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crohns_n_colitis · This list is intended for those who suffer from the chronic illnesses, Crohn's Disease and Ulcerative Colitis. I hope to be abl
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Starting Remicade....need words of encouragement   Message List  
Reply | Forward Message #4292 of 5061 |
Re: Starting Remicade....need words of encouragement


I just recently started Remicade too- I think I have had 6 treatments
so far- I had not ill effects what so ever. Went to work the same day
and everyting- They started me at the regular dose ( i think 500
mg/kilo) and unfortunately i saw no inprovement :-( I had been hoping
for better- But on my last treatment the bumped me up to 750 mg per
kilo and I have started to see definate improvemt- My condition looks
to be getting much better- still have my fingers crossed but im
hopeful- Hoping to get off the prednisone and 6mp and
colazal........- Hope it works for you. ANy other questions let me know.


Chris



--- In crohns_n_colitis@yahoogroups.com, "cemagal" <cemagal@...> wrote:
>
> Hi all, I have indeterminent UC/Crohns, looks like UC but have
> complications of Crohns. I have been on Prednisone 3 times in last 6
> months. I am starting Remicade in the next couple weeks. I was
> wondering how you feel after the infusion? The same day and the day
> after, any ill effects? I work two jobs and neither know about the
> disease. My doctor has been wanting me to go on Remicade for a year
> but I keep putting it off. I don't know why but I am hating the idea
> of such a strong drug and the infusion aspect. I give myself shots
> for
> arthritis and it's no big deal. I am just having some anxiety over
> this and I am not an anxious person. I think part of it too is this
> looks like the last step before surgery. If Remicade doesn't
> work......
> uuuhhhggg.
>
> Someone said Remicade has only been around for about 5 years, so we
> really don't know the long term effects.
>
> Has anyone been on it that long or longer? Still works?
>
> Any words of encouragement would be great.
>








Sat Aug 26, 2006 2:12 am

sportbiker3
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Message #4292 of 5061 |
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Hi all, I have indeterminent UC/Crohns, looks like UC but have complications of Crohns. I have been on Prednisone 3 times in last 6 months. I am starting...
cemagal
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Feb 14, 2006
5:20 am

I have been on Remicade since the discovered it. The only problem that I have had and have ever had was being tired after the infusion. Just remember that it...
Jessica Hiday
jessie_hiday
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Feb 14, 2006
2:17 pm

I had a single infusion of Remicade. The infusion is no big deal, lasts about 2-3 hrs, they will probably give you some antihistamine meds to avoid irritation...
CBERGER338@...
cberger338
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Feb 14, 2006
3:44 pm

I just recently started Remicade too- I think I have had 6 treatments so far- I had not ill effects what so ever. Went to work the same day and everyting-...
sportbiker3
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Aug 26, 2006
2:16 am

... treatments ... day ... hoping ... looks ... me know. ... last 6 ... day ... the ... year ... idea ... shots ... over ... this ... we ... hi, i have taken...
soklueles2002
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Sep 14, 2006
1:03 am
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