Hello,

I really need advice from anyone who can help me. I am writing about
my
15 yr old daughter.

My daughter Kristina, was recently diagnosed with Ulcerative Colitis.
She just finished taking Flagyl for 2 weeks, currently on:

Sulfasalazin 500 mg, 3 tabs twice daily
Folic Acid 1mg, once daily
Prevacid 30 mg once daily
Shes on several meds for other medical reasons mentioned below:

Kristy has been thru hell. Last August she was also diagnosed with
Seizures, (Migraines as a result from the seizure) and also
Psudeotumor
Cerebri which is a fake tumor but she has all the sympotms of one b/c
of the build up of spinal fluid in her brain, she is in constant
migriane pain plus 100. Of course, before we found out about the UC,
she has major stomach/abdominal pain, severe constipation, some
bleeding. I had to take her to the Emergency room over 15 times last
year b/c of all her symptoms. It came to a point where the doctors
werent believing her and suggested me take her to a psyhciatrist. I
know my child wasnt faking. She is currently missing her 2nd year of
school b/c of all the pain she has been thru (and still is) and
fatigue.
She has been having better days b/c the seizures are finally under
control, so it helps with the migraines. Her stomach still flairs up.
I
forgot to mention that Kristy has also been having major flair ups
with
physical joint pain. The rheumotologist says it wasnt Lupus or
arthritis. She said it is Fibromyalgia but that diagnosis just didnt
sit right wih me.

We have an appoinment scheduled for this wednesday with the gastro
doc.
Please give me advice on what to ask the doctor. I have been reading
several post and am shocked to know that UC can cause problems with
the
kidneys, joints and what else? I am trying to learn as much as I can
so
that i can continue to fight for my child. I hate taking her to the
ER
and the docs dont do anything hen she is in severe pain!! No pain
meds
NOTHING. She cries and doesnt understand why no one is helping her.

With the symptoms I have described to you, what do u think? Is it all
(except the seizures) related to UC? Should I ask for pain meds? What
can i do to prepare for if I have to take her to the ER again. The
docs
wont help her....Any advice and questions you can give me to ask the
gastro doc will be so helpful to me.

One question that I have. On 3 occasions, Kristy has screamed b/c a
sharp pain would hit her in the back (kidney area). The other day she
was fine and suddenly she was in alot of pain in the same area, it
lasted for about 30 minutes but then went away. She also had problems
urinating, no UTI, she just couldnt pee. One of her meds was removed
b/c it is used to help people stop peeing. I was wondering if UC
affects any of those things.

Thanks for reading my post. I really need support. Im happy we have
diagnosis to Kristys problems but now I need to know how to fight the
doctors in getting her theproper care she deserves. She shouldnt be
in
pain anymore. Two years is long enough!

Julie