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crohns_n_colitis · This list is intended for those who suffer from the chronic illnesses, Crohn's Disease and Ulcerative Colitis. I hope to be abl
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Reply | Forward Message #4978 of 5061 |
I'm new

I’m new to this group and to this illness.  I had no idea I was getting so sick.  I thought my stomach was just getting more sensitive to fried food and onions.  I grew up on meat and potatoes and have never been able to eat food most people consider mildly spicy.  I was hospitalized for diarrhea and vomiting and ended up there for 2 weeks.  The doctor was not even able to finish the colonoscopy because there was so much damage.  I was so surprised.  Is it uncommon to get so bad so fast or was I just completely oblivious to my symptoms?

 

I’ve been diagnosed with UC and the gastro doctor thinks I may have Crohn’s but can’t tell for sure until I heal enough for a complete colonoscopy.  That won’t be for another month.  I’m really nervous about the possibility of Crohn’s.  I need to learn more about it.  

 

After I got out of the hospital, my voice was hoarse.  I thought it was just because I hadn’t been talking.  But the gastro asked if I’d been hoarse so now I wonder if it’s a symptom of Crohn’s.  I’ve also been burping a lot.  That started before my hospital time but I didn’t think much of it. 

 

I’m recovering much more slowly than I had hoped.  I get tired so easily.  This morning I cooked oatmeal and did a few dishes and needed to rest up from just that little bit.  Our white dog bit into a blue ink pen so I got even more tired when my husband and I cleaned up that mess.  Now I feel a little shaky.  I probably should push myself to do a little more each day but it doesn’t take much for me to get so wiped out that I end up sleeping for hours.  I’m still taking Oxycontin 20 mg so that’s probably causing part of my weakness.  I don’t like being overly drugged but I like pain even less. 

 

I also have Lupus, Sjogren’s Syndrome and fibromyalgia and am on disability.  I’m looking forward to learning from this group and talking to other people who are going through the same thing. 

 

Angela



Wed Aug 26, 2009 5:05 pm

greatbigdogs
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Message #4978 of 5061 |
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Hi all! I was just wondering if anyone was still on this list. There doesn't seem to be any activity lately. Just checking... Melissa...
mlwpdb
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Aug 26, 2009
1:42 am

I guess a lot of folks are busy with vacations etc, after school starts things should pick up. Osnath....
ozy
osnathr
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Aug 26, 2009
2:01 am

I am here. I would like to be on vacation. Ash Sent from my Verizon Wireless BlackBerry ... From: ozy <osnathr@...> Date: Tue, 25 Aug 2009 19:00:24 To:...
ashley.apice@...
ashley.apice
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Aug 26, 2009
4:03 am

I'm new to this group and to this illness. I had no idea I was getting so sick. I thought my stomach was just getting more sensitive to fried food and...
Angela
greatbigdogs
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Aug 26, 2009
5:05 pm

I have a friend with Sjogrens and one with Lupus and I cannot imagine having both and the possibility of Crohns.     I am 65 yrs old and have probably had...
Patricia OBrien
pattio1944
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Aug 26, 2009
8:32 pm

Hello everyone, I have not been on in a while, but I am 27 and have had crohns since I was 16. I have been reading the blogs and fortunately I have been...
ashley.apice@...
ashley.apice
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Aug 26, 2009
8:41 pm

Welcome to the group! I also have fibromyalgia and am on disability, though not for the fibro totally. Having crohns, depression, anxiety and severe fatigue...
mlwpdb
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Aug 27, 2009
12:21 am

Melissa, I also have crohns and fibromyalgia and deal with pain meds, I'm also on remicaade altho may have to go off it because of mono virus not going away!...
elisa_408@...
jewish_diplo...
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Aug 27, 2009
1:04 am

Does the remicade seem to help your crohns? I think remicade or humira might be the next route my GI may need to go, cause nothing else seems to work for me....
mlwpdb
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Aug 29, 2009
2:28 am

Remicade has kept crohns at bay for 3 years. Sent from my BlackBerry device on the Rogers Wireless Network ... From: "mlwpdb" <mlwpdb@...> Date: Sat, 29...
elisa_408@...
jewish_diplo...
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Aug 29, 2009
2:50 am

Have you had any major side effects from the Remicade? My doctor wants to try and avoid the side effects if he can find something else to help me. Melissa...
mlwpdb
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Aug 29, 2009
2:37 pm

I took Remicade for 18 months and felt wonderful.   Got back energy, stopped flare ups.  Unfortunately, I developed an allergy and had to stop Remicade. ...
Patricia OBrien
pattio1944
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Aug 30, 2009
3:07 am

Thanks for the info! Melissa...
mlwpdb
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Aug 30, 2009
12:22 pm

Ø I have a friend with Sjogrens and one with Lupus and I cannot imagine having both and the possibility of Crohns. I was feeling pretty well adjusted to the...
Angela
greatbigdogs
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Aug 27, 2009
4:23 am

Angela:  Thanks for responding.   If you want to meet with others who have Crohn's or UC, some hospitals have support groups...you can find out if there is...
Patricia OBrien
pattio1944
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Aug 27, 2009
4:38 pm

Does anyone take Align? It’s $29+ for a 28 day supply. I’m hoping to find a better price. Any suggestions? Angela Does anyone take Align?  It’s $29+...
Angela
greatbigdogs
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Aug 29, 2009
3:15 am

no....i've taken the probiotic, acidophillus Pearls.....great when you are on antibiotics, just take them twice a day instead of once and no diahhrea! let me...
DianeR1113@...
diana11c3
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Aug 29, 2009
3:29 am

It has been very quiet ..... for myself, thank God I went into remission about 2 months ago ..... never want to brag, but it sure feels good....
DianeR1113@...
diana11c3
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Aug 26, 2009
2:22 am

That is great, I have had only one small flare this year, as the years pass it seems to get easier as one gets older. Osnath....
ozy
osnathr
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Aug 26, 2009
2:41 am

I'm still here. ... From: mlwpdb <mlwpdb@...> Subject: [crohns_n_colitis] Is anyone here? To: crohns_n_colitis@yahoogroups.com Date: Tuesday, August 25,...
Patricia OBrien
pattio1944
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Aug 26, 2009
8:13 pm
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