Hi JoAnna,<br>Looking back on my pregnancys, I do
remember some things. With Hunter, I had a lot of problems
moving around towards the end, I remember what I know
now was dislocating ribs, I couldn't even walk to the
bathroom near the end. I spent a lot of time on bedrest
with both pregnancies because they thought that I had
a risk of premature labor. It seems that it
intensified my pain being pregnant. I had a d&c following
Dakota's birth due to hemmorhaging. I had difficulty in
the actual birthing, but I don't know if that was
because of EDS or not. Hunter was an induced birth 3
weeks before my due date, but he weighed 9 lbs at
birth. Dakota was my runt weighing in at 8.5 lbs induced
a week early. I do remember that the epidurals did
not take properly either time and I still had full
sensation. I know now that that is from EDS, the resistance
to anesthesia. (Lesson to all girls out there with
EDS, save your money the epidurals wont work
anyway!)<br><br>Great to talk to you,<br>Kristi
Hello Everyone!<br>Reponding to the Roll-Call: My name is Carol Torp. I'm married with two children (Kirsten, 6 and Jared 2, almost 3). I live in Cincinnati, ...
Hi JoAnna,<br>Looking back on my pregnancys, I do remember some things. With Hunter, I had a lot of problems moving around towards the end, I remember what I...
Hi everyone,<br>Just to add a bit about me. I live in Melbourne, Australia with my husband, am 50 years old, have 2 sons, Dougall 26 and Yestin 21 and 1 ...
Hey,<br> All....Finally some action. Unfortunately we meet like this. I was recently (Jan '01) with Elhers-Danlos, they think type III, but as everyone knows...
Hi, my name is sassychemeleon and I am new here. I was mis-diagnosed at age 12 with JRA and re-diagnosed at 15 with MCTD (I am now 25). I have gathered a lot...
Thank you for such a warm welcome! MCTD is mixed connective Tissue Disease and JRA is Jr Rheumatoid Arthritis. (My MCTD has polymoyositis, vasculitis, sojrens ...
When I was diagnosed at age 12, they told me that I had most likely had it all my life. I have done some research on this disease, and would love to talk to...
Kim;<br><br>I attatched some links to sites that should be of some help to you! Hope the info helps! I know you feel right now like your life is over, but it ...
Dear Sassy,<br><br>Thank you so much for posting all of those informative links. I looked at all of them and found them very interesting.<br>I am 26 weeks ...
Dear JoAnna;<br>Thank you! The picture of my cat, Precious was taken 2 years ago - she was 3 years old. Unfortunatly, this past Christmas, she passed away, she...
You're welcome for the links! I guess I have been diagnosed for so long now that every little thing I find about this disease I mark and make a mental note of....
This is my first time connecting to this link, I found it while trying to find more information on this disease. I was diagnosed in March of this year. In July...
Sassy,<br>I am sorry you lost Precious, I know how hard it is to lose a cat that is like a member of the family. You were sure a cute little girl! Thanks for...
Dear "Yoda",<br>Although I am not diagnosed with EDS, nor am I in the military, I found a few sites that might be helpful for you. They are listed on the links...
My Story<br><br>I thought that I should probably tell you all a little bit about myself so, here it goes.....<br> <br>When I was 12 years old, I lived with my...
Dear JoAnna;<br>I am sad too that we had to put her down, but it really was the only humane thing to do. They said even if they drained the lung, that there...
I just thought I would check in and see how everyone is doing.....<br><br>How are you all doing? Myself I am in the midst of a chaotic tornado of activity...
Hi, my name is shilo. I'm from Portland Oregon.<br>I have an 8 yr. old daughter who has stumped every specialist across the country.<br>We were thought to have...
... abnormalities<br><br>camptodactyl ... phalanges are ... chondrocytes<br>stiff ... Weil Marchesani syndrome.. Have your Dr. look into this syndrome.. Also...
Hey all! I've designed a new website about undifferentiated connective tissue disease. It also has info on fibroymalgia, hypothyroidism & autoimmunity. *mainly...
Hi all, <br><br>My name is Kristen and I'm an RN in Northern NY. Kinda bummed out as my UCTD (Atypical Lupus Type) is kicking in again and I am fatigued to no...
Having problems with message search?
Fill out this form to ensure your group is one of the first to be migrated to the new message search system.
Send Email
