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crohns_n_colitis · This list is intended for those who suffer from the chronic illnesses, Crohn's Disease and Ulcerative Colitis. I hope to be abl
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Frustrated - Not Yet Diagnosed   Message List  
Reply | Forward Message #4109 of 5061 |
Re: Frustrated - Not Yet Diagnosed

An enema doesn't sound pleasant but at this point I'm pretty open to
trying anything that will make me feel better. I'm on 12 asacol a
day and am not noticing much improvement. Crohn's is not anywhere
in my family (that I know of). My aunt had diverticulitis but had a
portion removed and is better now but still deals with IBS. I go
back to the GI friday for CT scan results and to discuss progress
(or lack thereof). I'll mention the enema if the dr doesn't bring
it up.

--- In crohns_n_colitis@yahoogroups.com, Candace McKinley
<candacem1210@y...> wrote:
> Hi Melissa
> Welcome to the group I'm Candace and also a newbie to
> the group. I'm 6months pregnant and started getting
> sick about 3months earlier having up to 30bowel
> movements a day and have lost 20lbs.
> After a colonoscopey and several stays in the
> hospital, I finally was diagnosed with inflamatory
> bowel diease, but will to wait till after I have the
> baby for further testing to see if I have Crohn's or
> Colitis. My doc put me on Asacol400mg 9 pills a day
> and Mesalamine 4gm enemas( which really have made the
> most difference).
> I have now gained back 5lbs and down to 5-7 bowel
> movements most days.
> I found a really great book that might help you,
> EATING RIGHT FOR A BAD GUT by Dr. James Scala.
> Its an awesome book! There was alot of foods making my
> symptoms worse like dairy( bad bloating) any fatty
> foods( even more frequent stools) and not cooking
> certain foods right, like beans and certain veggies
> can make you really sick with all the insoluable
> fiber but if you cook then down alot it breaks that
> down and way more tolerable.
> The great thing is now I'm doing better I'm able to
> tolerate more foods, like I can add some more fat to
> my diet and veggies but still having a big prob with
> dairy and fruit. It sucks it being summer and
> watermelon makes me so sick!
> Oh I have a question does Crohn's run in your
> family?
> Candace
>
>
>
> --- Melissa <princesa58@y...> wrote:
>
> > Hi Everyone - I finally got approved for the group!
> >
> > I've been seeing a GI since Jan. and have not yet
> > had relief. Here's a little bit of my story - just
> > wondering if anyone has had similar experiences or
> > any insight to offer.
> >
> > After talking to a new GI & him reviewing the test
> > results sent from the 1st GI i came away with
> > "you're very sick & as far as i can tell you have
> > crohns" apparently my bloodwork showed that i'm very
> > B12 deficient and anemic. so he gave me a B12 shot
> > and a rx for folic acid and told me to start a
> > centrum one a day. he also had me go for an upper GI
> > w/ small bowel follow thru which came back normal.
> > then monday i went for an EGD which was also normal.
> > from what he told my mom after the endoscopy (i was
> > still drugged) i guess he's doubting crohns now.
> > he's confused b/c im not responding to asacol (im on
> > 12 a day) and he's weening me off entocort b/c it
> > also doesn't seem to be helping. i told him that the
> > lower right side of my abdomen has this churning,
> > sucking, crampy feeling a lot of the time. maybe the
> > asacol is helping (i'm down to going like 3-6
> > times/day instead of 6-8 before i started the meds)
> > but i really don't feel good still or like i hope to
> > eventually. mornings are still
> > the worst for me, lots of times i'm up at 3 & 4 am
> > til it's til to go to work, going to the bathroom.
> > more bloodwork just came back & i'm still very B12
> > deficient so i'm going for another shot and i go for
> > a CT scan before i see the dr again on july 1st. i
> > am so beyond frustrated b/c i really want to feel
> > better. even the lomotil that was helping is not
> > helping like it used to. i have to keep taking more.
> > any ideas??
> >
> > Thanks!
> >
> >
> >
> > Melissa
> >
> >
> > ---------------------------------
> > Yahoo! Sports
> > Rekindle the Rivalries. Sign up for Fantasy
> Football
>
>
>
>
> ____________________________________________________
> Yahoo! Sports
> Rekindle the Rivalries. Sign up for Fantasy Football
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Tue Jun 28, 2005 3:51 pm

princesa58
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Forward
Message #4109 of 5061 |
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Hi Everyone - i finally got accepted to the board! :) Here's a little bit of my story - anyone have any insight or been thru the same things? I've been seeing...
Melissa
princesa58
Offline Send Email
Jun 27, 2005
3:37 pm

Hi Everyone - I finally got approved for the group! I've been seeing a GI since Jan. and have not yet had relief. Here's a little bit of my story - just...
Melissa
princesa58
Offline Send Email
Jun 27, 2005
4:16 pm

Hi Melissa Welcome to the group I'm Candace and also a newbie to the group. I'm 6months pregnant and started getting sick about 3months earlier having up to...
Candace McKinley
candacem1210
Offline Send Email
Jun 28, 2005
2:45 pm

An enema doesn't sound pleasant but at this point I'm pretty open to trying anything that will make me feel better. I'm on 12 asacol a day and am not noticing...
Melissa
princesa58
Offline Send Email
Jun 28, 2005
3:57 pm

My stomach feels completely the same way!! the asacol for me wasnt working on its own but when they added mesalamine 4gm enema, I have one I split in half for ...
Candace McKinley
candacem1210
Offline Send Email
Jun 28, 2005
2:50 pm
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