When I was diagnosed at age 12, they told me that I had most likely had it all
my life. I have done some research on this disease, and would love to talk to
you all...
Thank you for such a warm welcome! MCTD is mixed connective Tissue Disease and JRA is Jr Rheumatoid Arthritis. (My MCTD has polymoyositis, vasculitis, sojrens ...
When I was diagnosed at age 12, they told me that I had most likely had it all my life. I have done some research on this disease, and would love to talk to...
Kim;<br><br>I attatched some links to sites that should be of some help to you! Hope the info helps! I know you feel right now like your life is over, but it ...
Dear Sassy,<br><br>Thank you so much for posting all of those informative links. I looked at all of them and found them very interesting.<br>I am 26 weeks ...
Dear JoAnna;<br>Thank you! The picture of my cat, Precious was taken 2 years ago - she was 3 years old. Unfortunatly, this past Christmas, she passed away, she...
You're welcome for the links! I guess I have been diagnosed for so long now that every little thing I find about this disease I mark and make a mental note of....
This is my first time connecting to this link, I found it while trying to find more information on this disease. I was diagnosed in March of this year. In July...
Sassy,<br>I am sorry you lost Precious, I know how hard it is to lose a cat that is like a member of the family. You were sure a cute little girl! Thanks for...
Dear "Yoda",<br>Although I am not diagnosed with EDS, nor am I in the military, I found a few sites that might be helpful for you. They are listed on the links...
My Story<br><br>I thought that I should probably tell you all a little bit about myself so, here it goes.....<br> <br>When I was 12 years old, I lived with my...
Dear JoAnna;<br>I am sad too that we had to put her down, but it really was the only humane thing to do. They said even if they drained the lung, that there...
I just thought I would check in and see how everyone is doing.....<br><br>How are you all doing? Myself I am in the midst of a chaotic tornado of activity...
Hi, my name is shilo. I'm from Portland Oregon.<br>I have an 8 yr. old daughter who has stumped every specialist across the country.<br>We were thought to have...
... abnormalities<br><br>camptodactyl ... phalanges are ... chondrocytes<br>stiff ... Weil Marchesani syndrome.. Have your Dr. look into this syndrome.. Also...
Hey all! I've designed a new website about undifferentiated connective tissue disease. It also has info on fibroymalgia, hypothyroidism & autoimmunity. *mainly...
Hi all, <br><br>My name is Kristen and I'm an RN in Northern NY. Kinda bummed out as my UCTD (Atypical Lupus Type) is kicking in again and I am fatigued to no...
Hi Kristen - I have a question for you. What is Atypical Lupus Type UCTD? I haven't heard of that before. When I was diagnosed they just said UCTD. Are...
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