Do you have any information on Horse Therapy and
Autism and anywhere in the C-U area where that may
exist? this is for a 6 year old. Also is anyone
familiar with The Thoughtful House in Austin Texas?

Janet Scharlau

__________________________________________________________
Moody friends. Drama queens. Your life? Nope! - their life, your story. Play Sims Stories at Yahoo! Games.
http://sims.yahoo.com/

Do you have any information on Horse Therapy and
Autism and anywhere in the C-U area where that may
exist?  this is for a 6 year old. Also is anyone
familiar with The Thoughtful House in Austin Texas?

Janet Scharlau



________________________________________________________________________________\
____
Moody friends. Drama queens. Your life? Nope! - their life, your story. Play
Sims Stories at Yahoo! Games.
http://sims.yahoo.com/

Recent studies have shown that there is currently a worldwide autism
epidemic. In fact, more than 1.5 million people are affected in the
United States alone, with one in every 150 children diagnosed. Here
are some additional autism statistics:
Families with one autistic child have a 2 to 8 percent chance of
having another autistic child
Boys are three or four times more likely to be diagnosed with an ASD
In terms of developmental disabilities, autism is the third most
common (only mental retardation and cerebral palsy rank ahead of it)
Mental retardation is present in 75-80% of individuals with autism
Autism occurs more often than childhood cancer or cystic fibrosis
Autism is the fastest growing developmental disability. In the U.S.,
autism increased by 172% during the 1990s.
When autism is detected and treated early, costs associated with the
disorder can be reduced by 66%.
It's true that early detection and early treatment are the two key
factors in improving prognosis -- but too often parents get bogged
down in denial or confusion about this still mysterious disorder, and
are unable or unwilling to take the necessary steps.
The Essential Guide to Autism contains advice and information that
will help you make the right treatment decisions for your child.
http://autismfl.blogspot.com/#

I was wanting to find out if any one here has kidcare or familycare
insurance. And if so what do you think of it, do you like it? If you
do not have it, do you know of anyone who does or heard anything about
it?

Thanks, Jenn

hello

I am a single mother of two children.  Robert is 6 and a outgoing
child, and pretty normal.  Mikayla will be 4 in july and she has been
diagnosed with autism.  she was diagnosed when she was about 2yrs
old.  we have done the early intervention therapies, speech, OT, and
DT.  now she is in school at a ECE class half of the day.  she has
improved so much in the last 2 yrs.  she is counting, immetating
sounds, singing with her fav. shows and movies, showing affection,
making eye contact (though not a lot but to people she is familiar
with), she has been saying names of family members and people she
adores, and pretty much doing really well.  i started to worry about
her when she was abut 15 months old when she wasnt walikng yet and
her doctor said to wait another 3 months that maybe she was a late
walker.  then while waiting shse kinda stopped saying the words she
was already saying mama, dada, bubba, and baba.  she seemed like she
has entered her own world.  we thought of a controversal allergy to
milk called a a cerebral milk allergy.  it is really hard to explain
the bottom line is she wasnt seeing or thinking as clearly as she
should.  so we took her off dairy and she seemed to be brightening up
a bit.  she did all her therapies and accomplished most of her
goals.  we were still having trouble with speech and social, but her
comprensive skills were improving, still behind but improving
slowly.  so we put her into this ece class.  her class consists of
about 5 boys and 1 other girl. and 4 teachers.  she has her own aid
b/c she still doesnt speak consistantly enough to communicate on her
own.  she does use signs and gestures.  her tandrums, i call them
meltdowns, have decreased a bit duriing the day.  she will ahve good
days when she will have maybe 1 or 2 and thn there are bad days when
she will ahve one every 2 hours.  i have had really no one but her
drs to talk to about this, i tried to talk to my friends but they
dont really grasped how hard it is for me.  well know the summer is
coming and i am really scared on what will happen to her.  i mean she
will be used to the schedule at the school.  it is going to be hard
for her to work her way out of it and then have to work her way back
into it in the fall.  i guess in need some suggestions on what to do
about the summer,  maybe a day camp near by, or finding a ABA
therapist ro help or even going as far as hiring a special needs
nanny for her to help me maintain a schedule and help with other
therapies.  im at a lost here and not sure what to do.  i don't work
i go to school online at home, mainly because i cant find a childcare
provider that is equipped to take on an autistic child or if they are
they are full.  so i will take any help from any one just please hear
this cry for help. and help me.
thank you
Danielle

I feel so bad, I thought I was on this list.  I haven't been able to
attend any of the meetings this year because of my school schedule. I
work full time and go to school at night.

I have a son who is 6 years old with Autism. I have emailed some of
you before, which was wonderful help and I appreciate the support and
great information that they have helped me with.

I am curious of what therapy your child/children are in and if you
think it is working?  I was advised that my son should go to several
therapist (speech during the summer time, food, and
psychologist/behavioral).  Do you recommend any specific person in
Champaign?  I go through Carle.

