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| Fw: Stop Health Care Reform that Will Obstruct Your Effort to Help Y |
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----- Forwarded Message ----
From: Marci Terry <marcellaterry@...>
To: Amber Gentry <agentry115@...>; Amy Bolek <cajabolek@...>; Amy Gibbs <amygibbs612@...>; Amy Harpenau <kaharpenau@...>; Ana Krawec <anakrawec@...>; Angie Allen <angiecundiff@...>; Berly Tillman <tillmaneyecare@...>; Beth Metcalf <b.metcalf@...>; Brenda Lamb <b.lamb2008@...>; Cindy King <cincin_bt@...>;
Christy Scherrer <scdh04@...>; Dana Spencer <dspence2us@...>; dawn wheeler <tanddwheeler@...>; Deena <deena.w@...>; Diane White <whitehome5@...>; Diane Whitwell <dwhitwell65@...>; Ed Webb <ewebb_144@...>; Elen Morell <elen_morell@...>
Sent: Tuesday, February 17, 2009 1:14:15 PM
Subject: FW: Stop Health Care Reform that Will Obstruct Your Effort to Help Your Child. We Are Proposing Alternative Legislation. Send a Message.
Note: forwarded message attached. --Forwarded Message Attachment-- Subject: Stop Health Care Reform that Will Obstruct Your Effort to Help Your Child. We Are Proposing Alternative Legislation. Send a Message. To: careofindiana@... From: info@... Date: Tue, 17 Feb 2009 06:06:15 -0500
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| Stand Up for Appropriate Health Care Legislation for Children With Autism |
Take Action! |
| Tell Your Representatives that You Want Better Choices For Autism Health Care – Send a Message! |
| |
Autism Action Alert
from Generation Rescue and AAN
The bill has problems and the true stakeholders have an alternative ,,,,
Senator Dick Durbin of Illinois is poised to introduce autism legislation, incorporating what public health lobbyists call the "Medical Home Model." This legislation would grant treatment authority for children with autism to private organizations.
We know that Senator Durbin and others care deeply about the well-being of our children and the needs of our community. We thank Senator Durbin for his efforts. The proposed draft of his bill incorporating the "Medical Home Model" would restrict parents’ health care choices. The draft bill would interfere with getting appropriate medical care and treatment for our children while providing a financial windfall for special interest groups.
Click here to download and read Senator Durbin’s "Autism Treatment Acceleration Act", the "ATAA"
Objectionable Provisions of the Medical Home Model (MHM) Contained in the Draft Legislation:
• Parents do not have final say in their children's care; the proposed legislation describes a “physician-directed” model.
•The Medical Home Model would create health care monopolies that would restrict or deny families the right to choose a medical provider most appropriate for their child(ren).
•The Medical Home Model places undue focus on mandatory vaccination protocols determined by the AAP as the main mode of preventative health, claiming that the benefits far outweigh the risks -see: http://tinyurl.com/bt8zzg.
•There is no evidence that the Medical Home Model provides a significant benefit for improving treatment for autism or increasing access to appropriate care.
•The Medical Home Model restricts access to the most promising treatments as reported by parents and their treating physicians.
•The Medical Home Model grants inappropriate financial incentives to providers for reducing the cost of care. Such incentives operate to limit and reduce medically necessary care for persons with autism. The incentives will promote under-diagnosing of other medical conditions concomitant with autism. Current draft language and definitions are crafted to a psychiatric and education approach to autism only, and not a phsyiological understanding of a child's condition and medical needs..
Additional Objectionable Language within
ATAA:
• Autism is defined only as behavioral and learning disorder rather than as a neurobiological disorder involving the whole body, thereby limiting treatment
options
and necessities.
•No mention of necessary treatments, diagnostic tools, or research initiatives for the underlying conditions and multiple diagnoses prevalent in many individuals with autism.
In contrast to Senator Durbin’s proposed legislation, we are supporting “The Autism Comprehensive Treatment Acceleration Act” ("ACTAA"), a “child-first” bill which focuses on treatment and necessary research initiatives that do not impede on parent centered decision making, and would provide the appropriate level of insurance coverage our children require based on their individual medical needs.
Our Proposed Legislation:
*Includes findings consistent with most up to date science, emphasizing essential areas of research
*Provides stakeholder input into research and policy initiatives through the Combating Autism Act.
*Research initiatives that help to identify sub-cohorts, biomarkers, environmental and genetic factors through clinical investigations.
*Requires the establishment of continuing medical education in treating children with ASD to further quality of care with up to date scientific findings.
