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MM - Life Threatening Disease?   Message List  
Reply | Forward Message #2747 of 27755 |
Celebrity Publicity

Although I usually get strange reactions, I totally agree that Meniere's is a life threatening disease.  I also believe we need the right spokes person.  I work in the braodcasting media ad have been working (as I can) on researching celebrities that have MM (past and present) as well as national/international statistics.  If anyone has any information I can use in this endeavor, please forward it along.
 
Debbie
 
In my humble opinion Meniere's is absolutely a life threatening disease.
While possible to go months or years w/o an attack many of us do suffer every day.
 
It's a shame we don't have a celebrity sponsor. Unfortunately thats what it will probably take to give
MM the publicity it deserves.  That or God forbid a horrible accident being caused by someone having an
MM attack after years of being in remission.  Of course that is likely to become a witch hunt on us.
 
Excellent suggestion about the motorized wheel chair carts when shopping!  I was in Target just the
other day and thought about getting one but was afraid because I didn't "look disabled."
I would get funny looks. 
 
I think the vertigo I sometimes get in stores has something to do with the wideness of the aisles
and the uber bright flourescent lights.  It's kind of like when I was a little girl taking ballet and couldn't
pirouette in a straight line.  Those big stores make me feel like I have lost my self in space.
 
 
Patsy


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Tue Jun 6, 2006 6:13 am

dlbach1
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Message #2747 of 27755 |
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In my humble opinion Meniere's is absolutely a life threatening disease. While possible to go months or years w/o an attack many of us do suffer every day. ...
njprncss4216@...
patrizia_green
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May 31, 2006
4:41 am

So,why should you care if you get funny looks.You can't take care of another persons feelings anyway.And you don't owe anygody an excuse either.If you think a...
drcott
drcott2000
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May 31, 2006
12:02 pm

I have found that the flouresent light cause a problem because they pulsate, where a baseball hat has helped a great deal. Sharon drcott...
Sharon Modrzynski
roseofsharon...
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Jun 2, 2006
4:39 am

Although I usually get strange reactions, I totally agree that Meniere's is a life threatening disease. I also believe we need the right spokes person. I...
Debbie Hasselbach
dlbach1
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Jun 6, 2006
6:16 am

I know that Rush Limbaugh had his cochlear implant done at the House Ear Institute in Los Angeles,but I don't know of any celebrities with menieres disease.You...
drcott
drcott2000
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Jun 6, 2006
1:16 pm

Rush had autoimmune disease of the ear which stripped him of all his hearing in a matter of months. Yes, House Ear Clinic did a cochlear implant for him. He...
Penny Antine
pennyantine
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Jun 6, 2006
3:14 pm

I know I'm not in a position to be picky but I really wouldn't want to be associated with or represented by Rush Limbaugh. Patsy In a message dated 6/6/2006...
njprncss4216@...
patrizia_green
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Jun 6, 2006
5:19 pm

I'll second that. - Penny njprncss4216@... wrote: I know I'm not in a position to be picky but I really wouldn't want to be associated with or...
Penny Antine
pennyantine
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Jun 6, 2006
5:21 pm

Add me to that list. Nancy njprncss4216@... wrote: I know I'm not in a position to be picky but I really wouldn't want to be associated with...
Nancy Willhite
willhiten
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Jun 6, 2006
6:04 pm

Hi Patsy, If the motorized cart might help you, go ahead and get it. I have used a cane since November. Before that I had my daughter push me in the regular...
The Baschals
no.1bowlingmom
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May 31, 2006
1:10 pm
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