Kristi,<br>Wow, you really are dealing with a lot
right now, aren't you? I know how hard it is to lose a
child, even early in pregnancy, so my thoughts are with
you. I love the names Dakota and Hunter. Did you have
any problems in those pregnancies? I realize that you
didn't know you had EDS than, but looking back on them
did you have any problems that could have been a
result of having eds? I have mitral valve prolapse as
well, and I am on Toprol and remeron.<br>Thanks for
sharing about yourself.<br>JoAnna
Hi JoAnna!<br><br>Okay here goes. I am Kristi, I am 26 years old from Springfield Illinois, I have been married for 6 years to my wonderful husband Aaron. We...
Kristi,<br>Wow, you really are dealing with a lot right now, aren't you? I know how hard it is to lose a child, even early in pregnancy, so my thoughts are...
Hello Everyone!<br>Reponding to the Roll-Call: My name is Carol Torp. I'm married with two children (Kirsten, 6 and Jared 2, almost 3). I live in Cincinnati, ...
Hi JoAnna,<br>Looking back on my pregnancys, I do remember some things. With Hunter, I had a lot of problems moving around towards the end, I remember what I...
Hi everyone,<br>Just to add a bit about me. I live in Melbourne, Australia with my husband, am 50 years old, have 2 sons, Dougall 26 and Yestin 21 and 1 ...
Hey,<br> All....Finally some action. Unfortunately we meet like this. I was recently (Jan '01) with Elhers-Danlos, they think type III, but as everyone knows...
Hi, my name is sassychemeleon and I am new here. I was mis-diagnosed at age 12 with JRA and re-diagnosed at 15 with MCTD (I am now 25). I have gathered a lot...
Thank you for such a warm welcome! MCTD is mixed connective Tissue Disease and JRA is Jr Rheumatoid Arthritis. (My MCTD has polymoyositis, vasculitis, sojrens ...
When I was diagnosed at age 12, they told me that I had most likely had it all my life. I have done some research on this disease, and would love to talk to...
Kim;<br><br>I attatched some links to sites that should be of some help to you! Hope the info helps! I know you feel right now like your life is over, but it ...
Dear Sassy,<br><br>Thank you so much for posting all of those informative links. I looked at all of them and found them very interesting.<br>I am 26 weeks ...
Dear JoAnna;<br>Thank you! The picture of my cat, Precious was taken 2 years ago - she was 3 years old. Unfortunatly, this past Christmas, she passed away, she...
You're welcome for the links! I guess I have been diagnosed for so long now that every little thing I find about this disease I mark and make a mental note of....
This is my first time connecting to this link, I found it while trying to find more information on this disease. I was diagnosed in March of this year. In July...
Sassy,<br>I am sorry you lost Precious, I know how hard it is to lose a cat that is like a member of the family. You were sure a cute little girl! Thanks for...
Dear "Yoda",<br>Although I am not diagnosed with EDS, nor am I in the military, I found a few sites that might be helpful for you. They are listed on the links...
My Story<br><br>I thought that I should probably tell you all a little bit about myself so, here it goes.....<br> <br>When I was 12 years old, I lived with my...
Dear JoAnna;<br>I am sad too that we had to put her down, but it really was the only humane thing to do. They said even if they drained the lung, that there...
I just thought I would check in and see how everyone is doing.....<br><br>How are you all doing? Myself I am in the midst of a chaotic tornado of activity...
Hi, my name is shilo. I'm from Portland Oregon.<br>I have an 8 yr. old daughter who has stumped every specialist across the country.<br>We were thought to have...
... abnormalities<br><br>camptodactyl ... phalanges are ... chondrocytes<br>stiff ... Weil Marchesani syndrome.. Have your Dr. look into this syndrome.. Also...
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