Requires evaluation and treatments for other medical conditions occurring in autism such as GI, immune and metabolic conditions.
Requires insurance coverage for diagnostic, medical and therapeutic services such as speech, OT, PT, nutriceuticals and ABA in addition to other medically necessary services when prescribed by treating physician.
We’ve been in touch with Senator Durbin’s office about our concerns, but we now need your help to communicate that his current draft does not meet the needs of our
children. FIGHT FOR THE CHANGE OUR CHILDREN NEED!!! If you want to continue to have the freedom of choosing the treatment(s) that you know is appropriate for your child, please help
in
contacting the following individuals (Click TAKE ACTION to go to our web site use our messaging system. It takes two minutes.):
Senator Durbin: 202.224.2152
Chief of Staff: Pat Souders -- pat_souders@...
Christina Angarola -- christina_angarola@...
Senator Reid: 202.224.3542
President Barack Obama: 202.456.1414
Ask for Domestic Policy Council
In addition, please contact your Senator and Representative here:
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-----Inline Message Follows-----
|
|
| Stand Up for Appropriate Health Care Legislation for Children With Autism |
Take Action! |
| Tell Your Representatives that You Want Better Choices For Autism Health Care – Send a Message! |
| |
|
Autism Action Alert
from Generation Rescue and AAN
The bill has problems and the true stakeholders have an alternative ,,,,
Senator Dick Durbin of Illinois is poised to introduce autism legislation, incorporating what public health lobbyists call the "Medical Home Model.." This legislation would grant treatment authority for children with autism to private organizations.
We know that Senator Durbin and others care deeply about the well-being of our children and the needs of our community. We thank Senator Durbin for his efforts. The proposed draft of his bill incorporating the "Medical Home Model" would restrict parents’ health care choices. The draft bill would interfere with getting appropriate medical care and treatment for our children while providing a financial windfall for special interest groups.
Click here to download and read Senator Durbin’s "Autism Treatment Acceleration Act", the "ATAA"
Objectionable Provisions of the Medical Home Model (MHM) Contained in the Draft Legislation:
• Parents do not have final say in their children's care; the proposed legislation describes a “physician-directed” model.
•The Medical Home Model would create health care monopolies that would restrict or deny families the right to choose a medical provider most appropriate for their child(ren).
•The Medical Home Model places undue focus on mandatory vaccination protocols determined by the AAP as the main mode of preventative health, claiming that the benefits far outweigh the risks -see: http://tinyurl.com/bt8zzg.
•There is no evidence that the Medical Home Model provides a significant benefit for improving treatment for autism or increasing access to appropriate care.
•The Medical Home Model restricts access to the most promising treatments as reported by parents and their treating physicians.
•The Medical Home Model grants inappropriate financial incentives to providers for reducing the cost of care. Such incentives operate to limit and reduce medically necessary care for persons with autism. The incentives will promote under-diagnosing of other medical conditions concomitant with autism. Current draft language and definitions are crafted to a psychiatric and education approach to autism only, and not a phsyiological understanding of a child's condition and medical needs.
Additional Objectionable Language within
ATAA:
• Autism is defined only as behavioral and learning disorder rather than as a neurobiological disorder involving the whole body, thereby limiting treatment options
and necessities.
•No mention of necessary treatments, diagnostic tools, or research initiatives for the underlying conditions and multiple diagnoses prevalent in many individuals with autism.
In contrast to Senator Durbin’s proposed legislation, we are supporting “The Autism Comprehensive Treatment Acceleration Act” ("ACTAA"), a “child-first” bill which focuses on treatment and necessary research initiatives that do not impede on parent centered decision making, and would provide the appropriate level of insurance coverage our children require based on their individual medical needs.
Our Proposed Legislation:
*Includes findings consistent with most up to date science, emphasizing essential areas of research
*Provides stakeholder input into research and policy initiatives through the Combating Autism Act.
*Research initiatives that help to identify sub-cohorts, biomarkers, environmental and genetic factors through clinical investigations.
*Requires the establishment of continuing medical education in treating children with ASD to further quality of care with up to date scientific findings.
Requires evaluation and treatments for other medical conditions occurring in autism such as GI, immune and metabolic conditions.
Requires insurance coverage for diagnostic, medical and therapeutic services such as speech, OT, PT, nutriceuticals and ABA in addition to other medically necessary services when prescribed by treating physician.
