I just recently started Remicade too- I think I have had 6 treatments
so far- I had not ill effects what so ever. Went to work the same day
and everyting- They started me at the regular dose ( i think 500
mg/kilo) and unfortunately i saw no inprovement :-( I had been hoping
for better- But on my last treatment the bumped me up to 750 mg per
kilo and I have started to see definate improvemt- My condition looks
to be getting much better- still have my fingers crossed but im
hopeful- Hoping to get off the prednisone and 6mp and
colazal........- Hope it works for you. ANy other questions let me know.
Chris
--- In
crohns_n_colitis@yahoogroups.com, "cemagal" <cemagal@...> wrote:
>
> Hi all, I have indeterminent UC/Crohns, looks like UC but have
> complications of Crohns. I have been on Prednisone 3 times in last 6
> months. I am starting Remicade in the next couple weeks. I was
> wondering how you feel after the infusion? The same day and the day
> after, any ill effects? I work two jobs and neither know about the
> disease. My doctor has been wanting me to go on Remicade for a year
> but I keep putting it off. I don't know why but I am hating the idea
> of such a strong drug and the infusion aspect. I give myself shots
> for
> arthritis and it's no big deal. I am just having some anxiety over
> this and I am not an anxious person. I think part of it too is this
> looks like the last step before surgery. If Remicade doesn't
> work......
> uuuhhhggg.
>
> Someone said Remicade has only been around for about 5 years, so we
> really don't know the long term effects.
>
> Has anyone been on it that long or longer? Still works?
>
> Any words of encouragement would be great.
>