Hi Jennifer.......

I never make it to the group boards, so forgive me if I ask questions
you've already answered. How old? How does the disease affect you?
Do you have a "named" connective tissue disease?

Maybe we can discuss what seems to help, what seems to hinder this
strange condition we share.

What area of the USA do you live in?

You're lucky massage gives you some relief. I've not been able to
stand touch for many years. Most of the time my skin is like someone
is throwing thousands of pins at all times. I ache to have my body
deep tissue rub downed......but even water can be torture.

Sincerely,
Brenda
--- Jennifer Shook <jensellsokaloosaisland@...> wrote:
> Hello Everyone! I have just joined this group and I need to have
> someone to talk to about all of the problems I have; although I know
> that there is always someone out there (many out there), that are
> much worse off than me. I tell myself "at least you are not
> homeless, in a wheelchair, obtaining nourishment from a tube,
> unemployed, without health insurance (regardless of how much they
> seem to screw me over and try to get out of paying)"; although I am
> starting to wonder if the "don't giving" is doing more harm than
> good. My Pain Management DR required me to go see a Pain
> Psychologist to make sure I would not abuse my pain medication and
> the Psychologist told me that I need to admit to myself that I have
> problems b/c I am in denial. Sometimes I feel like someone with a
> substance abuse problem, at least that is the way some people treat
> me, as if I can control what this disease does to me. I wish that
> good nutrition and exercise would cure all of my problems, but the
> almost
> unbearable truth, as you and I know, is that there seems to be very
> little that we can do to help this condition other than take
> medication to help keep us comfortable. I have found that massage
> does help alleviate some of the pain, but there again it only cures
> the symptoms and not the disease.
> Sorry for my long windedness but this venting seems to help because I
> feel like someone is listening and really understands. I welcome all
> advise and if you have found something that works please let all of
> us know!
> Thank you
> jen
>
>
>
>
> Jennifer Shook
> (850)496.2550
>
>
> ---------------------------------
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> [Non-text portions of this message have been removed]
>
>


=====

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