You're welcome for the links! I guess I have been
diagnosed for so long now that every little thing I find
about this disease I mark and make a mental note of. If
I don't understand parts of the info, I usually
have to ask my better half, Ryan what it means. I
think it is important for me to share the information,
because there is so little of it out there. <br><br>As
for your offer, I am both flabbergasted, amazed and
most of all, flattered! I do have some spare time on
my hands, and I usually check my email and sites
daily so, if you'd like a hand, I would be glad to
help. <br><br>Hope you're having a good day! <br>Sassy
Dear JoAnna;<br>Thank you! The picture of my cat, Precious was taken 2 years ago - she was 3 years old. Unfortunatly, this past Christmas, she passed away, she...
You're welcome for the links! I guess I have been diagnosed for so long now that every little thing I find about this disease I mark and make a mental note of....
This is my first time connecting to this link, I found it while trying to find more information on this disease. I was diagnosed in March of this year. In July...
Sassy,<br>I am sorry you lost Precious, I know how hard it is to lose a cat that is like a member of the family. You were sure a cute little girl! Thanks for...
Dear "Yoda",<br>Although I am not diagnosed with EDS, nor am I in the military, I found a few sites that might be helpful for you. They are listed on the links...
My Story<br><br>I thought that I should probably tell you all a little bit about myself so, here it goes.....<br> <br>When I was 12 years old, I lived with my...
Dear JoAnna;<br>I am sad too that we had to put her down, but it really was the only humane thing to do. They said even if they drained the lung, that there...
I just thought I would check in and see how everyone is doing.....<br><br>How are you all doing? Myself I am in the midst of a chaotic tornado of activity...
Hi, my name is shilo. I'm from Portland Oregon.<br>I have an 8 yr. old daughter who has stumped every specialist across the country.<br>We were thought to have...
... abnormalities<br><br>camptodactyl ... phalanges are ... chondrocytes<br>stiff ... Weil Marchesani syndrome.. Have your Dr. look into this syndrome.. Also...
Hey all! I've designed a new website about undifferentiated connective tissue disease. It also has info on fibroymalgia, hypothyroidism & autoimmunity. *mainly...
Hi all, <br><br>My name is Kristen and I'm an RN in Northern NY. Kinda bummed out as my UCTD (Atypical Lupus Type) is kicking in again and I am fatigued to no...
Hi Kristen - I have a question for you. What is Atypical Lupus Type UCTD? I haven't heard of that before. When I was diagnosed they just said UCTD. Are...