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Reply | Forward Message #8 of 285 |
Re: Connective Tissue Issues

They know I have the connective tissue disease
most like Lupus - but, really that still gives me no
name. How many different kinds are there? I had no clue
there were different kinds. Thanks.<br>PrayProv




Tue Feb 27, 2001 4:10 pm

prayprov31
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Message #8 of 285 |
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Hi everyone. Well I have some good and scary news. Carol, you already know so bear with me. I am pregnant... 7 weeks today. I am very high risk becuase I have ...
chase1295
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Feb 25, 2001
8:10 pm

They know I have the connective tissue disease most like Lupus - but, really that still gives me no name. How many different kinds are there? I had no clue ...
prayprov31
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Feb 27, 2001
4:10 pm

Prayprov,<br><br>There are many, many different kinds of connective tissue disorders. They do not know what kind I have either. The most common ones are Marfan...
chase1295
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Feb 27, 2001
6:05 pm

Is there anyone out there that ios in the Military and has dianosed EDS/Connective Tissue disorder? Just curious, becusae currently I'm an Active Duty Air ...
yodaaz99
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Mar 11, 2001
8:16 pm

Hi,I am sooo glad I came across your club.I am diagnosed with mixed connective tissue disease.I also have fibromyalgia,bi-polar,yada-yada-yada.Can anyone tell...
thisroos4you
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Mar 31, 2001
1:26 am

Welcome Kim,<br><br>I don't really know that much about mixed connective tissue disease. They do not know what kind of connective tissue disease I have and I...
chase1295
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Mar 31, 2001
10:48 pm

Hallo all,<br>I have been diagnosed with connective tissue disorder about 3 months ago and am still coming to terms with just what this means. It is not lupus,...
rrobenn
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Apr 30, 2001
8:03 am

Hi Rosemary!<br><br>I am new to this board and things seem pretty dead around here lately! Maybe we are all in to much pain to type???? I have Ehlers-Danlos ...
akhddevo
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May 1, 2001
12:04 am

I know Kristi, it has been dead. I really do not know that much about connective tissue diseases. I was diagnosed with cystic medial necrosis, which is a form...
chase1295
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May 1, 2001
5:28 pm

Welcome Rosemary,<br><br>You, of course, are excused from roll all, unless you want to tell us more about yourself.. like for instance, if you prefer boxers or...
chase1295
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May 1, 2001
5:32 pm

Hi JoAnna!<br><br>Okay here goes. I am Kristi, I am 26 years old from Springfield Illinois, I have been married for 6 years to my wonderful husband Aaron. We...
akhddevo
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May 2, 2001
12:52 pm

Kristi,<br>Wow, you really are dealing with a lot right now, aren't you? I know how hard it is to lose a child, even early in pregnancy, so my thoughts are...
chase1295
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May 2, 2001
6:41 pm

Hello Everyone!<br>Reponding to the Roll-Call: My name is Carol Torp. I'm married with two children (Kirsten, 6 and Jared 2, almost 3). I live in Cincinnati, ...
caroltorp
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May 3, 2001
2:02 am

Hi JoAnna,<br>Looking back on my pregnancys, I do remember some things. With Hunter, I had a lot of problems moving around towards the end, I remember what I...
akhddevo
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May 3, 2001
6:01 pm

Hi everyone,<br>Just to add a bit about me. I live in Melbourne, Australia with my husband, am 50 years old, have 2 sons, Dougall 26 and Yestin 21 and 1 ...
rrobenn
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May 4, 2001
8:57 am

Hey,<br> All....Finally some action. Unfortunately we meet like this. I was recently (Jan '01) with Elhers-Danlos, they think type III, but as everyone knows...
yodaaz99
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May 17, 2001
2:25 am

Hi, my name is sassychemeleon and I am new here. I was mis-diagnosed at age 12 with JRA and re-diagnosed at 15 with MCTD (I am now 25). I have gathered a lot...
sassy_chemeleon
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Jul 11, 2001
4:31 am

Hi Sassy and welcome. What is MCTD? Multiple Connective tissue disease?<br>JoAnna...
chase1295
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Jul 11, 2001
6:04 am

And what is JTA?...
chase1295
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Jul 11, 2001
6:05 am

&lt;EOM&gt;...
chase1295
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Jul 11, 2001
6:06 am

Thank you for such a warm welcome! MCTD is mixed connective Tissue Disease and JRA is Jr Rheumatoid Arthritis. (My MCTD has polymoyositis, vasculitis, sojrens ...
sassy_chemeleon
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Jul 11, 2001
2:47 pm

When I was diagnosed at age 12, they told me that I had most likely had it all my life. I have done some research on this disease, and would love to talk to...
sassy_chemeleon
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Jul 11, 2001
2:57 pm

Kim;<br><br>I attatched some links to sites that should be of some help to you! Hope the info helps! I know you feel right now like your life is over, but it ...
sassy_chemeleon
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Jul 11, 2001
3:00 pm

Dear JoAnna;<br>Both are classified under MCTD....so those sites I posted could be of some use for you....
sassy_chemeleon
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Jul 11, 2001
3:02 pm

Dear Sassy,<br><br>Thank you so much for posting all of those informative links. I looked at all of them and found them very interesting.<br>I am 26 weeks ...
chase1295
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Jul 13, 2001
6:29 am

Sassy,<br>You and your husband look so happy. I love the picture of you and your cat. I am a cat lover myself. I have a siamese and a white fat ...
chase1295
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Jul 13, 2001
6:33 am

Dear JoAnna;<br>Thank you! The picture of my cat, Precious was taken 2 years ago - she was 3 years old. Unfortunatly, this past Christmas, she passed away, she...
sassy_chemeleon
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Jul 13, 2001
7:20 pm

You're welcome for the links! I guess I have been diagnosed for so long now that every little thing I find about this disease I mark and make a mental note of....
sassy_chemeleon
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Jul 13, 2001
7:26 pm

This is my first time connecting to this link, I found it while trying to find more information on this disease. I was diagnosed in March of this year. In July...
oneforty25
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Aug 17, 2003
3:39 pm

Found some more links and added them to the Links page .......
sassy_chemeleon
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Jul 14, 2001
12:03 am
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