throrough and he put the pieces together
> that others had previously missed.  At the first meeting, he gave us
> a rough draft of his written report which really helped me because
> sometimes, after such a workup, I find it hard to remember anything
> but the basic information.  We have two adolescent sons which see
> Dr. Morton regularly and they both LOVE him. He also is not afraid
> to try some medications that had never been considered for our sons
> and seems very knowledgable about some recent drug side-effects. My
> husband and I are both pleased with Dr. Morton's handling of our
> sons' cases.
>    I hope this helps.  Although this is my first post, I have been
> getting and reading daily posts from this group for several months
> now.  Because we live near Champaign-Urbana and are too far away to
> participate in person, I have profited much from your discussions.
> I am impressed with the combined knowledge and caring of this
> group.               Barb U.
>
>
> --- In cuan-listserve@yahoogroups.com, "jewettpr" <jewettpr@>
> wrote:
> >
> > Hello! I am new to the listserve. I had to work and was not able to
> > attend your meeting last night to ask this in person, so hope
> someone
> > will answer.
> >
> > Our 14 year old son has Down Syndrome and autism. He is also ADHD,
> for
> > which he takes Tenex--a very old blood pressure medicine with an
> > off-label use for ADHD. The last few months he has become very
> anxious
> > and very tense and seldom sleeps for more than 4 hours a night,
> which
> > means he is not up to coping with school the next day. Our doctor
> > feels we are getting out of his area of expertise and would be
> happy
> > to work with another doctor to monitor drug dosages, etc. but has
> no
> > clue what to try. We have gone to the Child Disabilities and
> > Development Clinic at the University of Iowa in the past (a
> wonderful
> > place!)but feel if we are going to add drugs into the mix we need
> > someone local.
> >
> > There were some early postings on Dr. Morton, but nothing after the
> > initial ones. Does anyone go to him? Developmental pediatrician we
> > have seen in the past diagnosed but never treated.
> >
> > I have heard Dr. Elghammer in Danville treats kids with autism--has
> > anyone gone to him?
> >
> > Others you'd recommend?
> >
> > Thanks!
> > Barb Jewett
> >
>

#53 From: "unzicker1971" <unzicker@...>
Date: Sat Feb 3, 2007 6:39 pm
Subject: Re: need advice on doctors
unzicker1971
Offline Offline
Send Email Send Email
 
Hello!  I am relatively new to this group but I have really learned
from the postings.  Our 13-year-old son was diagnosed with autism
last June by Dr. Morton.  I am extremely happy with his work.  His
initial interview was very throrough and he put the pieces together
that others had previously missed.  At the first meeting, he gave us
a rough draft of his written report which really helped me because
sometimes, after such a workup, I find it hard to remember anything
but the basic information.  We have two adolescent sons which see
Dr. Morton regularly and they both LOVE him. He also is not afraid
to try some medications that had never been considered for our sons
and seems very knowledgable about some recent drug side-effects. My
husband and I are both pleased with Dr. Morton's handling of our
sons' cases.
    I hope this helps.  Although this is my first post, I have been
getting and reading daily posts from this group for several months
now.  Because we live near Champaign-Urbana and are too far away to
participate in person, I have profited much from your discussions.
I am impressed with the combined knowledge and caring of this
group.               Barb U.


--- In cuan-listserve@yahoogroups.com, "jewettpr" <jewettpr@...>
wrote:
>
> Hello! I am new to the listserve. I had to work and was not able to
> attend your meeting last night to ask this in person, so hope
someone
> will answer.
>
> Our 14 year old son has Down Syndrome and autism. He is also ADHD,
for
> which he takes Tenex--a very old blood pressure medicine with an
> off-label use for ADHD. The last few months he has become very
anxious
> and very tense and seldom sleeps for more than 4 hours a night,
which
> means he is not up to coping with school the next day. Our doctor
> feels we are getting out of his area of expertise and would be
happy
> to work with another doctor to monitor drug dosages, etc. but has
no
> clue what to try. We have gone to the Child Disabilities and
> Development Clinic at the University of Iowa in the past (a
wonderful
> place!)but feel if we are going to add drugs into the mix we need
> someone local.
>
> There were some early postings on Dr. Morton, but nothing after the
> initial ones. Does anyone go to him? Developmental pediatrician we
> have seen in the past diagnosed but never treated.
>
> I have heard Dr. Elghammer in Danville treats kids with autism--has
> anyone gone to him?
>
> Others you'd recommend?
>
> Thanks!
> Barb Jewett
>

#52 From: "kareneisenmenger" <kareneisenmenger@...>
Date: Sat Feb 3, 2007 1:22 pm
Subject: Re: need advice on doctors
kareneisenme...
Offline Offline
Send Email Send Email
 
I would highly recommend Dr. Morton as well.  He is a very thorough
and caring doctor.  He has been at Carle a little over a year now.  I
have taken my 5 year old son who has autism to him.  In order to make
an appointment with him, he requests that you call Carle Pediatrics
(383 3100) and they will mail you some forms to fill out before
setting up the appointment.  Some of the forms are for parents to
complete, others are for teachers.  I believe that he can schedule
most patients within a month of receiving the paperwork at this point.

Karen Eisenmenger, MD

--- In cuan-listserve@yahoogroups.com, "Ann Osterling"
<aosterling@...> wrote:
>
> Hello Barb,
> I am a professional (speech-language pathologist) and not the
parent of a child with autism or Down Syndrome. However, I have met
Dr. Morton and had the chance to work with him with a number of
children and family in my practice. I think we are very lucky to have
here in this community. Interestingly, he has been prescribing Tenex
for a number of my clients--which hadn't been happening much around
here. Dr. Morton does an intensive interview and work-up and the
families I know have been quite pleased with his report and
recommendations. I have referred many of my patients to him. He is
board certified in developmental pediatrics (and that is hard to
find!)
>
> Good luck
>
> Ann
>
> Ann Osterling
> Speech-Language Pathologist
> 510 South Staley Road, Suite A
> Champaign, IL 61822
>
> ________________________________
>
> From: cuan-listserve@yahoogroups.com on behalf of jewettpr
> Sent: Fri 2/2/07 4:38 PM
> To: cuan-listserve@yahoogroups.com
> Subject: [cuan-listserve] need advice on doctors
>
>
>
> Hello! I am new to the listserve. I had to work and was not able to
> attend your meeting last night to ask this in person, so hope
someone
> will answer.
>
> Our 14 year old son has Down Syndrome and autism. He is also ADHD,
for
> which he takes Tenex--a very old blood pressure medicine with an
> off-label use for ADHD. The last few months he has become very
anxious
> and very tense and seldom sleeps for more than 4 hours a night,
which
> means he is not up to coping with school the next day. Our doctor
> feels we are getting out of his area of expertise and would be happy
> to work with another doctor to monitor drug dosages, etc. but has no
> clue what to try. We have gone to the Child Disabilities and
> Development Clinic at the University of Iowa in the past (a
wonderful
> place!)but feel if we are going to add drugs into the mix we need
> someone local.
>
> There were some early postings on Dr. Morton, but nothing after the
> initial ones. Does anyone go to him? Developmental pediatrician we
> have seen in the past diagnosed but never treated.
>
> I have heard Dr. Elghammer in Danville treats kids with autism--has
> anyone gone to him?
>
> Others you'd recommend?
>
> Thanks!
> Barb Jewett
>

#51 From: "Ann Osterling" <aosterling@...>
Date: Sat Feb 3, 2007 12:15 am
Subject: RE: need advice on doctors
annosterling
Offline Offline
Send Email Send Email
 
Hello Barb,
I am a professional (speech-language pathologist) and not the parent of a child
with autism or Down Syndrome. However, I have met Dr. Morton and had the chance
to work with him with a number of children and family in my practice. I think we
are very lucky to have here in this community. Interestingly, he has been
prescribing Tenex for a number of my clients--which hadn't been happening much
around here. Dr. Morton does an intensive interview and work-up and the families
I know have been quite pleased with his report and recommendations. I have
referred many of my patients to him. He is board certified in developmental
pediatrics (and that is hard to find!)

