Hi Everyone - i finally got accepted to the board! :)
Here's a little bit of my story - anyone have any insight or been
thru the same things? I've been seeing a GI since Jan. and have not
yet had relief. (I know it can take years to be diagnosed but i'm
not that patient & i feel awful)
After talking to a new GI & him reviewing the test results sent from
the 1st GI i came away with "you're very sick & as far as i can tell
you have crohns" apparently my bloodwork showed that i'm very B12
deficient and anemic. so he gave me a B12 shot and a rx for folic
acid and told me to start a centrum one a day. he also had me go for
an upper GI w/ small bowel follow thru which came back normal. then
monday i went for an EGD which was also normal. from what he told my
mom after the endoscopy (i was still drugged) i guess he's doubting
crohns now. he's confused b/c im not responding to asacol (im on 12
a day) and he's weening me off entocort b/c it also doesn't seem to
be helping. i told him that the lower right side of my abdomen has
this churning, sucking, crampy feeling a lot of the time. maybe the
asacol is helping (i'm down to going like 3-6 times/day instead of 6-
8 before i started the meds) but i really don't feel good still or
like i hope to eventually. mornings are still the worst for me, lots
of times i'm up at 3 & 4 am til it's til to go to work, going to the
bathroom. more bloodwork just came back & i'm still very B12
deficient so i'm going for another shot and i go for a CT scan
before i see the dr again on july 1st. i am so beyond frustrated b/c
i really want to feel better. even the lomotil that was helping is
not helping like it used to. i have to keep taking more. any ideas??