Search the web
Sign In
New User? Sign Up
crohns_n_colitis · This list is intended for those who suffer from the chronic illnesses, Crohn's Disease and Ulcerative Colitis. I hope to be abl
? Already a member? Sign in to Yahoo!

Yahoo! Groups Tips

Did you know...
Want your group to be featured on the Yahoo! Groups website? Add a group photo to Flickr.

Best of Y! Groups

   Check them out and nominate your group.
Having problems with message search? Fill out this form to ensure your group is one of the first to be migrated to the new message search system.

Messages

  Messages Help
Advanced
Would appreciate advice on Remicaid   Message List  
Reply | Forward Message #4352 of 5061 |
My 13 year old son has not responded well to traditional treatments
for his UC...azacol, pentassa, etc. His colon remains severely
inflamed.

His Gastroenterolgoist has proposed the use of Remicaid through bi-
weekly IV drips for six weeks followed by monthly treatments. When
I read Remicaid descriptions on the internet, it said that treatment
with Remicaid may increase the risk of lymphoma and other cancers.
This stopped be dead in my tracks as my father passed away from
Lymphoma.

The other option is a J-Pouch which I guess I view as a severe
solution in its own right.

My question is whether anyone has been treated with Remicaid and have
they heard anything different than what I have heard? Is the
lymphoma connection something that they have to put in disclaimers to
cover themselves aginst lawsuits? What is the real risk?

Alternatively, what are the risks with the J-Pouch procedure.

Thank you in advance for any words of wisdaom you may offer.


Len B




Tue Jan 30, 2007 10:11 pm

thelenshow
Offline Offline
Send Email Send Email

Forward
Message #4352 of 5061 |
Expand Messages Author Sort by Date

My 13 year old son has not responded well to traditional treatments for his UC...azacol, pentassa, etc. His colon remains severely inflamed. His...
Len B
thelenshow
Offline Send Email
Jan 30, 2007
10:12 pm

Len B.....I am 19 years old. I was diagnosed with UC when I was 13 myself. I struggled and I leterally mean struggle with UC for all of these years. I never...
tamara crotts
bikinigirl2005
Offline Send Email
Jan 31, 2007
2:43 am

... hi len, im sorry about your son and being diagnosed with crohns disease. first of all, have you talked to your doctor about your family medical history? I...
soklueles2002
Offline Send Email
Jan 31, 2007
6:06 pm

HI Len B, I have been on remicade 6 months now, and have y life back...had severe crohn's UC, bit tired after infusion, but side affects minimal. ... hi len,...
Elisa
jewish_diplo...
Offline Send Email
Feb 1, 2007
7:41 pm

Hello everyone - I'm new to the group. I'm 24 and was diagnosed with UC in the fall of 2004. I've been battling with it ever since. I've been on and off...
Kristen Altobello
kmaltobello
Offline Send Email
Feb 1, 2007
9:21 pm
Advanced

Copyright © 2009 Yahoo! Inc. All rights reserved.
Privacy Policy - Terms of Service - Guidelines - Help