I know I am full of questions, but here is my last one for now I
promise. :O)  I got my sons IEP and was told that he doesn't qualify
for summer school this year because when the school was evaluating
him from returning from break they didn't see any regression.  Is
this normal?  My son is advancing so much this year, I am afraid that
if he doesn't continue to receive this help all year around that he
might regress.

Welcome, Anita!

Hello.  My 14 year old son Nick, finally was diagnosed with Asperger's
this past November.  I say finally because even though he carried ADD,
OCD, anxiety/depression, and a mild word retrieval prob. diagnoses,
there was something missing.  He struggled at school both with
academic work, not tests, but homework and with the social aspect of
school.  It was a relief to get the diagnosis that answered all of our
questions of 'why?' His focus is gaming, anime/manga, and the
computer.  I have a 12 year old son also, but he doesn't have the
brain make-up that Nick has.

I'm looking forward to your ideas and input on topics.
Anita

My 2 and 1/2 yr old son was diagnosed with Apraxia this week. Anyone
have any info they can share on this? Or anyone have children with
this?
Jenn

Here is her phone number 217 304-7730, you can always call her and you
can tell her that I gave you her phone number. She worked with my
daughter for more then 1 year and half.

Grazia De Rocco


--- In cuan-listserve@yahoogroups.com, "amyreutter" <amyreutter@...>
wrote:
>
> I am not really sure if we are going to be able to make it to the
> meeting tonight however, I was wondering if anyone had information
on
> Rhonda Black and how to get ahold of her??????
> Thanks in advance.
> Amy
>

I am not really sure if we are going to be able to make it to the
meeting tonight however, I was wondering if anyone had information on
Rhonda Black and how to get ahold of her??????
Thanks in advance.
Amy

Well I found out that they aren't accepting any more people into tha
class.  However- for anyone else interested....  They said to register
NOW for the next class as it is already beginning to fill up!

Amy


--- In cuan-listserve@yahoogroups.com, Sheila Krein <sfkrein@...> wrote:
>
> Here it is.
>
> January 22                                                      Free
> Online Training at ISU (Non-Credit)
>
> Illinois State University, Normal-Bloomington is sponsoring a
> beginning level training for individuals who work and live with
> children and adolescents with autism/PDD. Open to parents and other
> family members, special and general educators, teacher assistants,
> speech/language pathologists, social workers psychologists, behavior
> specialists, occupational and physical therapists and
> administrators.  54 CPDUs or CEUs available.   Graduate level credit
> course also available.   Number of participants is limited. Contact:
> Mindy Bolin at 630-889-7398 or mbolin@...
>
> At 09:15 PM 2/5/2007, you wrote:
>
> >Hi everyone! someone at the support group meeting the other night
> >mentioned a course on Autism at ISU that is online. Anyone have info?
> >I got online at ISU, but didn't find anything. Thanks in advance... AMY
> >
> >
>

Hi everyone! someone at the support group meeting the other night
mentioned a course on Autism at ISU that is online. Anyone have info?
I got online at ISU, but didn't find anything. Thanks in advance... AMY

Hi everyone!  someone at the support group meeting the other night
mentioned a course on Autism at ISU that is online.  Anyone have info?
  I got online at ISU, but didn't find anything.  Thanks in advance...  AMY

There is a conference on Saturday, March 10 at The Chateau Hotel in
Bloomington (corner of Jumer Drive and North Veterans Parkway). It is
called 'New Dreams: Resources and Inspiration for
People with Disabilities and Their Families.' It is FREE--including
the noon meal! It will feature Karen Gaffney, a woman with Down
syndrome who has swum the English Channel and also attended college.
It also will feature Matt Cohen, a Chicago attorney who specializes
in special ed issues. Plus all kinds of information for disabled
individuals of any age and their families and teachers, including
resources, curriculum adaptations and modifications, visual
strategies, IEP Planning and Participation and much more.

The night before, Friday, March 9, is a dance and social from 7-9 in
the ballroom at The Chateau. This is open to anyone and no
registration is required--just come prepared to have a good time!

Details and registration can be found online at
http://www.wiu.edu/starnet/training/workshops/MAR10ND.php

Because StarNet is handling the registration, all their info about
priority to their clients, etc. comes up BUT this does not apply to
this conference--IT IS FIRST COME, FIRST SERVED for registration.
There are about 100 people signed up so far, and space for only
250--so, if people think they might be interested, they need to sign
up now! If they change their mind that week they can let StarNet know
and they can contact someone on the waiting list.

If you have questions I can try to find out the answer as the Down
syndrome group we belong to is one of the conference sponsors.

Barb

Amy,
I hope that you are getting support through your son's school on things like
Visual Schedules, Social Stories, etc. In addition, many of the kids with
Asperger Syndrome benefit from a good look at their sensory needs and ability to
self-regulate. If you were at the January CU Network meeting you heard Debi
Bliss, an OT in private practice in Champaign talk abou this topic.

