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To: crohns_n_colitis@yahoogroups.com
From: dsberck@...
Date: Mon, 4 Aug 2008 22:51:25 -0500
Subject: RE: [SPAM][crohns_n_colitis] 1 month flare up, need help and advice!
I agree with Jake, Remicade seems to do wonders. Also, don’t forget to get an allergy test. I’ve had UC for 11 years and was about to lose my colon until I found out I’m allergic to wheat. Now I’m so healthy I might end up getting off of everything! Good luck to you!
Darla L.
From: crohns_n_colitis@
Sent: Sunday, August 03, 2008 11:09 AM
To: crohns_n_colitis@
Subject: Re: [SPAM][crohns_
Hi Jake,
Have you considered Remicade? I was diagnosed in '04 and had three very nasty long flare ups. The first one I was able to treat with 40 mgs of prednisone, but the other two were terrible. At one point I was on 75 mg via a pic line at home, and had 4 hospitalizations. My second flare up was pretty bad and I was pregnant at the time so they had to rely on prednisone to get it under control, but because I wasn't responding to prednisone anymore it took them some very high doses to get me to stop. My third flare-up finally ended after a week long hospital visit on 160 mgs of solumedrol every 6 hours while I was in the hospital. They did send me home on 60 mgs (tapered down too fast too) but was still bleeding and had diarrhea when I left. A week later my GI doc sent me back in for my first Remcidade treatment which stopped my flare-up instantly (it seemed). That was 2 years ago and I haven't had a flare-up since. I do think they need to increase my Remicade injection as I have been having TONS of very loud stomach noises and gurgling, etc. that I always had just before I started flaring.
Babette
----- Original Message -----
From: Jake Wolf
Sent: Sunday, August 03, 2008 6:38 AM
Subject: Re: [SPAM][crohns_
n_colitis] 1 month flare up, need help and advice!
hi thanks Suzanne, I appreciate it
Jake Wolf
----- Original Message ----
From: Suzanne Flaherty <eflaherty001@nc.rr.com >
To: crohns_n_colitis@yahoogroups. ; Crohns@yahoogroups.com com ; crohns-friends@yahoogroups. ; cdsicrohnssupportcl.com ub@yahoogroups. com
Sent: Sunday, August 3, 2008 8:24:27 AM
Subject: RE: [SPAM][crohns_n_colitis] 1 month flare up, need help and advice! Hi Jake,
I am going to forward this to Sue and others in a couple other UC/CD yahoo groups b/c I think Sue and others may know about this. Good luck and I hope you feel better soon.
Suzanne
From: crohns_n_colitis@ yahoogroups. com [mailto:crohns_ n_colitis@ yahoogroups. com] On Behalf Of Jake Wolf
Sent: Saturday, August 02, 2008 11:24 AM
To: crohns_n_colitis@ yahoogroups. com
Subject: [SPAM][crohns_ n_colitis] 1 month flare up, need help and advice!Hello all, I'm new here and this is my first post. I'm hoping someone
can help me here and give me some info/advice-
I was diagnosed with left sided and transverse colon UC two years and
have been dealing with intermittent flare ups ever since. Typically I
have about 3-4 flares a year, they last for several weeks and
typically I have to take some form of steroid to regain control.
Prednisone makes me feel insane and my general consensus is that 6
weeks on prednisone is about as bad as a colitis flare, only in a
different way. I do not take any maintenance meds, I took asacol for 1
1/2 years until it stopped working, then I took Imuran for 6 months,
and went off of it. I'm a health care worker, and I think
immunosuppressants do more harm than good for me in terms of what I'm
exposed to. I was constantly catching every cold/flu when I was on
Imuran.
I changed my diet when I was diagnosed. I cut out all gluten, most
dairy, beer, and tried to moderate fried foods and refined sugars.
So anyways, right now I'm having a flare up after a six month period
without any issues. Its pretty intense, its been about a month and I
haven't been able to turn it around. I'm taking lots of supportive
herbs and supplements, but the inflammation seems to have alot of
inertia and is difficult to get control of once the "wildfire" catches.
My question is this: I recently gave in and decided to take steroids
because I'm just wasting away and can't really function in life or
work. I'm taking entecort (Budesonide) 9mg /d. I prefer that med
because it has many less side effects than prednisone does, but
doesn't do much for the distal colon IIRC. My MD advised
supplementing entecort with Predfoam (prednisolone) enemas to make
sure the distal part of the colon is medicated. Well, I think
predfoam is not being made anymore because no pharmacy has it, so
instead the medicine shoppe mixed methylprednisolone enemas for me, in
20mg doses. I can't find a shred of info on the web if I search for
"methylprednisolone enemas". Is this a safe route/administratio n for
this med? I only ask because it seems like nobody is doing this.
If you have any info or advice for me I would greatly appreciate it.
I just want to get this turned around quickly because I feel I'm
getting close to being in a bad place. My ferritin is 14 which is
really low, and my RBC's are very low as well. I'm extremely fatigued
and pale pale pale. I guess this is from all the bleeding. I'm also
really dehydrated and oral intake doesn't seem to be keeping up.
Ok, I guess thats enough background. If you've read this far, thanks
for the attention span! I appreciate in advance any help.
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