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crohns_n_colitis · This list is intended for those who suffer from the chronic illnesses, Crohn's Disease and Ulcerative Colitis. I hope to be abl
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Frustrated - Not Yet Diagnosed   Message List  
Reply | Forward Message #4108 of 5061 |
Re: [crohns_n_colitis] Frustrated - Not Yet Diagnosed


My stomach feels completely the same way!! the asacol
for me wasnt working on its own but when they added
mesalamine 4gm enema, I have one I split in half for
morning and night. Its made the most improvement took
about 2 wks and then dramatic change.
I know a enema sounds horrible but its the size of a
hair dye bottle and you split it in half lay down
about 30min then go about your day.
Candace
--- Melissa <princesa58@...> wrote:

> Hi Everyone - i finally got accepted to the board!
> :)
>
> Here's a little bit of my story - anyone have any
> insight or been
> thru the same things? I've been seeing a GI since
> Jan. and have not
> yet had relief. (I know it can take years to be
> diagnosed but i'm
> not that patient & i feel awful)
>
> After talking to a new GI & him reviewing the test
> results sent from
> the 1st GI i came away with "you're very sick & as
> far as i can tell
> you have crohns" apparently my bloodwork showed that
> i'm very B12
> deficient and anemic. so he gave me a B12 shot and a
> rx for folic
> acid and told me to start a centrum one a day. he
> also had me go for
> an upper GI w/ small bowel follow thru which came
> back normal. then
> monday i went for an EGD which was also normal. from
> what he told my
> mom after the endoscopy (i was still drugged) i
> guess he's doubting
> crohns now. he's confused b/c im not responding to
> asacol (im on 12
> a day) and he's weening me off entocort b/c it also
> doesn't seem to
> be helping. i told him that the lower right side of
> my abdomen has
> this churning, sucking, crampy feeling a lot of the
> time. maybe the
> asacol is helping (i'm down to going like 3-6
> times/day instead of 6-
> 8 before i started the meds) but i really don't feel
> good still or
> like i hope to eventually. mornings are still the
> worst for me, lots
> of times i'm up at 3 & 4 am til it's til to go to
> work, going to the
> bathroom. more bloodwork just came back & i'm still
> very B12
> deficient so i'm going for another shot and i go for
> a CT scan
> before i see the dr again on july 1st. i am so
> beyond frustrated b/c
> i really want to feel better. even the lomotil that
> was helping is
> not helping like it used to. i have to keep taking
> more. any ideas??
>
>
>
>


Pumpkin is due October 12th!



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Tue Jun 28, 2005 2:50 pm

candacem1210
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Forward
Message #4108 of 5061 |
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Hi Everyone - i finally got accepted to the board! :) Here's a little bit of my story - anyone have any insight or been thru the same things? I've been seeing...
Melissa
princesa58
Offline Send Email
Jun 27, 2005
3:37 pm

Hi Everyone - I finally got approved for the group! I've been seeing a GI since Jan. and have not yet had relief. Here's a little bit of my story - just...
Melissa
princesa58
Offline Send Email
Jun 27, 2005
4:16 pm

Hi Melissa Welcome to the group I'm Candace and also a newbie to the group. I'm 6months pregnant and started getting sick about 3months earlier having up to...
Candace McKinley
candacem1210
Offline Send Email
Jun 28, 2005
2:45 pm

An enema doesn't sound pleasant but at this point I'm pretty open to trying anything that will make me feel better. I'm on 12 asacol a day and am not noticing...
Melissa
princesa58
Offline Send Email
Jun 28, 2005
3:57 pm

My stomach feels completely the same way!! the asacol for me wasnt working on its own but when they added mesalamine 4gm enema, I have one I split in half for ...
Candace McKinley
candacem1210
Offline Send Email
Jun 28, 2005
2:50 pm
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