The CU Autism Network has some great parents who have gone through many of the
behavioral issues you are talking about....

Ann

Ann Osterling
Speech-Language Pathologist
510 South Staley Road, Suite A
Champaign, IL 61822

________________________________

From: cuan-listserve@yahoogroups.com on behalf of luvmy2arabians
Sent: Sun 2/4/07 1:54 PM
To: cuan-listserve@yahoogroups.com
Subject: [cuan-listserve] Re: need advice on doctors



Hi there!

We are new to the group as well. My son was diagnosed by Dr.
Elghammer, however he will only treat if you follow his protocol. I
have brought up numerous different therapies/tests etc to help with my
4 yr old Asperger son. I get shut down each and every time. He
wants us to go on the GFCF diet, and I asked about a blood test to see
if the diet is actually needed. He told me he didn't think it could
be done. So, finding out from the support group - to call our
allergist... and guess what?! Next week we will have the blood test
done. Dr. Elghammer is a DAN! doc and ONLY will go with herbal
biomedical remedies. My son is having numerous outbursts at school
and has become violent. I asked about adderall or clonidine. NOPE.
Got nothing. Try this try that etc. So, we are going to go see Dr.
Morton. I tried the biomedical and it is not working. We have been
"trying" things since October and it has done nothing but stress us
out. I have been reading books and talking to other Aspie parents...
but Elghammer wants to follow protocol. Im not recommending against
him, but he's not for us....

Amy

--- In cuan-listserve@yahoogroups.com <mailto:cuan-listserve%40yahoogroups.com>
, "unzicker1971" <unzicker@...>
wrote:
>
> Hello! I am relatively new to this group but I have really learned
> from the postings. Our 13-year-old son was diagnosed with autism
> last June by Dr. Morton. I am extremely happy with his work. His
> initial interview was very throrough and he put the pieces together
> that others had previously missed. At the first meeting, he gave us
> a rough draft of his written report which really helped me because
> sometimes, after such a workup, I find it hard to remember anything
> but the basic information. We have two adolescent sons which see
> Dr. Morton regularly and they both LOVE him. He also is not afraid
> to try some medications that had never been considered for our sons
> and seems very knowledgable about some recent drug side-effects. My
> husband and I are both pleased with Dr. Morton's handling of our
> sons' cases.
> I hope this helps. Although this is my first post, I have been
> getting and reading daily posts from this group for several months
> now. Because we live near Champaign-Urbana and are too far away to
> participate in person, I have profited much from your discussions.
> I am impressed with the combined knowledge and caring of this
> group. Barb U.
>
>
> --- In cuan-listserve@yahoogroups.com
<mailto:cuan-listserve%40yahoogroups.com> , "jewettpr" <jewettpr@>
> wrote:
> >
> > Hello! I am new to the listserve. I had to work and was not able to
> > attend your meeting last night to ask this in person, so hope
> someone
> > will answer.
> >
> > Our 14 year old son has Down Syndrome and autism. He is also ADHD,
> for
> > which he takes Tenex--a very old blood pressure medicine with an
> > off-label use for ADHD. The last few months he has become very
> anxious
> > and very tense and seldom sleeps for more than 4 hours a night,
> which
> > means he is not up to coping with school the next day. Our doctor
> > feels we are getting out of his area of expertise and would be
> happy
> > to work with another doctor to monitor drug dosages, etc. but has
> no
> > clue what to try. We have gone to the Child Disabilities and
> > Development Clinic at the University of Iowa in the past (a
> wonderful
> > place!)but feel if we are going to add drugs into the mix we need
> > someone local.
> >
> > There were some early postings on Dr. Morton, but nothing after the
> > initial ones. Does anyone go to him? Developmental pediatrician we
> > have seen in the past diagnosed but never treated.
> >
> > I have heard Dr. Elghammer in Danville treats kids with autism--has
> > anyone gone to him?
> >
> > Others you'd recommend?
> >
> > Thanks!
> > Barb Jewett
> >
>

Hi there!

We are new to the group as well.  My son was diagnosed by Dr.
Elghammer, however he will only treat if you follow his protocol.  I
have brought up numerous different therapies/tests etc to help with my
4 yr old Asperger son.   I get shut down each and every time.  He
wants us to go on the GFCF diet, and I asked about a blood test to see
if the diet is actually needed.  He told me he didn't think it could
be done.  So, finding out from the support group - to call our
allergist... and guess what?!  Next week we will have the blood test
done.   Dr. Elghammer is a DAN! doc and ONLY will go with herbal
biomedical remedies.  My son is having numerous outbursts at school
and has become violent.  I asked about adderall or clonidine.  NOPE.
Got nothing.  Try this try that etc.  So, we are going to go see Dr.
Morton.   I tried the biomedical and it is not working.   We have been
"trying" things since October and it has done nothing but stress us
out.   I have been reading books and talking to other Aspie parents...
but Elghammer wants to follow protocol.   Im not recommending against
him, but he's not for us....

