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crohns_n_colitis · This list is intended for those who suffer from the chronic illnesses, Crohn's Disease and Ulcerative Colitis. I hope to be abl
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Frustrated - Not Yet Diagnosed   Message List  
Reply | Forward Message #4107 of 5061 |
Re: [crohns_n_colitis] Frustrated - Not Yet Diagnosed

Hi Melissa
Welcome to the group I'm Candace and also a newbie to
the group. I'm 6months pregnant and started getting
sick about 3months earlier having up to 30bowel
movements a day and have lost 20lbs.
After a colonoscopey and several stays in the
hospital, I finally was diagnosed with inflamatory
bowel diease, but will to wait till after I have the
baby for further testing to see if I have Crohn's or
Colitis. My doc put me on Asacol400mg 9 pills a day
and Mesalamine 4gm enemas( which really have made the
most difference).
I have now gained back 5lbs and down to 5-7 bowel
movements most days.
I found a really great book that might help you,
EATING RIGHT FOR A BAD GUT by Dr. James Scala.
Its an awesome book! There was alot of foods making my
symptoms worse like dairy( bad bloating) any fatty
foods( even more frequent stools) and not cooking
certain foods right, like beans and certain veggies
can make you really sick with all the insoluable
fiber but if you cook then down alot it breaks that
down and way more tolerable.
The great thing is now I'm doing better I'm able to
tolerate more foods, like I can add some more fat to
my diet and veggies but still having a big prob with
dairy and fruit. It sucks it being summer and
watermelon makes me so sick!
Oh I have a question does Crohn's run in your
family?
Candace



--- Melissa <princesa58@...> wrote:

> Hi Everyone - I finally got approved for the group!
>
> I've been seeing a GI since Jan. and have not yet
> had relief. Here's a little bit of my story - just
> wondering if anyone has had similar experiences or
> any insight to offer.
>
> After talking to a new GI & him reviewing the test
> results sent from the 1st GI i came away with
> "you're very sick & as far as i can tell you have
> crohns" apparently my bloodwork showed that i'm very
> B12 deficient and anemic. so he gave me a B12 shot
> and a rx for folic acid and told me to start a
> centrum one a day. he also had me go for an upper GI
> w/ small bowel follow thru which came back normal.
> then monday i went for an EGD which was also normal.
> from what he told my mom after the endoscopy (i was
> still drugged) i guess he's doubting crohns now.
> he's confused b/c im not responding to asacol (im on
> 12 a day) and he's weening me off entocort b/c it
> also doesn't seem to be helping. i told him that the
> lower right side of my abdomen has this churning,
> sucking, crampy feeling a lot of the time. maybe the
> asacol is helping (i'm down to going like 3-6
> times/day instead of 6-8 before i started the meds)
> but i really don't feel good still or like i hope to
> eventually. mornings are still
> the worst for me, lots of times i'm up at 3 & 4 am
> til it's til to go to work, going to the bathroom.
> more bloodwork just came back & i'm still very B12
> deficient so i'm going for another shot and i go for
> a CT scan before i see the dr again on july 1st. i
> am so beyond frustrated b/c i really want to feel
> better. even the lomotil that was helping is not
> helping like it used to. i have to keep taking more.
> any ideas??
>
> Thanks!
>
>
>
> Melissa
>
>
> ---------------------------------
> Yahoo! Sports
> Rekindle the Rivalries. Sign up for Fantasy
Football




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Tue Jun 28, 2005 2:45 pm

candacem1210
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Forward
Message #4107 of 5061 |
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Hi Everyone - i finally got accepted to the board! :) Here's a little bit of my story - anyone have any insight or been thru the same things? I've been seeing...
Melissa
princesa58
Offline Send Email
Jun 27, 2005
3:37 pm

Hi Everyone - I finally got approved for the group! I've been seeing a GI since Jan. and have not yet had relief. Here's a little bit of my story - just...
Melissa
princesa58
Offline Send Email
Jun 27, 2005
4:16 pm

Hi Melissa Welcome to the group I'm Candace and also a newbie to the group. I'm 6months pregnant and started getting sick about 3months earlier having up to...
Candace McKinley
candacem1210
Offline Send Email
Jun 28, 2005
2:45 pm

An enema doesn't sound pleasant but at this point I'm pretty open to trying anything that will make me feel better. I'm on 12 asacol a day and am not noticing...
Melissa
princesa58
Offline Send Email
Jun 28, 2005
3:57 pm

My stomach feels completely the same way!! the asacol for me wasnt working on its own but when they added mesalamine 4gm enema, I have one I split in half for ...
Candace McKinley
candacem1210
Offline Send Email
Jun 28, 2005
2:50 pm
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