Good luck

Ann

Ann Osterling
Speech-Language Pathologist
510 South Staley Road, Suite A
Champaign, IL 61822

________________________________

From: cuan-listserve@yahoogroups.com on behalf of jewettpr
Sent: Fri 2/2/07 4:38 PM
To: cuan-listserve@yahoogroups.com
Subject: [cuan-listserve] need advice on doctors



Hello! I am new to the listserve. I had to work and was not able to
attend your meeting last night to ask this in person, so hope someone
will answer.

Our 14 year old son has Down Syndrome and autism. He is also ADHD, for
which he takes Tenex--a very old blood pressure medicine with an
off-label use for ADHD. The last few months he has become very anxious
and very tense and seldom sleeps for more than 4 hours a night, which
means he is not up to coping with school the next day. Our doctor
feels we are getting out of his area of expertise and would be happy
to work with another doctor to monitor drug dosages, etc. but has no
clue what to try. We have gone to the Child Disabilities and
Development Clinic at the University of Iowa in the past (a wonderful
place!)but feel if we are going to add drugs into the mix we need
someone local.

There were some early postings on Dr. Morton, but nothing after the
initial ones. Does anyone go to him? Developmental pediatrician we
have seen in the past diagnosed but never treated.

I have heard Dr. Elghammer in Danville treats kids with autism--has
anyone gone to him?

Others you'd recommend?

Thanks!
Barb Jewett

#50 From: "jewettpr" <jewettpr@...>
Date: Fri Feb 2, 2007 10:38 pm
Subject: need advice on doctors
jewettpr
Offline Offline
Send Email Send Email
 
Hello! I am new to the listserve. I had to work and was not able to
attend your meeting last night to ask this in person, so hope someone
will answer.

Our 14 year old son has Down Syndrome and autism. He is also ADHD, for
which he takes Tenex--a very old blood pressure medicine with an
off-label use for ADHD. The last few months he has become very anxious
and very tense and seldom sleeps for more than 4 hours a night, which
means he is not up to coping with school the next day. Our doctor
feels we are getting out of his area of expertise and would be happy
to work with another doctor to monitor drug dosages, etc. but has no
clue what to try. We have gone to the Child Disabilities and
Development Clinic at the University of Iowa in the past (a wonderful
place!)but feel if we are going to add drugs into the mix we need
someone local.

There were some early postings on Dr. Morton, but nothing after the
initial ones. Does anyone go to him? Developmental pediatrician we
have seen in the past diagnosed but never treated.

I have heard Dr. Elghammer in Danville treats kids with autism--has
anyone gone to him?

Others you'd recommend?

Thanks!
Barb Jewett

#49 From: Sheila Krein <sfkrein@...>
Date: Fri Dec 29, 2006 9:52 pm
Subject: RE: Video Social Stories from Carol Gray and Mark Shelley
sfkrein
Offline Offline
Send Email Send Email
 
Wow, Ann and all who are reading this.  Yes, I think we should get a copy for the resource room.  I asked someone with the schools about it and she wasn't familiar with it.  I just now read the entire post and see they were offereing a 33% discount.  I wonder if the discount is still available.  I didn't see any discount on the website when I looked a couple of weeks ago.  I am slow to learn about some of this.  I ordered the trial version of DT (Discrete Trials) Trainer and am waiting for it to arrive in the mail - today, I hope. 

At 01:46 PM 12/29/2006, you wrote:

Sheila,
I was planning on ordering it and then.....actually, I have a family who did order it I believe-so, I 'll check with them.
Would this be something that would be appropriate for the TAP:CC to order and have available? It does sound good

Ann

Ann Osterling
Speech-Language Pathologist
510 South Staley Road, Suite A
Champaign, IL 61822

________________________________

From: cuan-listserve@yahoogroups.com on behalf of Sheila Krein
Sent: Fri 12/29/06 12:51 PM
To: cuan-listserve@yahoogroups.com
Subject: Re: [cuan-listserve] Video Social Stories from Carol Gray and Mark Shelley

Has anyone used the Video Social Stories that Karl mentioned in his Aug. 14 post? I read about these. It sounds wonderful, but I've yet to talk with anyone who has used them. Sheila

At 03:45 PM 8/14/2006, you wrote:

Announcing Video Social Stories

From: Carol Gray, Mark Shelley, & the Special Minds Foundation

View video from Carol Gray & Mark Shelley: www.dttrainer.com/smovvid.php < http://www.dttrainer.com/smovvid.php>



Hi,

This email is one of my few posts per year and is about a new tool to help teach our kids with autism and Aspergers. I get frequent requests for tools to help our kids with social skills so here is a gem.



Imagine combining Carol Gray's social stories with the power of video for our visual learners. That is what has happened with the collaboration between Carol Gray, Mark Shelley, and the Special Minds Foundation. Volume 1 is the first in the planned series and covers basic social concepts & skills at school. Future volumes will address a broad range of topics and target young children to adults. The foundation has raised donations to help produce these materials so that the cost to the user can be much lower than otherwise possible for the product.

The Social Concepts & Skills volume will not only be valuable for teachers, but also for parents helping prepare their children for school situations. Additionally, some of the situations are issues for both home and school. The product was designed for children with Aspergers and others on the autism spectrum, however it will also benefit any child with limited social skills.

Storymovies, Volume 1, targets students developmentally 8-12 years old and includes 25 stories based on 9 movies. There are 2 versions: Standard Edition & Professional Edition. Both versions include the main color version DVD of the 25 stories and a user's guide. The Professional version includes a black & white DVD version that is used for children distracted by color; a raw footage DVD that is useful for additional teaching and testing purposes; and a CD with printable pictures and related activities for generalization, practice, & review.

Mark Shelley is a parent of a child with Aspergers, which is the reason for his efforts toward helping children learn social skills. Mark and I started talking about digital video based social stories about 4 years ago. Through much of his effort and sacrifice he now has this first important volume with more on the way. The collaboration with Carol, getting donors to help fund the development, and him taking significant personal risk have all been critical in getting to this point. I want to help get this in the hands of as many teachers and parents as possible by substantially cutting our margins and offering this tool at a 33% discount off of list. The sales of the current volume will help fund the continued expansion of the series. Please spread the word about this important work!



For more information visit: www.dttrainer.com/storymovies.html < http://www.dttrainer.com/storymovies.html> .