Amy

--- In cuan-listserve@yahoogroups.com, "unzicker1971" <unzicker@...>
wrote:
>
> Hello!  I am relatively new to this group but I have really learned
> from the postings.  Our 13-year-old son was diagnosed with autism
> last June by Dr. Morton.  I am extremely happy with his work.  His
> initial interview was very throrough and he put the pieces together
> that others had previously missed.  At the first meeting, he gave us
> a rough draft of his written report which really helped me because
> sometimes, after such a workup, I find it hard to remember anything
> but the basic information.  We have two adolescent sons which see
> Dr. Morton regularly and they both LOVE him. He also is not afraid
> to try some medications that had never been considered for our sons
> and seems very knowledgable about some recent drug side-effects. My
> husband and I are both pleased with Dr. Morton's handling of our
> sons' cases.
>    I hope this helps.  Although this is my first post, I have been
> getting and reading daily posts from this group for several months
> now.  Because we live near Champaign-Urbana and are too far away to
> participate in person, I have profited much from your discussions.
> I am impressed with the combined knowledge and caring of this
> group.               Barb U.
>
>
> --- In cuan-listserve@yahoogroups.com, "jewettpr" <jewettpr@>
> wrote:
> >
> > Hello! I am new to the listserve. I had to work and was not able to
> > attend your meeting last night to ask this in person, so hope
> someone
> > will answer.
> >
> > Our 14 year old son has Down Syndrome and autism. He is also ADHD,
> for
> > which he takes Tenex--a very old blood pressure medicine with an
> > off-label use for ADHD. The last few months he has become very
> anxious
> > and very tense and seldom sleeps for more than 4 hours a night,
> which
> > means he is not up to coping with school the next day. Our doctor
> > feels we are getting out of his area of expertise and would be
> happy
> > to work with another doctor to monitor drug dosages, etc. but has
> no
> > clue what to try. We have gone to the Child Disabilities and
> > Development Clinic at the University of Iowa in the past (a
> wonderful
> > place!)but feel if we are going to add drugs into the mix we need
> > someone local.
> >
> > There were some early postings on Dr. Morton, but nothing after the
> > initial ones. Does anyone go to him? Developmental pediatrician we
> > have seen in the past diagnosed but never treated.
> >
> > I have heard Dr. Elghammer in Danville treats kids with autism--has
> > anyone gone to him?
> >
> > Others you'd recommend?
> >
> > Thanks!
> > Barb Jewett
> >
>

Hello!  I am relatively new to this group but I have really learned
from the postings.  Our 13-year-old son was diagnosed with autism
last June by Dr. Morton.  I am extremely happy with his work.  His
initial interview was very throrough and he put the pieces together
that others had previously missed.  At the first meeting, he gave us
a rough draft of his written report which really helped me because
sometimes, after such a workup, I find it hard to remember anything
but the basic information.  We have two adolescent sons which see
Dr. Morton regularly and they both LOVE him. He also is not afraid
to try some medications that had never been considered for our sons
and seems very knowledgable about some recent drug side-effects. My
husband and I are both pleased with Dr. Morton's handling of our
sons' cases.
    I hope this helps.  Although this is my first post, I have been
getting and reading daily posts from this group for several months
now.  Because we live near Champaign-Urbana and are too far away to
participate in person, I have profited much from your discussions.
I am impressed with the combined knowledge and caring of this
group.               Barb U.


--- In cuan-listserve@yahoogroups.com, "jewettpr" <jewettpr@...>
wrote:
>
> Hello! I am new to the listserve. I had to work and was not able to
> attend your meeting last night to ask this in person, so hope
someone
> will answer.
>
> Our 14 year old son has Down Syndrome and autism. He is also ADHD,
for
> which he takes Tenex--a very old blood pressure medicine with an
> off-label use for ADHD. The last few months he has become very
anxious
> and very tense and seldom sleeps for more than 4 hours a night,
which
> means he is not up to coping with school the next day. Our doctor
> feels we are getting out of his area of expertise and would be
happy
> to work with another doctor to monitor drug dosages, etc. but has
no
> clue what to try. We have gone to the Child Disabilities and
> Development Clinic at the University of Iowa in the past (a
wonderful
> place!)but feel if we are going to add drugs into the mix we need
> someone local.
>
> There were some early postings on Dr. Morton, but nothing after the
> initial ones. Does anyone go to him? Developmental pediatrician we
> have seen in the past diagnosed but never treated.
>
> I have heard Dr. Elghammer in Danville treats kids with autism--has
> anyone gone to him?
>
> Others you'd recommend?
>
> Thanks!
> Barb Jewett
>

I would highly recommend Dr. Morton as well.  He is a very thorough
and caring doctor.  He has been at Carle a little over a year now.  I
have taken my 5 year old son who has autism to him.  In order to make
an appointment with him, he requests that you call Carle Pediatrics
(383 3100) and they will mail you some forms to fill out before
setting up the appointment.  Some of the forms are for parents to
complete, others are for teachers.  I believe that he can schedule
most patients within a month of receiving the paperwork at this point.