We’ve been in touch with Senator Durbin’s office about our concerns, but we now need your help to communicate that his current draft does not meet the needs of our
children. FIGHT FOR THE CHANGE OUR CHILDREN NEED!!! If you want to continue to have the freedom of choosing the treatment(s) that you know is appropriate for your child, please help in
contacting the following individuals (Click TAKE ACTION to go to our web site use our messaging system. It takes two minutes.):
Senator Durbin: 202.224.2152
Chief of Staff: Pat Souders -- pat_souders@...
Christina Angarola -- christina_angarola@...
Senator Reid: 202.224.3542
President Barack Obama: 202.456.1414
Ask for Domestic Policy Council
In addition, please contact your Senator and Representative here:
|
|
| |
|
| If you no longer wish to receive e-mail from us, you can unsubscribe here.
|
-----Inline Attachment Follows-----
|
|
| Stand Up for Appropriate Health Care Legislation for Children With Autism |
Take Action! |
| Tell Your Representatives that You Want Better Choices For Autism Health Care – Send a Message! |
| |
|
Autism Action Alert
from Generation Rescue and AAN
The bill has problems and the true stakeholders have an alternative ,,,,
Senator Dick Durbin of Illinois is poised to introduce autism legislation, incorporating what public health lobbyists call the "Medical Home Model.." This legislation would grant treatment authority for children with autism to private organizations.
We know that Senator Durbin and others care deeply about the well-being of our children and the needs of our community. We thank Senator Durbin for his efforts. The proposed draft of his bill incorporating the "Medical Home Model" would restrict parents’ health care choices. The draft bill would interfere with getting appropriate medical care and treatment for our children while providing a financial windfall for special interest groups.
Click here to download and read Senator Durbin’s "Autism Treatment Acceleration Act", the "ATAA"
Objectionable Provisions of the Medical Home Model (MHM) Contained in the Draft Legislation:
• Parents do not have final say in their children's care; the proposed legislation describes a “physician-directed” model.
•The Medical Home Model would create health care monopolies that would restrict or deny families the right to choose a medical provider most appropriate for their child(ren).
•The Medical Home Model places undue focus on mandatory vaccination protocols determined by the AAP as the main mode of preventative health, claiming that the benefits far outweigh the risks -see: http://tinyurl.com/bt8zzg.
•There is no evidence that the Medical Home Model provides a significant benefit for improving treatment for autism or increasing access to appropriate care.
•The Medical Home Model restricts access to the most promising treatments as reported by parents and their treating physicians.
•The Medical Home Model grants inappropriate financial incentives to providers for reducing the cost of care. Such incentives operate to limit and reduce medically necessary care for persons with autism. The incentives will promote under-diagnosing of other medical conditions concomitant with autism. Current draft language and definitions are crafted to a psychiatric and education approach to autism only, and not a phsyiological understanding of a child's condition and medical needs.
Additional Objectionable Language within
ATAA:
• Autism is defined only as behavioral and learning disorder rather than as a neurobiological disorder involving the whole body, thereby limiting treatment options
and necessities.
•No mention of necessary treatments, diagnostic tools, or research initiatives for the underlying conditions and multiple diagnoses prevalent in many individuals with autism.
In contrast to Senator Durbin’s proposed legislation, we are supporting “The Autism Comprehensive Treatment Acceleration Act” ("ACTAA"), a “child-first” bill which focuses on treatment and necessary research initiatives that do not impede on parent centered decision making, and would provide the appropriate level of insurance coverage our children require based on their individual medical needs.
Our Proposed Legislation:
*Includes findings consistent with most up to date science, emphasizing essential areas of research
*Provides stakeholder input into research and policy initiatives through the Combating Autism Act.
*Research initiatives that help to identify sub-cohorts, biomarkers, environmental and genetic factors through clinical investigations.
*Requires the establishment of continuing medical education in treating children with ASD to further quality of care with up to date scientific findings.
Requires evaluation and treatments for other medical conditions occurring in autism such as GI, immune and metabolic conditions.
Requires insurance coverage for diagnostic, medical and therapeutic services such as speech, OT, PT, nutriceuticals and ABA in addition to other medically necessary services when prescribed by treating physician.
We’ve been in touch with Senator Durbin’s office about our concerns, but we now need your help to communicate that his current draft does not meet the needs of our
children. FIGHT FOR THE CHANGE OUR CHILDREN NEED!!! If you want to continue to have the freedom of choosing the treatment(s) that you know is appropriate for your child, please help in
contacting the following individuals (Click TAKE ACTION to go to our web site use our messaging system. It takes two minutes.):
Senator Durbin: 202.224.2152
Chief of Staff: Pat Souders -- pat_souders@...