Karl Smith

- father of a son with autism

- founder of Accelerations Educational Software (making a difference for our kids)



#48 From: "Ann Osterling" <aosterling@...>
Date: Fri Dec 29, 2006 7:46 pm
Subject: RE: Video Social Stories from Carol Gray and Mark Shelley
annosterling
Offline Offline
Send Email Send Email
 
Sheila,
I was planning on ordering it and then.....actually, I have a family who did
order it I believe-so, I 'll check with them.
Would this be something that would be appropriate for the TAP:CC to order and
have available?  It does sound good

Ann

Ann Osterling
Speech-Language Pathologist
510 South Staley Road, Suite A
Champaign, IL 61822

________________________________

From: cuan-listserve@yahoogroups.com on behalf of Sheila Krein
Sent: Fri 12/29/06 12:51 PM
To: cuan-listserve@yahoogroups.com
Subject: Re: [cuan-listserve] Video Social Stories from Carol Gray and Mark
Shelley



Has anyone used the Video Social Stories that Karl mentioned in his Aug. 14
post?  I read about these.  It sounds wonderful, but I've yet to talk with
anyone who has used them.  Sheila

At 03:45 PM 8/14/2006, you wrote:



	 Announcing Video Social Stories

	 From: Carol Gray, Mark Shelley, & the Special Minds Foundation

	 View video from Carol Gray & Mark Shelley: www.dttrainer.com/smovvid.php
<http://www.dttrainer.com/smovvid.php>



	 Hi,

	 This email is one of my few posts per year and is about a new tool to help
teach our kids with autism and Aspergers.  I get frequent requests for tools to
help our kids with social skills so here is a gem.



	 Imagine combining Carol Gray's social stories with the power of video for our
visual learners.  That is what has happened with the collaboration between Carol
Gray, Mark Shelley, and the Special Minds Foundation.  Volume 1 is the first in
the planned series and covers basic social concepts & skills at school.  Future
volumes will address a broad range of topics and target young children to
adults.  The foundation has raised donations to help produce these materials so
that the cost to the user can be much lower than otherwise possible for the
product.

	 The Social Concepts & Skills volume will not only be valuable for teachers, but
also for parents helping prepare their children for school situations. 
Additionally, some of the situations are issues for both home and school.  The
product was designed for children with Aspergers and others on the autism
spectrum, however it will also benefit any child with limited social skills.

	 Storymovies, Volume 1, targets students developmentally 8-12 years old and
includes 25 stories based on 9 movies.  There are 2 versions: Standard Edition &
Professional Edition.  Both versions include the main color version DVD of the
25 stories and a user's guide.  The Professional version includes a black &
white DVD version that is used for children distracted by color; a raw footage
DVD that is useful for additional teaching and testing purposes; and a CD with
printable pictures and related activities for generalization, practice, &
review.

	 Mark Shelley is a parent of a child with Aspergers, which is the reason for his
efforts toward helping children learn social skills.  Mark and I started talking
about digital video based social stories about 4 years ago.  Through much of his
effort and sacrifice he now has this first important volume with more on the
way.  The collaboration with Carol, getting donors to help fund the development,
and him taking significant personal risk have all been critical in getting to
this point.  I want to help get this in the hands of as many teachers and
parents as possible by substantially cutting our margins and offering this tool
at a 33% discount off of list.  The sales of the current volume will help fund
the continued expansion of the series.   Please spread the word about this
important work!



	 For more information visit: www.dttrainer.com/storymovies.html
<http://www.dttrainer.com/storymovies.html> .



	 Karl Smith

	 - father of a son with autism

	 - founder of Accelerations Educational Software (making a difference for our
kids)

#47 From: Sheila Krein <sfkrein@...>
Date: Fri Dec 29, 2006 6:51 pm
Subject: Re: Video Social Stories from Carol Gray and Mark Shelley
sfkrein
Offline Offline
Send Email Send Email
 
Has anyone used the Video Social Stories that Karl mentioned in his Aug. 14 post?  I read about these.  It sounds wonderful, but I've yet to talk with anyone who has used them.  Sheila

At 03:45 PM 8/14/2006, you wrote:

Announcing Video Social Stories

From: Carol Gray, Mark Shelley, & the Special Minds Foundation

View video from Carol Gray & Mark Shelley: www.dttrainer.com/smovvid.php 

 

Hi,

This email is one of my few posts per year and is about a new tool to help teach our kids with autism and Aspergers.  I get frequent requests for tools to help our kids with social skills so here is a gem.

 

Imagine combining Carol Gray's social stories with the power of video for our visual learners.  That is what has happened with the collaboration between Carol Gray, Mark Shelley, and the Special Minds Foundation.  Volume 1 is the first in the planned series and covers basic social concepts & skills at school.  Future volumes will address a broad range of topics and target young children to adults.  The foundation has raised donations to help produce these materials so that the cost to the user can be much lower than otherwise possible for the product.   

The Social Concepts & Skills volume will not only be valuable for teachers, but also for parents helping prepare their children for school situations.  Additionally, some of the situations are issues for both home and school.  The product was designed for children with Aspergers and others on the autism spectrum, however it will also benefit any child with limited social skills.

Storymovies, Volume 1, targets students developmentally 8-12 years old and includes 25 stories based on 9 movies.  There are 2 versions: Standard Edition & Professional Edition.  Both versions include the main color version DVD of the 25 stories and a user's guide.  The Professional version includes a black & white DVD version that is used for children distracted by color; a raw footage DVD that is useful for additional teaching and testing purposes; and a CD with printable pictures and related activities for generalization, practice, & review.

Mark Shelley is a parent of a child with Aspergers, which is the reason for his efforts toward helping children learn social skills.  Mark and I started talking about digital video based social stories about 4 years ago.  Through much of his effort and sacrifice he now has this first important volume with more on the way.  The collaboration with Carol, getting donors to help fund the development, and him taking significant personal risk have all been critical in getting to this point.  I want to help get this in the hands of as many teachers and parents as possible by substantially cutting our margins and offering this tool at a 33% discount off of list.  The sales of the current volume will help fund the continued expansion of the series.   Please spread the word about this important work!

 

For more information visit: www.dttrainer.com/storymovies.html.

 

Karl Smith

- father of a son with autism

- founder of Accelerations Educational Software (making a difference for our kids)

#46 From: "kneer74" <kneer74@...>
Date: Wed Dec 20, 2006 8:01 pm
Subject: visual timer with audio
kneer74
Offline Offline
Send Email Send Email
 
I am looking for a visual timer with audio.  We have a good visual
timer (the time is in red) but with no bell or buzz when all the red's
gone.  Or, I have a regular kitchen timer with a buzzer with poor
visual.  I'd like the best of both worlds!  Any suggestions?

Thanks!  Nicole, SLP

#45 From: "Sheila" <sfkrein@...>
Date: Sat Dec 16, 2006 3:05 am
Subject: journalism grad student looking for parent input
sfkrein
Offline Offline
Send Email Send Email
 
from member Debbie Sage:

Hello,

I have a friend who has a child who has Autism and is doing a
research on Autism.  Would anyone mind helping her out and send her
information?  I have copied and pasted the note that she had sent
me.  Thank you for your time.

Please reply to jmonie_1@..., her name is Janoah and her son
is Marshawn.

*******************************************************************

Hi all!

Its thesis time for me, and due to a last minute change, part of my
topic is now focusing on autism!

