I know Kristi, it has been dead. I really do not
know that much about connective tissue diseases. I was
diagnosed with cystic medial necrosis, which is a form of
conncetive tissue weakness, when they repaired my aorta and
sent off a sample to test. I guess I formed this site
hoping that someone would come across it that would be
able to answer my questions, as so little info is
available on the net. So far a lot of people with the same
questions have joined and as far as I am concerned the more
the merrier. Now if we could just find something to
talk about! LOL<br>I do not have any physical symptoms
of connective tissue disease, but I empathize with
those of you with enlher danlos and lupus that are
feeling symptoms. <br>I am through my first trimester, in
week 16 and I am having a boy! SO far so good, but I
have been told many, many times that I might not
survive this pregnancy due to my vascular problems, so I
am really practicing positive thinking a lot lately.
I felt Griffin move last night. Wow... what an
absolutley indescribable feeling. Now that I am off topic I
should go.. but hey I wrote something!! Why doesnt'
everybody tell us a little about themselves, how long they
have known about their connective tissue disorder and
how they found out... in other words lets do a roll
call!! Let's gets things jumpin' in this
joint.<br>JoAnna