Hi JoAnna!<br><br>Okay here goes. I am Kristi, I
am 26 years old from Springfield Illinois, I have
been married for 6 years to my wonderful husband
Aaron. We have 2 sons, Hunter 5, and Dakota 3. I was
diagnosed with Ehlers-Danlos syndrome in January,
originally we thought that it was the hyperflexibility type
but I had a biopsy taken and I haven't yet received
the results from that test, I suspect that it will
show that I have the classical type. I believe that my
mother also has EDS, although she has never been
formally diagnosed. I have been on short term disability
leave from work since March, trying to come to terms
with the double whammy that I received in January,
losing our third child at 8 weeks pregnant and being
diagnosed with EDS one week later. <br>My symptoms at the
moment include, back and neck and joint pain,
hyperflexibility in all joints, dislocating left hip, subluxating
vertebrae in back and neck, tumors on feet, mitral valve
prolapse, depression, and fatigue.<br><br>My treatments
right now are, a torso brace, silver ring splints for
all finger joints (if we can ever get them fitted
properly), foot orthotics, medications are celebrex,
flexeril, paxil, topical is salonpas muscle mousse (great
stuff!)<br><br>I would be happy to answer any questions that I
know the answers to!
(hehe)<br><br>Kristi<br><br>PS> Congratulations on your little one JoAnna!
Pregnancy is great isn't it! Wishing you a happy and
healthy pregnancy!
Welcome Rosemary,<br><br>You, of course, are excused from roll all, unless you want to tell us more about yourself.. like for instance, if you prefer boxers or...
Hi JoAnna!<br><br>Okay here goes. I am Kristi, I am 26 years old from Springfield Illinois, I have been married for 6 years to my wonderful husband Aaron. We...
Kristi,<br>Wow, you really are dealing with a lot right now, aren't you? I know how hard it is to lose a child, even early in pregnancy, so my thoughts are...
Hello Everyone!<br>Reponding to the Roll-Call: My name is Carol Torp. I'm married with two children (Kirsten, 6 and Jared 2, almost 3). I live in Cincinnati, ...
Hi JoAnna,<br>Looking back on my pregnancys, I do remember some things. With Hunter, I had a lot of problems moving around towards the end, I remember what I...
Hi everyone,<br>Just to add a bit about me. I live in Melbourne, Australia with my husband, am 50 years old, have 2 sons, Dougall 26 and Yestin 21 and 1 ...
Hey,<br> All....Finally some action. Unfortunately we meet like this. I was recently (Jan '01) with Elhers-Danlos, they think type III, but as everyone knows...
Hi, my name is sassychemeleon and I am new here. I was mis-diagnosed at age 12 with JRA and re-diagnosed at 15 with MCTD (I am now 25). I have gathered a lot...
Thank you for such a warm welcome! MCTD is mixed connective Tissue Disease and JRA is Jr Rheumatoid Arthritis. (My MCTD has polymoyositis, vasculitis, sojrens ...
When I was diagnosed at age 12, they told me that I had most likely had it all my life. I have done some research on this disease, and would love to talk to...
Kim;<br><br>I attatched some links to sites that should be of some help to you! Hope the info helps! I know you feel right now like your life is over, but it ...
Dear Sassy,<br><br>Thank you so much for posting all of those informative links. I looked at all of them and found them very interesting.<br>I am 26 weeks ...
Dear JoAnna;<br>Thank you! The picture of my cat, Precious was taken 2 years ago - she was 3 years old. Unfortunatly, this past Christmas, she passed away, she...
You're welcome for the links! I guess I have been diagnosed for so long now that every little thing I find about this disease I mark and make a mental note of....
This is my first time connecting to this link, I found it while trying to find more information on this disease. I was diagnosed in March of this year. In July...
Sassy,<br>I am sorry you lost Precious, I know how hard it is to lose a cat that is like a member of the family. You were sure a cute little girl! Thanks for...
Dear "Yoda",<br>Although I am not diagnosed with EDS, nor am I in the military, I found a few sites that might be helpful for you. They are listed on the links...
My Story<br><br>I thought that I should probably tell you all a little bit about myself so, here it goes.....<br> <br>When I was 12 years old, I lived with my...
Dear JoAnna;<br>I am sad too that we had to put her down, but it really was the only humane thing to do. They said even if they drained the lung, that there...
I just thought I would check in and see how everyone is doing.....<br><br>How are you all doing? Myself I am in the midst of a chaotic tornado of activity...
Hi, my name is shilo. I'm from Portland Oregon.<br>I have an 8 yr. old daughter who has stumped every specialist across the country.<br>We were thought to have...