For those who don't know, I am a journalism graduate student. For my
thesis, I am focusing on special needs of children from somewhat
different angles...

I am writing two seperate articles...one started out being about
drug treatment/therapy in children with depression...(definitely a
special need in youth in my eyes)... but I am now expanding on that
by looking into drug treatment for children with autism and adhd as
well. I want to talk about the safety of the medicines that are
prescibed, since there is often controversy about the effects that
some of these meds have on children. As some know, the FDA has said
that some of these meds cause an increased risk of suicidal thoughts
or behaviors, while other studies contradict this. I want to know
how parents(teachers, caretakers, etc) feel about it? Do the
medicines have more benefits than risks? How effective are drugs in
treating these conditions? And what do the "experts" have to say?

In the second article, I will be discussing autism - advocacy, the
Combating Autism Act, looking into the kinds of research that are
being done, and also biomedical, diet, vitamin, and/or alternative
therapies (such as chelation) etc.

I have a TON of factual information, (although if you want to send
that I welcome it...it may be something I haven't seen before!) So
basically I am looking for personal reflections on how autism has
affected parents, caretakers, etc in any of these areas. Also I am
particularly interested in anyone whose child has/is taken
RISPERDAL, or anyone who has tried CHELATION therapy. Also, if GFCF
or vitamin therapy has worked for you or you have tried it, I would
love your reflections on that.

Just a note, that if you decide to help, your first and last name,
as well as location (city, state) would be noted, as well as the
child's first name. Also for my source list I would need contact
info such as an email address or phone number.

So if anyone wants to share, I would be more than happy to hear your
stories! And also, I will be sharing part of my own story in a
publication called Trumpet Magazine in January 2007, so I will be
sure to keep you all updated!

Thanks for taking the time out to read this! If you live in the
midwest, that would be even greater! The closer to Chicago, the more
local my story angle will be...but people who have loved ones with
special needs are a community of our own, so I am happy to have
information from anyone who wants to share. I am looking to submit a
complete draft by Monday or Tuesday, which means I will be reading
and writing a lot between now and then!!! (As much as Marshawn lets
me!!!) Lol! But I look forward to any feedback, and I hope everyone
has a great weekend!

Thanks!

-Janoah

__________________________________________________

#44 From: "zeekil1" <zeekil@...>
Date: Mon Dec 11, 2006 3:12 pm
Subject: MD's in area with ASD expertise
zeekil1
Offline Offline
Send Email Send Email
 
My son is incredibly anxious in addition to having ASD and ADHD.  I
have littel confidence in the MD that we have been working with for the
past 5 yrs.  As Mike gets older, the anxiety is getting worse due to
all of the peer issues (and especially bullies on the playground.  Any
suggestions for MD's or therapists in the area who are good with these
issues?  Thanks.

Doug

#43 From: "zeekil1" <zeekil@...>
Date: Wed Nov 1, 2006 4:01 am
Subject: Re: NEW TO GROUP
zeekil1
Offline Offline
Send Email Send Email
 
Toniya,
I know how you feel.  My 10 yr old son was diagnosed with adhd, asd,
and generalized anxiety disorder when he was 5.  He has responded
well to the meds that he is on, but has always had a very difficult
time making friends.  He is very loud and just doesn't get how to
interact with other kids very well.  I had him in Cub Scouts for 2
yrs, and he had a reasonable amount of success there, but I had to
attend with him, and just recently allowed him to quit the group- he
told me that he didn't like it because it was boring and the other
kids were mean to him.  We have had success in the friend area in 2
other arenas.  One has been in allowing him to play with younger
kids.  We have friends from church with a 6 and 4 yr old, and they
just love Mike (my son), and he is great with them.  The other area
is in getting what Autism expert Tony Attwood calls a "rent a
friend"... the 10 yr old son of another acquaintance from church who
knows Mike and can tolerate his idiosyncracies without becoming mean
and nasty to him (that kills me when other kids pick on my son).  We
have talked to our school social worker about having another asd boy
come over for play dates, but haven't done this yet.  Good luck to
you and God bless.

Doug


--- In cuan-listserve@yahoogroups.com, Sheila Krein <sfkrein@...>
wrote:
>
> Has anyone from our group responded to you,
> Toniya?  If no one has, I will ask for
> suggestions.  Making friends is one of the
> hardest things for children with autism.  The
> Autism Program out of Springfield has social
> skills workshops, and I hope we can get some going in this ares.
Sheila
>
> At 11:28 PM 8/4/2006, you wrote:
>
> >Hi, my name is Toniya and I have a 8yr old son who has Autism and
who
> >has seizures. My son was diagnosed when he was 3 and we have been
> >threw many of challenges One cfhallenge he is facing now is making
> >friends. He really tries hard and would like to have a friend but
> >some of the other kids think his strange. He plays well by himself
> >but I really would like him to socialize with other children. I
have
> >him enrolled in a daycare program but he always end up playing by
> >himself. If anyone have any suggestions I would appreciate it.
Thanks.
> >
> >
>

#42 From: Sheila Krein <sfkrein@...>
Date: Wed Nov 1, 2006 2:40 am
Subject: Re: NEW TO GROUP
sfkrein
Offline Offline
Send Email Send Email
 
Has anyone from our group responded to you, Toniya?  If no one has, I will ask for suggestions.  Making friends is one of the hardest things for children with autism.  The Autism Program out of Springfield has social skills workshops, and I hope we can get some going in this ares.  Sheila

At 11:28 PM 8/4/2006, you wrote:

Hi, my name is Toniya and I have a 8yr old son who has Autism and who
has seizures. My son was diagnosed when he was 3 and we have been
threw many of challenges One cfhallenge he is facing now is making
friends. He really tries hard and would like to have a friend but
some of the other kids think his strange. He plays well by himself
but I really would like him to socialize with other children. I have
him enrolled in a daycare program but he always end up playing by
himself. If anyone have any suggestions I would appreciate it. Thanks.


#41 From: "karl@..." <karl@...>
Date: Mon Aug 14, 2006 9:45 pm
Subject: Video Social Stories from Carol Gray and Mark Shelley
karlgaray
Offline Offline
Send Email Send Email
 

Announcing Video Social Stories

From: Carol Gray, Mark Shelley, & the Special Minds Foundation

View video from Carol Gray & Mark Shelley: www.dttrainer.com/smovvid.php 

 

Hi,

This email is one of my few posts per year and is about a new tool to help teach our kids with autism and Aspergers.  I get frequent requests for tools to help our kids with social skills so here is a gem.

 

Imagine combining Carol Gray's social stories with the power of video for our visual learners.  That is what has happened with the collaboration between Carol Gray, Mark Shelley, and the Special Minds Foundation.  Volume 1 is the first in the planned series and covers basic social concepts & skills at school.  Future volumes will address a broad range of topics and target young children to adults.  The foundation has raised donations to help produce these materials so that the cost to the user can be much lower than otherwise possible for the product.   

The Social Concepts & Skills volume will not only be valuable for teachers, but also for parents helping prepare their children for school situations.  Additionally, some of the situations are issues for both home and school.  The product was designed for children with Aspergers and others on the autism spectrum, however it will also benefit any child with limited social skills.

