Hi Rosemary!<br><br>I am new to this board and
things seem pretty dead around here lately! Maybe we are
all in to much pain to type???? I have Ehlers-Danlos
syndrome. Do you have any other symptoms? What did they
tell you your diagnosis was or have they even
diagnosed you yet? I know that EDS has several names and
that is why I wondered if this was what you had. I
would be happy to give you advice or ideas on pain
control if I can help. I try it all and sort out what
works. My mother also has EDS and between myself and
her, we try all that we can. <br>Good luck, <br>Kristi
Hallo all,<br>I have been diagnosed with connective tissue disorder about 3 months ago and am still coming to terms with just what this means. It is not lupus,...
Hi Rosemary!<br><br>I am new to this board and things seem pretty dead around here lately! Maybe we are all in to much pain to type???? I have Ehlers-Danlos ...
I know Kristi, it has been dead. I really do not know that much about connective tissue diseases. I was diagnosed with cystic medial necrosis, which is a form...
Welcome Rosemary,<br><br>You, of course, are excused from roll all, unless you want to tell us more about yourself.. like for instance, if you prefer boxers or...
Hi JoAnna!<br><br>Okay here goes. I am Kristi, I am 26 years old from Springfield Illinois, I have been married for 6 years to my wonderful husband Aaron. We...
Kristi,<br>Wow, you really are dealing with a lot right now, aren't you? I know how hard it is to lose a child, even early in pregnancy, so my thoughts are...
Hello Everyone!<br>Reponding to the Roll-Call: My name is Carol Torp. I'm married with two children (Kirsten, 6 and Jared 2, almost 3). I live in Cincinnati, ...
Hi JoAnna,<br>Looking back on my pregnancys, I do remember some things. With Hunter, I had a lot of problems moving around towards the end, I remember what I...
Hi everyone,<br>Just to add a bit about me. I live in Melbourne, Australia with my husband, am 50 years old, have 2 sons, Dougall 26 and Yestin 21 and 1 ...
Hey,<br> All....Finally some action. Unfortunately we meet like this. I was recently (Jan '01) with Elhers-Danlos, they think type III, but as everyone knows...
Hi, my name is sassychemeleon and I am new here. I was mis-diagnosed at age 12 with JRA and re-diagnosed at 15 with MCTD (I am now 25). I have gathered a lot...
Thank you for such a warm welcome! MCTD is mixed connective Tissue Disease and JRA is Jr Rheumatoid Arthritis. (My MCTD has polymoyositis, vasculitis, sojrens ...
When I was diagnosed at age 12, they told me that I had most likely had it all my life. I have done some research on this disease, and would love to talk to...
Kim;<br><br>I attatched some links to sites that should be of some help to you! Hope the info helps! I know you feel right now like your life is over, but it ...
Dear Sassy,<br><br>Thank you so much for posting all of those informative links. I looked at all of them and found them very interesting.<br>I am 26 weeks ...
Dear JoAnna;<br>Thank you! The picture of my cat, Precious was taken 2 years ago - she was 3 years old. Unfortunatly, this past Christmas, she passed away, she...
You're welcome for the links! I guess I have been diagnosed for so long now that every little thing I find about this disease I mark and make a mental note of....
This is my first time connecting to this link, I found it while trying to find more information on this disease. I was diagnosed in March of this year. In July...
Sassy,<br>I am sorry you lost Precious, I know how hard it is to lose a cat that is like a member of the family. You were sure a cute little girl! Thanks for...
Dear "Yoda",<br>Although I am not diagnosed with EDS, nor am I in the military, I found a few sites that might be helpful for you. They are listed on the links...
My Story<br><br>I thought that I should probably tell you all a little bit about myself so, here it goes.....<br> <br>When I was 12 years old, I lived with my...
Dear JoAnna;<br>I am sad too that we had to put her down, but it really was the only humane thing to do. They said even if they drained the lung, that there...