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crohns_n_colitis · This list is intended for those who suffer from the chronic illnesses, Crohn's Disease and Ulcerative Colitis. I hope to be abl
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Reply | Forward Message #4249 of 5061 |
Re: [crohns_n_colitis] new to the group

Richard Hello and welcome,
I just wanted to tell you that I was very young when I discovered that I had crohns and just a few years ago they told me I had UC as well. I kept a dairy and it helped out I still keep it when I have a flare up. I was also on 6mp and it did not work that well but they put me on remicade which is an injection that takes 2 hours to infuse and also methotrexate that is a weekly shot.. Also they could put her on pentasa which is like asocal but better in a way. Let me know if there is any more questions you or your daughter might have. I hope that I was helpful.
Jessie

Richard - Santa Barbara <richard@...> wrote:
I've read through a lot of the posts (not very fond of yahoo
groups!) but I've found some great information here.

I'm the father of an 11, almost 12, year old girl who has been
diagnosed with Cronhs, currently on Asacol, although she still has
nausa and diarreah, we're going to the dr next week to see about
putting her on mp6.

As a very scared father, who stil doesn't understand all of the
terms I was wondering if some one could provide a few answers, or at
least point me in the right direction, as the doctors that I've
spoken to so far have been very generic in their reponses.

As far as I can tell it's very hard to work out what, if anything
will trigger a chrons attack (by that I mean
nausa/vommitimng/diahara), but once it's started certain things can
be done to make life easier.

Do OTC enzymes really do any good (latcaid and others)?

Does diet make a major differnece when an episode occurs ?

Will keeping a "food diary" help in finding any trigger points to an
episode?

Are emotional triggers (i.e. high stress) that important, or will it
just go in cycles?

I'm so sorry to be vague in my questions, which I'm sure have been
answered many times. I'm just trying to find solutions that I
can "sell" to my daughter that sound like that they might help, if
only a bit, and to my self!

Many thanks

Richard






Wed Dec 28, 2005 2:18 pm

jessie_hiday
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Message #4249 of 5061 |
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Hi My name is Leah. I'm 35 and live in Brisbane, Australia. I've recently been diagnosed with Ulcerative Colitis and am looking for lots of information. I...
mutediva
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Feb 17, 2004
12:29 pm

Welcome to the group. It is such a comfort to have people that understand and can give you suggestions from experience. Just make sure that you trust your...
Suzanne Dorman
flydownus
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Feb 17, 2004
1:28 pm

Hello Leah, I am 18, and I live in Ohio (US). I was diagnosed with Ulcerative COlitis about 1 year ago. With my the experiences that I have had with it the...
Tracy
tracy_lee_0267
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Feb 17, 2004
1:32 pm

I have forgotten to say that I got 2 pints of blood and the swelling in my left eye went down and got better Tracy...
Tracy
tracy_lee_0267
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Feb 17, 2004
1:37 pm

Hi Leah, And welcome. I hope you find surport here with your UC. Just take control as much as you can, and try not let it control you. This is going to mean a...
fieryeddie
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Feb 17, 2004
1:56 pm

Hi Leah, I had UC for 12 years, but had my colon removed in June 2002 and now have the J-pouch.....hook-up was Aug. 2003. I would be glad to answer any...
sheriemcm@...
sheriemcm
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Feb 17, 2004
7:43 pm

Hi Leah, I'm a fellow Aussie, living in Melbourne. I was diagnosed with UC about 2 and a half years ago. If you have any questions, please feel free to ask :)...
Amy
amyjn2000
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Feb 18, 2004
11:26 am

Thanks Suzanne, I look forward to learning from all of you :-) Leah ... From: Suzanne Dorman To: crohns_n_colitis@yahoogroups.com Sent: Tuesday, February 17,...
Muso
mutediva
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Feb 23, 2004
2:25 pm

Thanks to everyone who responded to my email. I'm sorry I'm so slow answering, but I'm finding hard to get the energy I need. But I will get around to...
Muso
mutediva
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Feb 27, 2004
12:00 pm

Thanks Eddie, I appreciate your support and kind words :-) Leah ... From: "fieryeddie" <fieryeddie@...> To: <crohns_n_colitis@yahoogroups.com> Sent:...
Muso
mutediva
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Feb 27, 2004
12:00 pm

