--- In crohns_n_colitis@yahoogroups.com, "sportbiker3"
<sportbiker3@...> wrote:
>
>
> I just recently started Remicade too- I think I have had 6
treatments
> so far- I had not ill effects what so ever. Went to work the same
day
> and everyting- They started me at the regular dose ( i think 500
> mg/kilo) and unfortunately i saw no inprovement :-( I had been
hoping
> for better- But on my last treatment the bumped me up to 750 mg per
> kilo and I have started to see definate improvemt- My condition
looks
> to be getting much better- still have my fingers crossed but im
> hopeful- Hoping to get off the prednisone and 6mp and
> colazal........- Hope it works for you. ANy other questions let
me know.
>
>
> Chris
>
>
>
> --- In crohns_n_colitis@yahoogroups.com, "cemagal" <cemagal@>
wrote:
> >
> > Hi all, I have indeterminent UC/Crohns, looks like UC but have
> > complications of Crohns. I have been on Prednisone 3 times in
last 6
> > months. I am starting Remicade in the next couple weeks. I was
> > wondering how you feel after the infusion? The same day and the
day
> > after, any ill effects? I work two jobs and neither know about
the
> > disease. My doctor has been wanting me to go on Remicade for a
year
> > but I keep putting it off. I don't know why but I am hating the
idea
> > of such a strong drug and the infusion aspect. I give myself
shots
> > for
> > arthritis and it's no big deal. I am just having some anxiety
over
> > this and I am not an anxious person. I think part of it too is
this
> > looks like the last step before surgery. If Remicade doesn't
> > work......
> > uuuhhhggg.
> >
> > Someone said Remicade has only been around for about 5 years, so
we
> > really don't know the long term effects.
> >
> > Has anyone been on it that long or longer? Still works?
> >
> > Any words of encouragement would be great.
> >
>
hi, i have taken remicade, and IMO its the best thing ever for
crohns disease. I was on a 12 week program. every 3 months i would
go to the hospital and get the infusion and after the 2nd treatment
i could tell a huge difference in my crohns disease. Me, who never
went anywhere because i was so worried about the bathroom problem,
was actually going out and doing things that other people always do
I hope the new dr i go to will give it to me, i was at one time, on
6 different meds at one time and after i started on the remicade,
the only thing i had to take was prilosec. I was completely off
prednisone that i had been on for over a year. i was so happy
good luck and i know it will make your crohns so much better