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Connective Tissue Issues   Message List  
Reply | Forward Message #62 of 284 |
Re: thanks for the links

This is my first time connecting to this link, I found it while
trying to find more information on this disease. I was diagnosed in
March of this year. In July 2002 I had foot surgery, while recovering
I started to experience lots of foot and leg pain. I progressed very
quickly to sever chest pains, head aches, hands shoulders neck and
other things were going on.

I am taking Plaquenil and Vioxx at this time. Sometimes I feel my
doctor does not understanding what I am say to her. The pain is
different almost everyday. Sometimes when I get tired my chest hurt
so bad I can only lay down. They give me nothing for pain. I do work
as a nurning assistant but I don't know how long I will be able to do
this kind of work.

I did read that maybe magnesium and zinc may help. I would appriciate
and information anyone have. I am 47 years old and live alone. One
last thing I had to cut my hair off because my hair broke off so
badly and it appeared I was going to have bald spots.






Sun Aug 17, 2003 3:39 pm

oneforty25
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Message #62 of 284 |
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You're welcome for the links! I guess I have been diagnosed for so long now that every little thing I find about this disease I mark and make a mental note of....
sassy_chemeleon
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Jul 13, 2001
7:26 pm

This is my first time connecting to this link, I found it while trying to find more information on this disease. I was diagnosed in March of this year. In July...
oneforty25
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Aug 17, 2003
3:39 pm

Found some more links and added them to the Links page .......
sassy_chemeleon
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Jul 14, 2001
12:03 am

Thank you Sassy. You are now an offical founder!...
chase1295
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Jul 14, 2001
11:22 pm

Sassy,<br>I am sorry you lost Precious, I know how hard it is to lose a cat that is like a member of the family. You were sure a cute little girl! Thanks for...
chase1295
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Jul 14, 2001
11:28 pm

Dear "Yoda",<br>Although I am not diagnosed with EDS, nor am I in the military, I found a few sites that might be helpful for you. They are listed on the links...
sassy_chemeleon
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Jul 15, 2001
4:12 am

My Story<br><br>I thought that I should probably tell you all a little bit about myself so, here it goes.....<br> <br>When I was 12 years old, I lived with my...
sassy_chemeleon
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Jul 15, 2001
4:28 am

Dear JoAnna;<br>I am sad too that we had to put her down, but it really was the only humane thing to do. They said even if they drained the lung, that there...
sassy_chemeleon
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Jul 15, 2001
4:34 am

Thank you JoAnna! <br>:)...
sassy_chemeleon
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Jul 15, 2001
4:35 am

I just thought I would check in and see how everyone is doing.....<br><br>How are you all doing? Myself I am in the midst of a chaotic tornado of activity...
sassy_chemeleon
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Jul 22, 2001
2:37 pm

Welcome all new members!...
sassy_chemeleon
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Aug 14, 2001
12:52 am

Hi, my name is shilo. I'm from Portland Oregon.<br>I have an 8 yr. old daughter who has stumped every specialist across the country.<br>We were thought to have...
shilor1218
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Oct 6, 2001
4:32 pm

... abnormalities<br><br>camptodactyl ... phalanges are ... chondrocytes<br>stiff ... Weil Marchesani syndrome.. Have your Dr. look into this syndrome.. Also...
relay38
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Dec 5, 2002
3:30 am

Hey all! I've designed a new website about undifferentiated connective tissue disease. It also has info on fibroymalgia, hypothyroidism & autoimmunity. *mainly...
blueeyes28906
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Dec 12, 2001
7:27 pm

Hi all, <br><br>My name is Kristen and I'm an RN in Northern NY. Kinda bummed out as my UCTD (Atypical Lupus Type) is kicking in again and I am fatigued to no...
chandelierinpieces
chandelierin...
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Feb 22, 2002
12:31 am

Hi Kristen - I have a question for you. What is Atypical Lupus Type UCTD? I haven't heard of that before. When I was diagnosed they just said UCTD. Are...
blueeyes28906
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Mar 8, 2002
1:36 am
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