Thanks Sherie :-) I assume you are pleased with your decision to have the surgery? Leah ... From: <sheriemcm@...> To: <crohns_n_colitis@yahoogroups.com> ...
Muso
mutediva
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Feb 27, 2004
12:00 pm

Thanks Amy. I just joined the ACCAQ (Queensland) which had lots of info brochures, etc... but no "can't wait" card. Sounds like it could be handy ... Amy,...
Muso
mutediva
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Feb 27, 2004
12:00 pm

Hi Leah, I have been "lucky" enough to have a nasty case of UC that has proved resistant to medical treatment. Nothing has put me in remission, but some...
Amy
amyjn2000
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Feb 28, 2004
3:32 am

Thanks for the info Amy. I'm not discouraged about treatments yet :-) Things are still in the early days for me, but I know I"m already sick of the whole...
Muso
mutediva
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Mar 2, 2004
1:27 pm

Hi Leah, The surgeon said I am certainly a candidate for the surgery and I see him again this Friday to tell him my decision. I am pretty sure I will do it,...
Amy
amyjn2000
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Mar 2, 2004
2:18 pm

Amy, I took a large growth to see frank Zappa then had my surgery next day. Had my birthday then had my surgery next day. I've always chosen all but 2 of my...
Fiery Eddie
fieryeddie
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Mar 2, 2004
5:24 pm

Eddie, Glad they didn't charge you an extra admission fee to take that large growth in! LOL I think we can't allow our disease to stop us doing the important...
Amy
amyjn2000
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Mar 3, 2004
12:57 am

Amy, The fact its scary is one reason you should go have fun do things you want then have the op and while your being pulled and poked LOL you can think of the...
Fiery Eddie
fieryeddie
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Mar 3, 2004
1:42 am

Best of luck Amy :-) What difference does it make what your reason is for the delay....have the surgery when you're ready. And I would say you have good...
Muso
mutediva
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Mar 2, 2004
2:39 pm

I've read through a lot of the posts (not very fond of yahoo groups!) but I've found some great information here. I'm the father of an 11, almost 12, year old...
Richard - Santa Barbara
why2kit
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Dec 28, 2005
7:07 am

Richard Hello and welcome, I just wanted to tell you that I was very young when I discovered that I had crohns and just a few years ago they told me I had UC...
Jessica Hiday
jessie_hiday
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Dec 28, 2005
2:18 pm

Hi Richard: I am 25 years old and was diagnosed with Crohns 5 years ago. I started with Asacol and it did not help at all. In my opinion a young little girl...
lynachka@...
xlenkapenkax
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Dec 28, 2005
9:59 pm

I have had Crohns disease and colitits for 18 years. I have done a lot of research and have had surgery and problems throughout the years. I have found...
Suzanne Dorman
flydownus
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Dec 28, 2005
10:13 pm

Hi Richard I am sorry your daughter has to deal with this at such an early age. I was 17 when diagnosed with UC and Crohn's I am now 43 years old. Being...
jan sullivan
dijan14
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Dec 29, 2005
2:24 pm

my name is evelyn. i am 28 yrs old and i have three children. i have a ten and a two year old daughter and an eight year old son with cystic fibrosis. i am a...
peaches0106
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Oct 6, 2007
8:14 pm

- Hi Evelyn Welcome to the group! I know, if I hadnt been in this group, i might still be trying to find out what was wrong with the constant UTI's. I had 2...
soklueles2002
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Oct 6, 2007
11:19 pm

most of my patients are fresh surgical patients. lots of them with fistulas or an illeus. and most with ostomies. i am so glad to hear your surgery was...
evelyn
peaches0106
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Oct 7, 2007
11:57 am

Evelyn: You sure have an overflowing plate of responsibilities. The good news is that you do understand digestive diseases and have taken the first step to...
Patricia OBrien
pattio1944
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Oct 7, 2007
3:11 am

thanks for your support. evelyn Patricia OBrien <pattinpalatine@...> wrote: Evelyn: You sure have an overflowing plate of responsibilities. The...
evelyn
peaches0106
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Oct 7, 2007
11:56 am
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