Karen Eisenmenger, MD

--- In cuan-listserve@yahoogroups.com, "Ann Osterling"
<aosterling@...> wrote:
>
> Hello Barb,
> I am a professional (speech-language pathologist) and not the
parent of a child with autism or Down Syndrome. However, I have met
Dr. Morton and had the chance to work with him with a number of
children and family in my practice. I think we are very lucky to have
here in this community. Interestingly, he has been prescribing Tenex
for a number of my clients--which hadn't been happening much around
here. Dr. Morton does an intensive interview and work-up and the
families I know have been quite pleased with his report and
recommendations. I have referred many of my patients to him. He is
board certified in developmental pediatrics (and that is hard to
find!)
>
> Good luck
>
> Ann
>
> Ann Osterling
> Speech-Language Pathologist
> 510 South Staley Road, Suite A
> Champaign, IL 61822
>
> ________________________________
>
> From: cuan-listserve@yahoogroups.com on behalf of jewettpr
> Sent: Fri 2/2/07 4:38 PM
> To: cuan-listserve@yahoogroups.com
> Subject: [cuan-listserve] need advice on doctors
>
>
>
> Hello! I am new to the listserve. I had to work and was not able to
> attend your meeting last night to ask this in person, so hope
someone
> will answer.
>
> Our 14 year old son has Down Syndrome and autism. He is also ADHD,
for
> which he takes Tenex--a very old blood pressure medicine with an
> off-label use for ADHD. The last few months he has become very
anxious
> and very tense and seldom sleeps for more than 4 hours a night,
which
> means he is not up to coping with school the next day. Our doctor
> feels we are getting out of his area of expertise and would be happy
> to work with another doctor to monitor drug dosages, etc. but has no
> clue what to try. We have gone to the Child Disabilities and
> Development Clinic at the University of Iowa in the past (a
wonderful
> place!)but feel if we are going to add drugs into the mix we need
> someone local.
>
> There were some early postings on Dr. Morton, but nothing after the
> initial ones. Does anyone go to him? Developmental pediatrician we
> have seen in the past diagnosed but never treated.
>
> I have heard Dr. Elghammer in Danville treats kids with autism--has
> anyone gone to him?
>
> Others you'd recommend?
>
> Thanks!
> Barb Jewett
>

Hello Barb,
I am a professional (speech-language pathologist) and not the parent of a child
with autism or Down Syndrome. However, I have met Dr. Morton and had the chance
to work with him with a number of children and family in my practice. I think we
are very lucky to have here in this community. Interestingly, he has been
prescribing Tenex for a number of my clients--which hadn't been happening much
around here. Dr. Morton does an intensive interview and work-up and the families
I know have been quite pleased with his report and recommendations. I have
referred many of my patients to him. He is board certified in developmental
pediatrics (and that is hard to find!)

Good luck

Ann

Ann Osterling
Speech-Language Pathologist
510 South Staley Road, Suite A
Champaign, IL 61822

________________________________

From: cuan-listserve@yahoogroups.com on behalf of jewettpr
Sent: Fri 2/2/07 4:38 PM
To: cuan-listserve@yahoogroups.com
Subject: [cuan-listserve] need advice on doctors



Hello! I am new to the listserve. I had to work and was not able to
attend your meeting last night to ask this in person, so hope someone
will answer.

Our 14 year old son has Down Syndrome and autism. He is also ADHD, for
which he takes Tenex--a very old blood pressure medicine with an
off-label use for ADHD. The last few months he has become very anxious
and very tense and seldom sleeps for more than 4 hours a night, which
means he is not up to coping with school the next day. Our doctor
feels we are getting out of his area of expertise and would be happy
to work with another doctor to monitor drug dosages, etc. but has no
clue what to try. We have gone to the Child Disabilities and
Development Clinic at the University of Iowa in the past (a wonderful
place!)but feel if we are going to add drugs into the mix we need
someone local.

There were some early postings on Dr. Morton, but nothing after the
initial ones. Does anyone go to him? Developmental pediatrician we
have seen in the past diagnosed but never treated.

I have heard Dr. Elghammer in Danville treats kids with autism--has
anyone gone to him?

Others you'd recommend?

Thanks!
Barb Jewett

Hello! I am new to the listserve. I had to work and was not able to
attend your meeting last night to ask this in person, so hope someone
will answer.