Storymovies, Volume 1, targets students developmentally 8-12 years old and includes 25 stories based on 9 movies.  There are 2 versions: Standard Edition & Professional Edition.  Both versions include the main color version DVD of the 25 stories and a user's guide.  The Professional version includes a black & white DVD version that is used for children distracted by color; a raw footage DVD that is useful for additional teaching and testing purposes; and a CD with printable pictures and related activities for generalization, practice, & review.

Mark Shelley is a parent of a child with Aspergers, which is the reason for his efforts toward helping children learn social skills.  Mark and I started talking about digital video based social stories about 4 years ago.  Through much of his effort and sacrifice he now has this first important volume with more on the way.  The collaboration with Carol, getting donors to help fund the development, and him taking significant personal risk have all been critical in getting to this point.  I want to help get this in the hands of as many teachers and parents as possible by substantially cutting our margins and offering this tool at a 33% discount off of list.  The sales of the current volume will help fund the continued expansion of the series.   Please spread the word about this important work!

 

For more information visit: www.dttrainer.com/storymovies.html.

 

Karl Smith

- father of a son with autism

- founder of Accelerations Educational Software (making a difference for our kids)


#40 From: "mrsabe02" <mrsabe02@...>
Date: Mon Aug 7, 2006 4:40 am
Subject: Re: New to group
mrsabe02
Offline Offline
Send Email Send Email
 
Hi Stacie,
That would be great, I would love to be in touch with someone close
to us. Please do pass on my info.
Thanks again
Jessica


--- In cuan-listserve@yahoogroups.com, "Stacie Young"
<stacie.young@...> wrote:
>
> Hi Jessica. I know a family in your area with a similar story.
Would
> you like for me to give them your name? If so, you can email me
> directly with contact info. I see them weekly so can maybe connect
> you. It will really help to have someone that can somewhat
understand
> your situation. Best of luck starting early childhood. Hang in
there...
> Stacie Young
>
> --- In cuan-listserve@yahoogroups.com, "mrsabe02" <mrsabe02@> wrote:
> >
> > Hi we are new to this group. We live in Paxton. We were told in
may
> > that our 3yrd old has PDD-NOS by Dr. Morton.
> > We are having a rough summer and look forward to seeing what
advice
> > from others we can utilize to help our little boy in the best way
> > possible.
> > Looking foward to getting to know you all better.
> > THANKS!
> > Jessica & Tim Abrahamson
> >
>

#39 From: "Penny Isaacs" <bluestar2112@...>
Date: Sun Aug 6, 2006 11:55 am
Subject: check this out
bluestar2112
Offline Offline
Send Email Send Email
 
"C-U Autism Network" <autismnetwork@...>

#38 From: "maajmom" <maajmom@...>
Date: Sat Aug 5, 2006 5:28 am
Subject: NEW TO GROUP
maajmom
Offline Offline
Send Email Send Email
 
Hi,  my name is Toniya and I have a 8yr old son who has Autism and who
has seizures.  My son was diagnosed when he was 3 and we have been
threw many of challenges One cfhallenge he is facing now is making
friends.  He really tries hard and would like to have a friend but
some of the other kids think his strange.  He plays well by himself
but I really would like him to socialize with other children.  I have
him enrolled in a daycare program but he always end up playing by
himself. If anyone have any suggestions I would appreciate it. Thanks.

#37 From: "Penny Isaacs" <bluestar2112@...>
Date: Thu Aug 3, 2006 2:47 am
Subject: hello I am new here
bluestar2112
Offline Offline
Send Email Send Email
 
HELLO GROUP,
IM NAME IS PENNY AND WE ARE FROM CISSNAPARK,IL.
MY SON JUSTIN WAS JUST DIAGNOSISED WITH
HIGH FUCTION AUTISM
DELAY DEVELOPMENT ,SENSORY DISORDER,VERBAL AND NO VERBAL PROCESSING
DISORDER,IMPULSIVE DISORDER,SEIZER DISORDER,SLEEP DISORDER,RULE OUT
ATTACHMENT OR ADJUSTMENT DISODER.
JUSTIN HAD A STOKE LAST YEAR AND ARE VERY WEIRED ABOUT HIM,WE HAVE HAD
A BAD SUMMER TRYING TO GET ANY KIND OF SUPPORT.
TODAY WE WENT TO COUNCLING AND IN THE MIDDLE OF IT HE STARTED CRYING
AND TOLD ME IN HEAD HURT AND IN WAS SEEING FLASHING PICTURES OF ROBOTS
IN HIS HEAD AND THEY WERE WANTTING TO FIGHT HIM.i LOST IT AND STARTTED
CRYING! MY HUSBAND IS A TRUCK DRIVER AND HOME MABEY 48 IF WE ARE LUCKY
ON THE WEEKENDS.AND I HAVE TWO OTHER KIDS ONE WHO IS 3 AND ONE WHO IS
13 SO IM GOING THROUGH .......JUSTIN HAS BROKEN ALL MY OUTSIDE WINDOWS
TO THE BARN AND GARAGE.CHOKE AND BEATS ON HIS SISTER.IT STARTS THE
TIME HE WAKES UP TO THE TIME HE GOES TO BED.
THE SSI MAN CALLED YESTURDAY AND ASKED IF I REALLY WANTTED TO START
THE PROCESS BECAUSE WE WOULD PROBLEY WOULDNT GET IT BECAUSE MY HUSBAND
GROSSES TOO MUCH.
lAST YEAR WE HAD SO MUCH MED BILLS WE CLAIM THE BIG B AND NOW THEY ARE
STACKING UP AGAIN.I DO NOT WORK BECAUSE MY KIDS NEED ME HOME.
SO TOMORROW IM GOING TO HEALTH DEPARTMENT TO TRY TO GET MEDICARE FOR
HIS DISABILITY.IF THAT DONT WORK I DONT KNOW WHAT TO DO .I FORGOT TO
SAY HE HAS TO BEEN SEEN BY A NEUROLOGIST.
WE HAVE WORK INSURANCE AND 100 A WEEK.THATS FOR THE HOLE FAMILY AND IF
WE TOOK THE KIDS OF TO PUT THEM ON ALL KIDS WE WOULD STILL HAVE TO PAY
100 DOLLARS FOR US STILL AND ALL KIDS FEES.SO ITS AND ALL LOSE THING
HERE. WELL THANKS FOR LETTING ME VENT!
                                PENNY AND PHIL ISAACS
PS IF MY WORDS ARENT SPELLED RIGHT IM SORRY VERY TIRED~

#36 From: "Stacie Young" <stacie.young@...>
Date: Thu Aug 3, 2006 2:32 am
Subject: Re: New to group
sjylou
Offline Offline
Send Email Send Email
 
Hi Jessica. I know a family in your area with a similar story. Would
you like for me to give them your name? If so, you can email me
directly with contact info. I see them weekly so can maybe connect
you. It will really help to have someone that can somewhat understand
your situation. Best of luck starting early childhood. Hang in there...
Stacie Young

--- In cuan-listserve@yahoogroups.com, "mrsabe02" <mrsabe02@...> wrote:
>
> Hi we are new to this group. We live in Paxton. We were told in may
> that our 3yrd old has PDD-NOS by Dr. Morton.
> We are having a rough summer and look forward to seeing what advice
> from others we can utilize to help our little boy in the best way
> possible.
> Looking foward to getting to know you all better.
> THANKS!
> Jessica & Tim Abrahamson
>

#35 From: "sheahasu" <susan.sheahan@...>
Date: Wed Aug 2, 2006 10:26 pm
Subject: Re: New to group
sheahasu
Offline Offline
Send Email Send Email
 
Hi, Jessica.  Our 12 yr. old son has Asperger's.  We first noticed
symptoms at around age 4, but didn't get a correct diagnoses until
about 18 months ago.  At least you are getting an early start!