Christina Angarola -- christina_angarola@...
Senator Reid: 202.224.3542
President Barack Obama: 202.456.1414
Ask for Domestic Policy Council
In addition, please contact your Senator and Representative here:
|
|
| |
|
| If you no longer wish to receive e-mail from us, you can unsubscribe here.
|
|
Brenda Lamb <b.lamb2008@...>
b.lamb2008@...
 Send Email
|
|
|
| Stand Up for Appropriate Health Care Legislation for Children With Autism |
Take Action! |
| Tell Your Representatives that You Want Better Choices For Autism Health Care – Send a Message! |
| |
|
Autism Action Alert
from Generation Rescue and AAN
The bill has problems and the true stakeholders have an alternative ,,,,
Senator Dick Durbin of Illinois is poised to introduce autism legislation, incorporating what public health lobbyists call the "Medical Home Model." This legislation would grant treatment authority for children with autism to private organizations.
We know that Senator Durbin and others care deeply about the well-being of our children and the needs of our community. We thank Senator Durbin for his efforts. The proposed draft of his bill incorporating the "Medical Home Model" would restrict parents’ health care choices. The draft bill would interfere with getting appropriate medical care and treatment for our children while providing a financial windfall for special interest groups.
Click here to download and read Senator Durbin’s "Autism Treatment Acceleration Act", the "ATAA"
Objectionable Provisions of the Medical Home Model (MHM) Contained in the Draft Legislation:
• Parents do not have final say in their children's care; the proposed legislation describes a “physician-directed” model.
•The Medical Home Model would create health care monopolies that would restrict or deny families the right to choose a medical provider most appropriate for their child(ren).
•The Medical Home Model places undue focus on mandatory vaccination protocols determined by the AAP as the main mode of preventative health, claiming that the benefits far outweigh the risks -see: http://tinyurl.com/bt8zzg.
•There is no evidence that the Medical Home Model provides a significant benefit for improving treatment for autism or increasing access to appropriate care.
•The Medical Home Model restricts access to the most promising treatments as reported by parents and their treating physicians.
•The Medical Home Model grants inappropriate financial incentives to providers for reducing the cost of care. Such incentives operate to limit and reduce medically necessary care for persons with autism. The incentives will promote under-diagnosing of other medical conditions concomitant with autism. Current draft language and definitions are crafted to a psychiatric and education approach to autism only, and not a phsyiological understanding of a child's condition and medical needs.
Additional Objectionable Language within
ATAA:
• Autism is defined only as behavioral and learning disorder rather than as a neurobiological disorder involving the whole body, thereby limiting treatment options
and necessities.
•No mention of necessary treatments, diagnostic tools, or research initiatives for the underlying conditions and multiple diagnoses prevalent in many individuals with autism.
In contrast to Senator Durbin’s proposed legislation, we are supporting “The Autism Comprehensive Treatment Acceleration Act” ("ACTAA"), a “child-first” bill which focuses on treatment and necessary research initiatives that do not impede on parent centered decision making, and would provide the appropriate level of insurance coverage our children require based on their individual medical needs.
Our Proposed Legislation:
*Includes findings consistent with most up to date science, emphasizing essential areas of research
*Provides stakeholder input into research and policy initiatives through the Combating Autism Act.
*Research initiatives that help to identify sub-cohorts, biomarkers, environmental and genetic factors through clinical investigations.
*Requires the establishment of continuing medical education in treating children with ASD to further quality of care with up to date scientific findings.
Requires evaluation and treatments for other medical conditions occurring in autism such as GI, immune and metabolic conditions.
Requires insurance coverage for diagnostic, medical and therapeutic services such as speech, OT, PT, nutriceuticals and ABA in addition to other medically necessary services when prescribed by treating physician.
We’ve been in touch with Senator Durbin’s office about our concerns, but we now need your help to communicate that his current draft does not meet the needs of our
children. FIGHT FOR THE CHANGE OUR CHILDREN NEED!!! If you want to continue to have the freedom of choosing the treatment(s) that you know is appropriate for your child, please help in
contacting the following individuals (Click TAKE ACTION to go to our web site use our messaging system. It takes two minutes.):
Senator Durbin: 202.224.2152
Chief of Staff: Pat Souders -- pat_souders@...
Christina Angarola -- christina_angarola@...
Senator Reid: 202.224.3542
President Barack Obama: 202.456.1414
Ask for Domestic Policy Council
In addition, please contact your Senator and Representative here:
|
|
| |
|
| If you no longer wish to receive e-mail from us, you can unsubscribe here.
|
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