Our 14 year old son has Down Syndrome and autism. He is also ADHD, for
which he takes Tenex--a very old blood pressure medicine with an
off-label use for ADHD. The last few months he has become very anxious
and very tense and seldom sleeps for more than 4 hours a night, which
means he is not up to coping with school the next day. Our doctor
feels we are getting out of his area of expertise and would be happy
to work with another doctor to monitor drug dosages, etc. but has no
clue what to try. We have gone to the Child Disabilities and
Development Clinic at the University of Iowa in the past (a wonderful
place!)but feel if we are going to add drugs into the mix we need
someone local.

There were some early postings on Dr. Morton, but nothing after the
initial ones. Does anyone go to him? Developmental pediatrician we
have seen in the past diagnosed but never treated.

I have heard Dr. Elghammer in Danville treats kids with autism--has
anyone gone to him?

Others you'd recommend?

Thanks!
Barb Jewett

Sheila,
I was planning on ordering it and then.....actually, I have a family who did order it I believe-so, I 'll check with them.
Would this be something that would be appropriate for the TAP:CC to order and have available? It does sound good

Ann

Ann Osterling
Speech-Language Pathologist
510 South Staley Road, Suite A
Champaign, IL 61822

________________________________

From: cuan-listserve@yahoogroups.com on behalf of Sheila Krein
Sent: Fri 12/29/06 12:51 PM
To: cuan-listserve@yahoogroups.com
Subject: Re: [cuan-listserve] Video Social Stories from Carol Gray and Mark Shelley

Has anyone used the Video Social Stories that Karl mentioned in his Aug. 14 post? I read about these. It sounds wonderful, but I've yet to talk with anyone who has used them. Sheila

At 03:45 PM 8/14/2006, you wrote:

Announcing Video Social Stories

From: Carol Gray, Mark Shelley, & the Special Minds Foundation

View video from Carol Gray & Mark Shelley: www.dttrainer.com/smovvid.php < http://www.dttrainer.com/smovvid.php>



Hi,

This email is one of my few posts per year and is about a new tool to help teach our kids with autism and Aspergers. I get frequent requests for tools to help our kids with social skills so here is a gem.



Imagine combining Carol Gray's social stories with the power of video for our visual learners. That is what has happened with the collaboration between Carol Gray, Mark Shelley, and the Special Minds Foundation. Volume 1 is the first in the planned series and covers basic social concepts & skills at school. Future volumes will address a broad range of topics and target young children to adults. The foundation has raised donations to help produce these materials so that the cost to the user can be much lower than otherwise possible for the product.

The Social Concepts & Skills volume will not only be valuable for teachers, but also for parents helping prepare their children for school situations. Additionally, some of the situations are issues for both home and school. The product was designed for children with Aspergers and others on the autism spectrum, however it will also benefit any child with limited social skills.

Storymovies, Volume 1, targets students developmentally 8-12 years old and includes 25 stories based on 9 movies. There are 2 versions: Standard Edition & Professional Edition. Both versions include the main color version DVD of the 25 stories and a user's guide. The Professional version includes a black & white DVD version that is used for children distracted by color; a raw footage DVD that is useful for additional teaching and testing purposes; and a CD with printable pictures and related activities for generalization, practice, & review.

Mark Shelley is a parent of a child with Aspergers, which is the reason for his efforts toward helping children learn social skills. Mark and I started talking about digital video based social stories about 4 years ago. Through much of his effort and sacrifice he now has this first important volume with more on the way. The collaboration with Carol, getting donors to help fund the development, and him taking significant personal risk have all been critical in getting to this point. I want to help get this in the hands of as many teachers and parents as possible by substantially cutting our margins and offering this tool at a 33% discount off of list. The sales of the current volume will help fund the continued expansion of the series. Please spread the word about this important work!



For more information visit: www.dttrainer.com/storymovies.html < http://www.dttrainer.com/storymovies.html> .



Karl Smith

- father of a son with autism

- founder of Accelerations Educational Software (making a difference for our kids)

Sheila,
I was planning on ordering it and then.....actually, I have a family who did
order it I believe-so, I 'll check with them.
Would this be something that would be appropriate for the TAP:CC to order and
have available?  It does sound good

Ann

Ann Osterling
Speech-Language Pathologist
510 South Staley Road, Suite A
Champaign, IL 61822

________________________________

From: cuan-listserve@yahoogroups.com on behalf of Sheila Krein
Sent: Fri 12/29/06 12:51 PM
To: cuan-listserve@yahoogroups.com
Subject: Re: [cuan-listserve] Video Social Stories from Carol Gray and Mark
Shelley



Has anyone used the Video Social Stories that Karl mentioned in his Aug. 14
post?  I read about these.  It sounds wonderful, but I've yet to talk with
anyone who has used them.  Sheila

At 03:45 PM 8/14/2006, you wrote:



	 Announcing Video Social Stories

	 From: Carol Gray, Mark Shelley, & the Special Minds Foundation

	 View video from Carol Gray & Mark Shelley: www.dttrainer.com/smovvid.php
<http://www.dttrainer.com/smovvid.php>



	 Hi,

	 This email is one of my few posts per year and is about a new tool to help
teach our kids with autism and Aspergers.  I get frequent requests for tools to
help our kids with social skills so here is a gem.



