Search the web
Sign In
New User? Sign Up
connectivetissueissues · Connective Tissue Issues - Frustrations with connective tissue diseases
? Already a member? Sign in to Yahoo!

Yahoo! Groups Tips

Did you know...
Show off your group to the world. Share a photo of your group with us.

Best of Y! Groups

   Check them out and nominate your group.
Having problems with message search? Fill out this form to ensure your group is one of the first to be migrated to the new message search system.

Messages

  Messages Help
Advanced
Connective Tissue Issues   Message List  
Reply | Forward Message #14 of 284 |
Re: Hallo there!

Hi Rosemary!<br><br>I am new to this board and
things seem pretty dead around here lately! Maybe we are
all in to much pain to type???? I have Ehlers-Danlos
syndrome. Do you have any other symptoms? What did they
tell you your diagnosis was or have they even
diagnosed you yet? I know that EDS has several names and
that is why I wondered if this was what you had. I
would be happy to give you advice or ideas on pain
control if I can help. I try it all and sort out what
works. My mother also has EDS and between myself and
her, we try all that we can. <br>Good luck, <br>Kristi




Tue May 1, 2001 12:04 am

akhddevo
Send Email Send Email

Forward
Message #14 of 284 |
Expand Messages Author Sort by Date

Hallo all,<br>I have been diagnosed with connective tissue disorder about 3 months ago and am still coming to terms with just what this means. It is not lupus,...
rrobenn
Offline Send Email
Apr 30, 2001
8:03 am

Hi Rosemary!<br><br>I am new to this board and things seem pretty dead around here lately! Maybe we are all in to much pain to type???? I have Ehlers-Danlos ...
akhddevo
Offline Send Email
May 1, 2001
12:04 am

I know Kristi, it has been dead. I really do not know that much about connective tissue diseases. I was diagnosed with cystic medial necrosis, which is a form...
chase1295
Offline Send Email
May 1, 2001
5:28 pm

Welcome Rosemary,<br><br>You, of course, are excused from roll all, unless you want to tell us more about yourself.. like for instance, if you prefer boxers or...
chase1295
Offline Send Email
May 1, 2001
5:32 pm

Hi JoAnna!<br><br>Okay here goes. I am Kristi, I am 26 years old from Springfield Illinois, I have been married for 6 years to my wonderful husband Aaron. We...
akhddevo
Offline Send Email
May 2, 2001
12:52 pm

Kristi,<br>Wow, you really are dealing with a lot right now, aren't you? I know how hard it is to lose a child, even early in pregnancy, so my thoughts are...
chase1295
Offline Send Email
May 2, 2001
6:41 pm

Hello Everyone!<br>Reponding to the Roll-Call: My name is Carol Torp. I'm married with two children (Kirsten, 6 and Jared 2, almost 3). I live in Cincinnati, ...
caroltorp
Offline Send Email
May 3, 2001
2:02 am

Hi JoAnna,<br>Looking back on my pregnancys, I do remember some things. With Hunter, I had a lot of problems moving around towards the end, I remember what I...
akhddevo
Offline Send Email
May 3, 2001
6:01 pm

Hi everyone,<br>Just to add a bit about me. I live in Melbourne, Australia with my husband, am 50 years old, have 2 sons, Dougall 26 and Yestin 21 and 1 ...
rrobenn
Offline Send Email
May 4, 2001
8:57 am

Hey,<br> All....Finally some action. Unfortunately we meet like this. I was recently (Jan '01) with Elhers-Danlos, they think type III, but as everyone knows...
yodaaz99
Offline Send Email
May 17, 2001
2:25 am

Hi, my name is sassychemeleon and I am new here. I was mis-diagnosed at age 12 with JRA and re-diagnosed at 15 with MCTD (I am now 25). I have gathered a lot...
sassy_chemeleon
Offline Send Email
Jul 11, 2001
4:31 am

Hi Sassy and welcome. What is MCTD? Multiple Connective tissue disease?<br>JoAnna...
chase1295
Offline Send Email
Jul 11, 2001
6:04 am

And what is JTA?...
chase1295
Offline Send Email
Jul 11, 2001
6:05 am

&lt;EOM&gt;...
chase1295
Offline Send Email
Jul 11, 2001
6:06 am

Thank you for such a warm welcome! MCTD is mixed connective Tissue Disease and JRA is Jr Rheumatoid Arthritis. (My MCTD has polymoyositis, vasculitis, sojrens ...
sassy_chemeleon
Offline Send Email
Jul 11, 2001
2:47 pm

When I was diagnosed at age 12, they told me that I had most likely had it all my life. I have done some research on this disease, and would love to talk to...
sassy_chemeleon
Offline Send Email
Jul 11, 2001
2:57 pm

Kim;<br><br>I attatched some links to sites that should be of some help to you! Hope the info helps! I know you feel right now like your life is over, but it ...
sassy_chemeleon
Offline Send Email
Jul 11, 2001
3:00 pm

Dear JoAnna;<br>Both are classified under MCTD....so those sites I posted could be of some use for you....
sassy_chemeleon
Offline Send Email
Jul 11, 2001
3:02 pm

Dear Sassy,<br><br>Thank you so much for posting all of those informative links. I looked at all of them and found them very interesting.<br>I am 26 weeks ...
chase1295
Offline Send Email
Jul 13, 2001
6:29 am

Sassy,<br>You and your husband look so happy. I love the picture of you and your cat. I am a cat lover myself. I have a siamese and a white fat ...
chase1295
Offline Send Email
Jul 13, 2001
6:33 am

Dear JoAnna;<br>Thank you! The picture of my cat, Precious was taken 2 years ago - she was 3 years old. Unfortunatly, this past Christmas, she passed away, she...
sassy_chemeleon
Offline Send Email
Jul 13, 2001
7:20 pm

You're welcome for the links! I guess I have been diagnosed for so long now that every little thing I find about this disease I mark and make a mental note of....
sassy_chemeleon
Offline Send Email
Jul 13, 2001
7:26 pm

This is my first time connecting to this link, I found it while trying to find more information on this disease. I was diagnosed in March of this year. In July...
oneforty25
Offline Send Email
Aug 17, 2003
3:39 pm

Found some more links and added them to the Links page .......
sassy_chemeleon
Offline Send Email
Jul 14, 2001
12:03 am

Thank you Sassy. You are now an offical founder!...
chase1295
Offline Send Email
Jul 14, 2001
11:22 pm

Sassy,<br>I am sorry you lost Precious, I know how hard it is to lose a cat that is like a member of the family. You were sure a cute little girl! Thanks for...
chase1295
Offline Send Email
Jul 14, 2001
11:28 pm

Dear "Yoda",<br>Although I am not diagnosed with EDS, nor am I in the military, I found a few sites that might be helpful for you. They are listed on the links...
sassy_chemeleon
Offline Send Email
Jul 15, 2001
4:12 am

My Story<br><br>I thought that I should probably tell you all a little bit about myself so, here it goes.....<br> <br>When I was 12 years old, I lived with my...
sassy_chemeleon
Offline Send Email
Jul 15, 2001
4:28 am

Dear JoAnna;<br>I am sad too that we had to put her down, but it really was the only humane thing to do. They said even if they drained the lung, that there...
sassy_chemeleon
Offline Send Email
Jul 15, 2001
4:34 am

Thank you JoAnna! <br>:)...
sassy_chemeleon
Offline Send Email
Jul 15, 2001
4:35 am
 First  |  |  Last 
Advanced

Copyright © 2009 Yahoo! Inc. All rights reserved.
Privacy Policy - Terms of Service - Guidelines - Help