You'd think after all this time, I'd have more answers than
questions, but that isn't always the case.  We went on a family trip
this summer to TN that I refer to as "the wonderful vacation from
hell!"  When our son wasn't having meltdowns, it was great.
Unfortunately, that wasn't often!  However, all three kids profess
it to be "the best vacation ever", so they were able to put all the
negative stuff aside.  The big problem we had was that we didn't
plan and prepare Rick ahead of time like we do for our usual trips
to grandparents, etc.  We just kind of assumed that because it was a
fun trip as opposed to a "have to" trip, he'd do great.  Wrong!

So, the lesson I learned the hard way, is prepare, prepare,
prepare!  Rick does better now than when he was younger with
transitions such as stopping an activity to move onto another one,
or from one class to another, in terms of his frustration.  But he
doesn't like it any better!  So for little things, I don't worry
much.  But every day starts with me having to explain what he's
expected to do that day. Even things that are constants have to be
mentioned ("take your medicine", "you may not wear those shoes
without socks", close the door the a/c is on" and so on!) Even at
his age, I find that having a list is tremendously helpful.  I know
your son is too young to read, but pictures might work.  If there is
something planned besides "do your chores and then you can be on the
computer", I make sure to tell him the night before or in the
morning along with all his other chores/plans.  I have also found
that if it is something that is subject to change (say, a friend
coming over), my son does better if I don't say anything too early.
It's much easier for him to adjust to a change in plans that's fun
and exciting than disappointing.  If I say anything too early, then
plans change, he's more prone to meltdowns.

For Rick, clothing is tremendously important.  He hates being hot
and he hates anything that doesn't practically fall off of him.  So
he wears men's large t-shirts, pants and shorts that are elastic
waisted or a size too big so they don't bind, and his shoes are a
good size too big. Shirts can't have any seams other than side and
shoulder, appliques, etc. that can be felt on the inside or they
drive him nuts. We've learned that when it comes to being in public,
if what he has on matches and is clean, that's all that matters. And
really, except for church, I can live if it doesn't match. We've
given up on tucked in shirts, tied shoes, and long pants (unless
they're sweat pants, and even that's only for about a month each
year).

Our kids are very frustrating.  It's easy to feel worn out and
frazzled and GUILTY for feeling irritated.  The big thing is to just
do what you feel is in your child's best interest.  Friends and
family may offer advice, some helpfully, some with a little less
altruistic motives.  Ultimately, though, you know your child best.
Don't be hesitant to let these folks, as well as teachers,
babysitters, etc., know your rules and know that your child will
probably try to bend every one of them.  I make it a point to tell
my son's teachers (both at school and church) every year, very
bluntly, what to expect from him.  He has a tremendous IQ, but very
little common sense, and I tell them specific ways he will react to
different situations and how they can avoid or limit those
reactions.  Then, if he reacts that way, and they didn't prepare,
it's their issue.  And I don't hesitate to tell them if I think they
goofed (although I try to be polite, in my best teacher-y manner!).

I don't know if any of this helps.  Even if there's nothing else to
be gleaned, at least know that you are not alone!














--- In cuan-listserve@yahoogroups.com, "mrsabe02" <mrsabe02@...>
wrote:
>
> Hi Ann,
> No I haven't really found any other families to talk with- I would
> love it because I have tons of questions about what other people
have
> tried to do for their kids. Please do pass my email along I
welcome
> all the resources I can find. My son is 3yrs old and has PDD-NOS.
> Our biggest issues is finding something to lessen or help control
the
> meltdowns and adjust to new diets. I've taken a leave of abscence
> from my job until he is settled in the early childhood program at
> Clara Peterson school, however that doesn't begin until school is
> back in session. I don't understand the program that he will be
in,
> it hasn't been explained in deepth it was a quick Evaluation and
lots
> of questions for me and at the time I didn't know what things to
ask.
> I'm pretty much Riley's care taker 24/7, my husband and Riley are
> getting closer but Riley is very dependant upon me. I've been home
> with him a little over a month. We have 2 other boys- one is 11yrs
> old and the other is turning 2yrs old soon. We are a family on the
go
> alot and that doesn't help Riley because his routine gets changed
> often. My husband's family lives near but work 40 hours a weeke
since
> I 've stopped working my longest break from Riley has been 2 hours
> while grocery shopping. My nerves are very raw at this point,
since
> Riley is no longer in a daycare program he doesn't get much social
> time with kids other than his brothers I have concerns there about
> how he will do in the Early childhood program.
> I thank you for letting me vent some of my concerns and issues,
I'm
> really hopeful the CU Network can provide some more insight on how
I
> can help Riley have more good days than bad.
> THanks again!
> Jessica Abrahamson
>
>
>
>
>
> --- In cuan-listserve@yahoogroups.com, "Ann Osterling"
> <aosterling@> wrote:
> >
> > HI there
> > SUmmer can be rough for many families who have kids with special
> needs. Do you know any other families with kids with autism/PDD?
If
> not, would you like me to pass your name along to a couple of
other
> families that I work with?
> >
> > What are your biggest issues right now? Do you have
family/friends
> around to give you some support-and breaks- during the tough days?
Is
> your child going to be going to early childhood in the fall?
> >
> > Ann Osterling
> >
> > ________________________________
> >
> > From: cuan-listserve@yahoogroups.com on behalf of mrsabe02
> > Sent: Mon 7/31/06 1:20 PM
> > To: cuan-listserve@yahoogroups.com
> > Subject: [cuan-listserve] New to group
> >
> >
> >
> > Hi we are new to this group. We live in Paxton. We were told in
may
> > that our 3yrd old has PDD-NOS by Dr. Morton.
> > We are having a rough summer and look forward to seeing what
advice
> > from others we can utilize to help our little boy in the best
way
> > possible.
> > Looking foward to getting to know you all better.
> > THANKS!
> > Jessica & Tim Abrahamson
> >
>

#34 From: "Ann Osterling" <aosterling@...>
Date: Tue Aug 1, 2006 4:23 am
Subject: RE: Re: New to group
annosterling
Offline Offline
Send Email Send Email
 
Jessica
Can you send me your email so I can pass this on to a couple of families
Ann
aosterling@...
________________________________

From: cuan-listserve@yahoogroups.com on behalf of Grazia
Sent: Mon 7/31/06 9:12 PM
To: cuan-listserve@yahoogroups.com
Subject: RE: [cuan-listserve] Re: New to group



Hi Jessica

My name is Grazia De Rocco and I have two children a girl  3 yrs and half with
autism a boy 5 with autism too (start with speech delay then PDD now from April
Autism)

I wonder if your son can communicate with you and how, does he speak? Does he
has difficulty to transition? With Matteo when he was about two and he wasn't no
verbal at all we start PECS that is a system of communication trough pictures
and he still using this even if he is talking now. Also this system was very
helpful for transition like when you have to go to the grocery store so you can
show him the picture and he knows what comes next.