	 Imagine combining Carol Gray's social stories with the power of video for our
visual learners.  That is what has happened with the collaboration between Carol
Gray, Mark Shelley, and the Special Minds Foundation.  Volume 1 is the first in
the planned series and covers basic social concepts & skills at school.  Future
volumes will address a broad range of topics and target young children to
adults.  The foundation has raised donations to help produce these materials so
that the cost to the user can be much lower than otherwise possible for the
product.

	 The Social Concepts & Skills volume will not only be valuable for teachers, but
also for parents helping prepare their children for school situations. 
Additionally, some of the situations are issues for both home and school.  The
product was designed for children with Aspergers and others on the autism
spectrum, however it will also benefit any child with limited social skills.

	 Storymovies, Volume 1, targets students developmentally 8-12 years old and
includes 25 stories based on 9 movies.  There are 2 versions: Standard Edition &
Professional Edition.  Both versions include the main color version DVD of the
25 stories and a user's guide.  The Professional version includes a black &
white DVD version that is used for children distracted by color; a raw footage
DVD that is useful for additional teaching and testing purposes; and a CD with
printable pictures and related activities for generalization, practice, &
review.

	 Mark Shelley is a parent of a child with Aspergers, which is the reason for his
efforts toward helping children learn social skills.  Mark and I started talking
about digital video based social stories about 4 years ago.  Through much of his
effort and sacrifice he now has this first important volume with more on the
way.  The collaboration with Carol, getting donors to help fund the development,
and him taking significant personal risk have all been critical in getting to
this point.  I want to help get this in the hands of as many teachers and
parents as possible by substantially cutting our margins and offering this tool
at a 33% discount off of list.  The sales of the current volume will help fund
the continued expansion of the series.   Please spread the word about this
important work!



	 For more information visit: www.dttrainer.com/storymovies.html
<http://www.dttrainer.com/storymovies.html> .



	 Karl Smith

	 - father of a son with autism

	 - founder of Accelerations Educational Software (making a difference for our
kids)

Announcing Video Social Stories

From: Carol Gray, Mark Shelley, & the Special Minds Foundation

View video from Carol Gray & Mark Shelley: www.dttrainer.com/smovvid.php 

 

Hi,

This email is one of my few posts per year and is about a new tool to help teach our kids with autism and Aspergers.  I get frequent requests for tools to help our kids with social skills so here is a gem.

 

Imagine combining Carol Gray's social stories with the power of video for our visual learners.  That is what has happened with the collaboration between Carol Gray, Mark Shelley, and the Special Minds Foundation.  Volume 1 is the first in the planned series and covers basic social concepts & skills at school.  Future volumes will address a broad range of topics and target young children to adults.  The foundation has raised donations to help produce these materials so that the cost to the user can be much lower than otherwise possible for the product.   

The Social Concepts & Skills volume will not only be valuable for teachers, but also for parents helping prepare their children for school situations.  Additionally, some of the situations are issues for both home and school.  The product was designed for children with Aspergers and others on the autism spectrum, however it will also benefit any child with limited social skills.

Storymovies, Volume 1, targets students developmentally 8-12 years old and includes 25 stories based on 9 movies.  There are 2 versions: Standard Edition & Professional Edition.  Both versions include the main color version DVD of the 25 stories and a user's guide.  The Professional version includes a black & white DVD version that is used for children distracted by color; a raw footage DVD that is useful for additional teaching and testing purposes; and a CD with printable pictures and related activities for generalization, practice, & review.

Mark Shelley is a parent of a child with Aspergers, which is the reason for his efforts toward helping children learn social skills.  Mark and I started talking about digital video based social stories about 4 years ago.  Through much of his effort and sacrifice he now has this first important volume with more on the way.  The collaboration with Carol, getting donors to help fund the development, and him taking significant personal risk have all been critical in getting to this point.  I want to help get this in the hands of as many teachers and parents as possible by substantially cutting our margins and offering this tool at a 33% discount off of list.  The sales of the current volume will help fund the continued expansion of the series.   Please spread the word about this important work!

 

For more information visit: www.dttrainer.com/storymovies.html.

 

Karl Smith

- father of a son with autism

- founder of Accelerations Educational Software (making a difference for our kids)

I am looking for a visual timer with audio.  We have a good visual
timer (the time is in red) but with no bell or buzz when all the red's
gone.  Or, I have a regular kitchen timer with a buzzer with poor
visual.  I'd like the best of both worlds!  Any suggestions?

Thanks!  Nicole, SLP

from member Debbie Sage:

Hello,

I have a friend who has a child who has Autism and is doing a
research on Autism.  Would anyone mind helping her out and send her
information?  I have copied and pasted the note that she had sent
me.  Thank you for your time.

