I have been on Remicade since the discovered it. The only problem that I have had and have ever had was being tired after the infusion. Just remember that it is like saline going into your IV. There is nothing to worry about and everything will be fine. I was scared the first time I had it to but I just remember that I feel 150 time better then I did the day before. I have not noticed any other side effects that the doctors don't know about. If you have questions feel free to contact me. I have had both UC and Crohns since 1998. Jessie

cemagal <cemagal@...> wrote:

Hi all,  I have indeterminent UC/Crohns, looks like UC but have
complications of Crohns.  I have been on Prednisone 3 times in last 6
months.  I am starting Remicade in the next couple weeks.  I was
wondering how you feel after the infusion?  The same day and the day
after, any ill effects?  I work two jobs and neither know about the
disease.  My doctor has been wanting me to go on Remicade for a year
but I keep putting it off.  I don't know why but I am hating the idea
of such a strong drug and the infusion aspect.  I give myself shots
for
arthritis and it's no big deal.  I am just having some anxiety over
this and I am not an anxious person.  I think part of it too is this
looks like the last step before surgery.  If Remicade doesn't
work......
uuuhhhggg.

Someone said Remicade has only been around for about 5 years, so we
really don't know the long term effects.

Has anyone been on it that long or longer?  Still works?

Any words of encouragement would be great.