Hi Xiomi, Glad to hear you have been doing a bit better. I've been pretty sick - in hospital on IV steroids (didn't work), infusion of infliximab/Remicade...
Hi Amy, I'm so sorry that you're having such a har time. Don't think that my nightmare is over now. No way!! I get a flare, than it subside just to start over...
Xiomi, Hope you are feeling better. I am going back into hospital tomorrow - they'll throw a few more last ditch drugs at me, then if I am not better in a few...
we will all be thinking of you. if you do go into surgery...good luck, and find the best doctor possible. i hope this brings you some peace and makes you feel...
Amy, Good luck tomorrow. I hope the drugs help! I know how you feel about having the surgery, sometimes you just want it over already!! The UC will be gone ...
Hi you all! This is my first time on this sight. I am usually very quiet about my disease, but I"ve reached a whole new level. I have a fistula in my groin...
Hi, I took my third infusion of Remicade just today. The results werenīt the miracle the advertisements were showing. People smiling all the time and ...
Roberto Soares
rfirmeza@...
Jul 9, 2003 12:31 am
2367
Thank you Roberto~ So, did your hair fall out, etc? They also want me on 6MP which gave my friend cancer. I know, you can't say for sure, but my Dr. said...
Hello everybody Just to let you know that I am back to receiving mail again. I have switched some of my groups over to my yahoo account, so I won't have too...
Currently going through my second biggest flare. The doctor has prescribed Imuran, does anyone here use this med? Supposed to keep me off steroids and in...
Hi Randy, I haven't taken Imuran but a co-worker did and he said it totally helped his Crohns. I have UC and so far have only had to take asacol and ...
Well, I never heard anything related to cancer and 6-MP, but thatīs something to be worried about. I tried both Imuran and 6-MP. 6-MP is a kind of Imuran...
Roberto Soares
rfirmeza@...
Jul 10, 2003 12:51 am
2372
Randy, I am taking Imuran and so far have had good results. I started it about 11 months ago after getting out of a week long stay in the hospital. I was able...
Thanks for the info Bambi, I have UC also and I'm on the exact meds now. He wants to start Imuran to try and keep me in remission longer. ... From: Bambi...
Thanks for the info. The side affects and the bloodwork worry me. Wow 150 mg a day. He is putting me on 50 mg a day. Hopefully it will go well. ... From:...
Wow Roberto, sorry to hear you had so much trouble with the meds. Hopefully the Metotrexate will kick in and start working for you. ... From: Roberto Soares...
Yeah, you have to ease your way into the Imuran. It also takes about 30 days for the dosage you are on to have any affect on your body. I started on 50 for a...
Hi all, To Amy--I hope the drugs work well enough so you don't have to do the surgery yet. Know that you're in my prayers for all you're going through. Well, I...
Hi, Tricia--- What kind of side effects did you have from the prednisone? My daughter is on it for the second time. The first time she lost about a third of...
Hi Debbie, I know you asked Tricia about her side effects...just to let you know a few of mine with predisone. I had a bit of hair loss (mainly the 1st time I...
Debbie, Let's see side effects of pred that I had...I had weight gain (not necessarily a bad thing as I had lost about 20 lbs rapidly from being sick),...
hi, i think everyone reacts to prednisone differently. it also depends on how much you are taking, and for how long. i had a few times where i took it for only...
Hi Debbie, I wanted to share what my side effects on prednisone were..........mostly I experienced weight gain, moon face and insomnia.........I was on 60 mg...
Hi--- Thanks for the responses about the side effects of prednisone. I have another question. Have any of you tried taking L-Glutamine for ulcerative colitis?...
I tried L-Glutamine when I went to a ortomolecular doctor. For me it didnīt worked that much. ... From: Bill & Debbie To: crohns_n_colitis@yahoogroups.com ...
Roberto Soares
rfirmeza@...
Jul 12, 2003 4:26 pm
2385
Hello, my little sister is 18 year old and has recently been diagnosed with Crohns and my family and I feel so helpless because we feel like we cant do...
Becky, Im sorry for your sister. She is very fortunate to have a loving and supportive sister such as yourself. I don't have crohns, i have uc so I cant tell...
Thank you so much Deb. I noticed at the end of your message that you are in Korea, I know this is not on the subject at hand but my hubby is also in Korea...
Becky, Im not in Korea, my son is. he's also in the army. Have you joined any support groups on yahoo? they have a great one. Ft benning is the group. let me...
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