Please reply to jmonie_1@..., her name is Janoah and her son
is Marshawn.

*******************************************************************

Hi all!

Its thesis time for me, and due to a last minute change, part of my
topic is now focusing on autism!

For those who don't know, I am a journalism graduate student. For my
thesis, I am focusing on special needs of children from somewhat
different angles...

I am writing two seperate articles...one started out being about
drug treatment/therapy in children with depression...(definitely a
special need in youth in my eyes)... but I am now expanding on that
by looking into drug treatment for children with autism and adhd as
well. I want to talk about the safety of the medicines that are
prescibed, since there is often controversy about the effects that
some of these meds have on children. As some know, the FDA has said
that some of these meds cause an increased risk of suicidal thoughts
or behaviors, while other studies contradict this. I want to know
how parents(teachers, caretakers, etc) feel about it? Do the
medicines have more benefits than risks? How effective are drugs in
treating these conditions? And what do the "experts" have to say?

In the second article, I will be discussing autism - advocacy, the
Combating Autism Act, looking into the kinds of research that are
being done, and also biomedical, diet, vitamin, and/or alternative
therapies (such as chelation) etc.

I have a TON of factual information, (although if you want to send
that I welcome it...it may be something I haven't seen before!) So
basically I am looking for personal reflections on how autism has
affected parents, caretakers, etc in any of these areas. Also I am
particularly interested in anyone whose child has/is taken
RISPERDAL, or anyone who has tried CHELATION therapy. Also, if GFCF
or vitamin therapy has worked for you or you have tried it, I would
love your reflections on that.

Just a note, that if you decide to help, your first and last name,
as well as location (city, state) would be noted, as well as the
child's first name. Also for my source list I would need contact
info such as an email address or phone number.

So if anyone wants to share, I would be more than happy to hear your
stories! And also, I will be sharing part of my own story in a
publication called Trumpet Magazine in January 2007, so I will be
sure to keep you all updated!

Thanks for taking the time out to read this! If you live in the
midwest, that would be even greater! The closer to Chicago, the more
local my story angle will be...but people who have loved ones with
special needs are a community of our own, so I am happy to have
information from anyone who wants to share. I am looking to submit a
complete draft by Monday or Tuesday, which means I will be reading
and writing a lot between now and then!!! (As much as Marshawn lets
me!!!) Lol! But I look forward to any feedback, and I hope everyone
has a great weekend!

Thanks!

-Janoah

__________________________________________________

My son is incredibly anxious in addition to having ASD and ADHD.  I
have littel confidence in the MD that we have been working with for the
past 5 yrs.  As Mike gets older, the anxiety is getting worse due to
all of the peer issues (and especially bullies on the playground.  Any
suggestions for MD's or therapists in the area who are good with these
issues?  Thanks.

Doug

Toniya,
I know how you feel.  My 10 yr old son was diagnosed with adhd, asd,
and generalized anxiety disorder when he was 5.  He has responded
well to the meds that he is on, but has always had a very difficult
time making friends.  He is very loud and just doesn't get how to
interact with other kids very well.  I had him in Cub Scouts for 2
yrs, and he had a reasonable amount of success there, but I had to
attend with him, and just recently allowed him to quit the group- he
told me that he didn't like it because it was boring and the other
kids were mean to him.  We have had success in the friend area in 2
other arenas.  One has been in allowing him to play with younger
kids.  We have friends from church with a 6 and 4 yr old, and they
just love Mike (my son), and he is great with them.  The other area
is in getting what Autism expert Tony Attwood calls a "rent a
friend"... the 10 yr old son of another acquaintance from church who
knows Mike and can tolerate his idiosyncracies without becoming mean
and nasty to him (that kills me when other kids pick on my son).  We
have talked to our school social worker about having another asd boy
come over for play dates, but haven't done this yet.  Good luck to
you and God bless.

Doug


--- In cuan-listserve@yahoogroups.com, Sheila Krein <sfkrein@...>
wrote:
>
> Has anyone from our group responded to you,
> Toniya?  If no one has, I will ask for
> suggestions.  Making friends is one of the
> hardest things for children with autism.  The
> Autism Program out of Springfield has social
> skills workshops, and I hope we can get some going in this ares.
Sheila
>
> At 11:28 PM 8/4/2006, you wrote:
>
> >Hi, my name is Toniya and I have a 8yr old son who has Autism and
who
> >has seizures. My son was diagnosed when he was 3 and we have been
> >threw many of challenges One cfhallenge he is facing now is making
> >friends. He really tries hard and would like to have a friend but
> >some of the other kids think his strange. He plays well by himself
> >but I really would like him to socialize with other children. I
have
> >him enrolled in a daycare program but he always end up playing by
> >himself. If anyone have any suggestions I would appreciate it.
Thanks.
> >
> >
>