You should also look at the services that your school will give to you. Is it a
full day or only half day? Do you have the result form the evaluation? It is
better haave this reports and read all the way trough because right before
school start or just at the beginning you should met all the future teachers and
therapists for your son at a meeting call IEP where it will determinate the
service that he needs - like how many minutes of speech therapy and which are
the goals and so on...

I suggest that you contact The Autism Project in Springfield they do wonderful
evaluation and they help you a lot to better understand which are the needs
specific for your son and what should you ask at school. They also offer the
possibility to barrow a bucket with a lot of activities based on TEEACH
technique where you basically spend some time with your kid to teach him to do
one activity then he can start to do that by himself under your supervision till
became independent so you can do some in the house and he can play by himself.

Summer is very difficult and is VERY long for family with autistic kids but when
he will start to go to school he can apply for summer school (generally 4 weeks)
so you can cover June then you can look for different activity offer for summer
camp, in CU there is CU Special Recreation that offer summer camp to special
needs kids and they are doing a good job.

Further then that you can look for play date with other kids but for a working
mom I agree is very difficult, I'm lucky because working with University I have
the summer off and more time to spend with them.

I hope I could help some and.....

I don't know if Paxon has this program or can benefit from but we have Respite
program offer from the Development Services center they pay for a baby sitter so
mom can have  some time off you can contact Jennifer Carlson - Respite
Coordinator - jcarlson@... <mailto:jcarlson@...>

Even if they don't serve Paxon maybe she can help

Good luck



Grazia







________________________________

From: cuan-listserve@yahoogroups.com [mailto:cuan-listserve@yahoogroups.com] On
Behalf Of mrsabe02
Sent: Monday, July 31, 2006 8:21 PM
To: cuan-listserve@yahoogroups.com
Subject: [cuan-listserve] Re: New to group



Hi Ann,
No I haven't really found any other families to talk with- I would
love it because I have tons of questions about what other people have
tried to do for their kids. Please do pass my email along I welcome
all the resources I can find. My son is 3yrs old and has PDD-NOS.
Our biggest issues is finding something to lessen or help control the
meltdowns and adjust to new diets. I've taken a leave of abscence
from my job until he is settled in the early childhood program at
Clara Peterson school, however that doesn't begin until school is
back in session. I don't understand the program that he will be in,
it hasn't been explained in deepth it was a quick Evaluation and lots
of questions for me and at the time I didn't know what things to ask.
I'm pretty much Riley's care taker 24/7, my husband and Riley are
getting closer but Riley is very dependant upon me. I've been home
with him a little over a month. We have 2 other boys- one is 11yrs
old and the other is turning 2yrs old soon. We are a family on the go
alot and that doesn't help Riley because his routine gets changed
often. My husband's family lives near but work 40 hours a weeke since
I 've stopped working my longest break from Riley has been 2 hours
while grocery shopping. My nerves are very raw at this point, since
Riley is no longer in a daycare program he doesn't get much social
time with kids other than his brothers I have concerns there about
how he will do in the Early childhood program.
I thank you for letting me vent some of my concerns and issues, I'm
really hopeful the CU Network can provide some more insight on how I
can help Riley have more good days than bad.
THanks again!
Jessica Abrahamson

--- In cuan-listserve@yahoogroups.com <mailto:cuan-listserve%40yahoogroups.com>
, "Ann Osterling"
<aosterling@...> wrote:
>
> HI there
> SUmmer can be rough for many families who have kids with special
needs. Do you know any other families with kids with autism/PDD? If
not, would you like me to pass your name along to a couple of other
families that I work with?
>
> What are your biggest issues right now? Do you have family/friends
around to give you some support-and breaks- during the tough days? Is
your child going to be going to early childhood in the fall?
>
> Ann Osterling
>
> ________________________________
>
> From: cuan-listserve@yahoogroups.com <mailto:cuan-listserve%40yahoogroups.com>
on behalf of mrsabe02
> Sent: Mon 7/31/06 1:20 PM
> To: cuan-listserve@yahoogroups.com <mailto:cuan-listserve%40yahoogroups.com>
> Subject: [cuan-listserve] New to group
>
>
>
> Hi we are new to this group. We live in Paxton. We were told in may
> that our 3yrd old has PDD-NOS by Dr. Morton.
> We are having a rough summer and look forward to seeing what advice
> from others we can utilize to help our little boy in the best way
> possible.
> Looking foward to getting to know you all better.
> THANKS!
> Jessica & Tim Abrahamson
>

#33 From: "Grazia" <mgsanti@...>
Date: Tue Aug 1, 2006 2:12 am
Subject: RE: Re: New to group
mgsantii
Offline Offline
Send Email Send Email
 

Hi Jessica

My name is Grazia De Rocco and I have two children a girl  3 yrs and half with autism a boy 5 with autism too (start with speech delay then PDD now from April Autism)

I wonder if your son can communicate with you and how, does he speak? Does he has difficulty to transition? With Matteo when he was about two and he wasn’t no verbal at all we start PECS that is a system of communication trough pictures and he still using this even if he is talking now. Also this system was very helpful for transition like when you have to go to the grocery store so you can show him the picture and he knows what comes next.

You should also look at the services that your school will give to you. Is it a full day or only half day? Do you have the result form the evaluation? It is better haave this reports and read all the way trough because right before school start or just at the beginning you should met all the future teachers and therapists for your son at a meeting call IEP where it will determinate the service that he needs – like how many minutes of speech therapy and which are the goals and so on…

I suggest that you contact The Autism Project in Springfield they do wonderful evaluation and they help you a lot to better understand which are the needs specific for your son and what should you ask at school. They also offer the possibility to barrow a bucket with a lot of activities based on TEEACH technique where you basically spend some time with your kid to teach him to do one activity then he can start to do that by himself under your supervision till became independent so you can do some in the house and he can play by himself.

Summer is very difficult and is VERY long for family with autistic kids but when he will start to go to school he can apply for summer school (generally 4 weeks) so you can cover June then you can look for different activity offer for summer camp, in CU there is CU Special Recreation that offer summer camp to special needs kids and they are doing a good job.

Further then that you can look for play date with other kids but for a working mom I agree is very difficult, I’m lucky because working with University I have the summer off and more time to spend with them.

I hope I could help some and…..

I don’t know if Paxon has this program or can benefit from but we have Respite program offer from the Development Services center they pay for a baby sitter so mom can have  some time off you can contact Jennifer Carlson – Respite Coordinator – jcarlson@...

