Dear Sassy,<br><br>Thank you so much for posting
all of those informative links. I looked at all of
them and found them very interesting.<br>I am 26 weeks
pregnant against the advice of my Dr.s and haven't been
able to concentrate on much else but getting through
the pregancy... they are having a hard time
controlling my bloodpressure. This club hasn't been that
active, and it is my fault as I never post and hardly
check in. I was wondering if you would like to become a
co-founder. You seem to have a wealth of info and maybe you
might have some ideas of how to get the club more
active. Until this pregnancy is over, and probably for a
while after that, I won't have the energy to do it.
Don't feel pressured to say yes.. just say no if you do
not want to do it, or don't have the energy and time
yourself. I will understand. I feel that this club deserves
more than I have been giving it. Thanks again for the
links.<br>JoAnna
Dear Sassy,<br><br>Thank you so much for posting all of those informative links. I looked at all of them and found them very interesting.<br>I am 26 weeks ...
Dear JoAnna;<br>Thank you! The picture of my cat, Precious was taken 2 years ago - she was 3 years old. Unfortunatly, this past Christmas, she passed away, she...
You're welcome for the links! I guess I have been diagnosed for so long now that every little thing I find about this disease I mark and make a mental note of....
This is my first time connecting to this link, I found it while trying to find more information on this disease. I was diagnosed in March of this year. In July...
Sassy,<br>I am sorry you lost Precious, I know how hard it is to lose a cat that is like a member of the family. You were sure a cute little girl! Thanks for...
Dear "Yoda",<br>Although I am not diagnosed with EDS, nor am I in the military, I found a few sites that might be helpful for you. They are listed on the links...
My Story<br><br>I thought that I should probably tell you all a little bit about myself so, here it goes.....<br> <br>When I was 12 years old, I lived with my...
Dear JoAnna;<br>I am sad too that we had to put her down, but it really was the only humane thing to do. They said even if they drained the lung, that there...
I just thought I would check in and see how everyone is doing.....<br><br>How are you all doing? Myself I am in the midst of a chaotic tornado of activity...
Hi, my name is shilo. I'm from Portland Oregon.<br>I have an 8 yr. old daughter who has stumped every specialist across the country.<br>We were thought to have...
... abnormalities<br><br>camptodactyl ... phalanges are ... chondrocytes<br>stiff ... Weil Marchesani syndrome.. Have your Dr. look into this syndrome.. Also...
Hey all! I've designed a new website about undifferentiated connective tissue disease. It also has info on fibroymalgia, hypothyroidism & autoimmunity. *mainly...
Hi all, <br><br>My name is Kristen and I'm an RN in Northern NY. Kinda bummed out as my UCTD (Atypical Lupus Type) is kicking in again and I am fatigued to no...
Hi Kristen - I have a question for you. What is Atypical Lupus Type UCTD? I haven't heard of that before. When I was diagnosed they just said UCTD. Are...