Even if they don’t serve Paxon maybe she can help

Good luck

 

Grazia

 

 

 


From: cuan-listserve@yahoogroups.com [mailto:cuan-listserve@yahoogroups.com] On Behalf Of mrsabe02
Sent: Monday, July 31, 2006 8:21 PM
To: cuan-listserve@yahoogroups.com
Subject: [cuan-listserve] Re: New to group

 

Hi Ann,
No I haven't really found any other families to talk with- I would
love it because I have tons of questions about what other people have
tried to do for their kids. Please do pass my email along I welcome
all the resources I can find. My son is 3yrs old and has PDD-NOS.
Our biggest issues is finding something to lessen or help control the
meltdowns and adjust to new diets. I've taken a leave of abscence
from my job until he is settled in the early childhood program at
Clara Peterson school, however that doesn't begin until school is
back in session. I don't understand the program that he will be in,
it hasn't been explained in deepth it was a quick Evaluation and lots
of questions for me and at the time I didn't know what things to ask.
I'm pretty much Riley's care taker 24/7, my husband and Riley are
getting closer but Riley is very dependant upon me. I've been home
with him a little over a month. We have 2 other boys- one is 11yrs
old and the other is turning 2yrs old soon. We are a family on the go
alot and that doesn't help Riley because his routine gets changed
often. My husband's family lives near but work 40 hours a weeke since
I 've stopped working my longest break from Riley has been 2 hours
while grocery shopping. My nerves are very raw at this point, since
Riley is no longer in a daycare program he doesn't get much social
time with kids other than his brothers I have concerns there about
how he will do in the Early childhood program.
I thank you for letting me vent some of my concerns and issues, I'm
really hopeful the CU Network can provide some more insight on how I
can help Riley have more good days than bad.
THanks again!
Jessica Abrahamson

--- In cuan-listserve@yahoogroups.com, "Ann Osterling"
<aosterling@...> wrote:
>
> HI there
> SUmmer can be rough for many families who have kids with special
needs. Do you know any other families with kids with autism/PDD? If
not, would you like me to pass your name along to a couple of other
families that I work with?
>
> What are your biggest issues right now? Do you have family/friends
around to give you some support-and breaks- during the tough days? Is
your child going to be going to early childhood in the fall?
>
> Ann Osterling
>
> ________________________________
>
> From: cuan-listserve@yahoogroups.com on behalf of mrsabe02
> Sent: Mon 7/31/06 1:20 PM
> To: cuan-listserve@yahoogroups.com
> Subject: [cuan-listserve] New to group
>
>
>
> Hi we are new to this group. We live in Paxton. We were told in may
> that our 3yrd old has PDD-NOS by Dr. Morton.
> We are having a rough summer and look forward to seeing what advice
> from others we can utilize to help our little boy in the best way
> possible.
> Looking foward to getting to know you all better.
> THANKS!
> Jessica & Tim Abrahamson
>


#32 From: "mrsabe02" <mrsabe02@...>
Date: Tue Aug 1, 2006 1:21 am
Subject: Re: New to group
mrsabe02
Offline Offline
Send Email Send Email
 
Hi Ann,
No I haven't really found any other families to talk with- I would
love it because I have tons of questions about what other people have
tried to do for their kids. Please do pass my email along I welcome
all the resources I can find. My son is 3yrs old and has PDD-NOS.
Our biggest issues is finding something to lessen or help control the
meltdowns and adjust to new diets. I've taken a leave of abscence
from my job until he is settled in the early childhood program at
Clara Peterson school, however that doesn't begin until school is
back in session. I don't understand the program that he will be in,
it hasn't been explained in deepth it was a quick Evaluation and lots
of questions for me and at the time I didn't know what things to ask.
I'm pretty much Riley's care taker 24/7, my husband and Riley are
getting closer but Riley is very dependant upon me. I've been home
with him a little over a month. We have 2 other boys- one is 11yrs
old and the other is turning 2yrs old soon. We are a family on the go
alot and that doesn't help Riley because his routine gets changed
often. My husband's family lives near but work 40 hours a weeke since
I 've stopped working my longest break from Riley has been 2 hours
while grocery shopping. My nerves are very raw at this point, since
Riley is no longer in a daycare program he doesn't get much social
time with kids other than his brothers I have concerns there about
how he will do in the Early childhood program.
I thank you for letting me vent some of my concerns and issues, I'm
really hopeful the CU Network can provide some more insight on how I
can help Riley have more good days than bad.
THanks again!
Jessica Abrahamson





--- In cuan-listserve@yahoogroups.com, "Ann Osterling"
<aosterling@...> wrote:
>
> HI there
> SUmmer can be rough for many families who have kids with special
needs. Do you know any other families with kids with autism/PDD? If
not, would you like me to pass your name along to a couple of other
families that I work with?
>
> What are your biggest issues right now? Do you have family/friends
around to give you some support-and breaks- during the tough days? Is
your child going to be going to early childhood in the fall?
>
> Ann Osterling
>
> ________________________________
>
> From: cuan-listserve@yahoogroups.com on behalf of mrsabe02
> Sent: Mon 7/31/06 1:20 PM
> To: cuan-listserve@yahoogroups.com
> Subject: [cuan-listserve] New to group
>
>
>
> Hi we are new to this group. We live in Paxton. We were told in may
> that our 3yrd old has PDD-NOS by Dr. Morton.
> We are having a rough summer and look forward to seeing what advice
> from others we can utilize to help our little boy in the best way
> possible.
> Looking foward to getting to know you all better.
> THANKS!
> Jessica & Tim Abrahamson
>

#31 From: "Ann Osterling" <aosterling@...>
Date: Mon Jul 31, 2006 7:09 pm
Subject: RE: New to group
annosterling
Offline Offline
Send Email Send Email
 
HI there
SUmmer can be rough for many families who have kids with special needs. Do you
know any other families with kids with autism/PDD? If not, would you like me to
pass your name along to a couple of other families that I work with?

What are your biggest issues right now? Do you have family/friends around to
give you some support-and breaks- during the tough days? Is your child going to
be going to early childhood in the fall?

Ann Osterling

________________________________

From: cuan-listserve@yahoogroups.com on behalf of mrsabe02
Sent: Mon 7/31/06 1:20 PM
To: cuan-listserve@yahoogroups.com
Subject: [cuan-listserve] New to group



Hi we are new to this group. We live in Paxton. We were told in may
that our 3yrd old has PDD-NOS by Dr. Morton.
We are having a rough summer and look forward to seeing what advice
from others we can utilize to help our little boy in the best way
possible.
Looking foward to getting to know you all better.
THANKS!
Jessica & Tim Abrahamson

#30 From: "mrsabe02" <mrsabe02@...>
Date: Mon Jul 31, 2006 6:20 pm
Subject: New to group
mrsabe02
Offline Offline
Send Email Send Email
 
Hi we are new to this group. We live in Paxton. We were told in may
that our 3yrd old has PDD-NOS by Dr. Morton.
We are having a rough summer and look forward to seeing what advice
from others we can utilize to help our little boy in the best way
possible.
Looking foward to getting to know you all better.
THANKS!
Jessica & Tim Abrahamson

#28 From: "rachelhetland" <rhetland@...>
Date: Mon Jun 12, 2006 6:22 pm
Subject: Need Flash Cards ???
rachelhetland
Offline Offline
Send Email Send Email
 
My name is Rachel Hetland.  In 1999 I started off my career as a
therapist for children with Autism for Wisconsin Early Autism
Project.  I worked for them for 5 years up until the birth of my son.
While working for WEAP I made all of my own flash cards for the
children that I worked with.  While doing so, I came up with the idea
to create a computer software program so that parents and
professionals could print off my photographic flash cards from their
own computer.  If you are interested in printing off your own
photographic flash cards, please check out my website at
www.hetlandmultimedia.com  By no means am I posting this to try to
push my product upon anyone.  I simply want to make parents and
professionals aware that this is out there and it's an option for you
if you are looking for one.  I am also available if anyone has any ABA
therapy related questions or is looking for programing suggestions.
Please feel free to contact me at pixit@...

Thanks,
Rachel Hetland

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