Hallo all,<br>I have been diagnosed with
connective tissue disorder about 3 months ago and am still
coming to terms with just what this means. It is not
lupus, but seems to have lupus like symptoms ie the
butterfly rash, muscle and joint aches and pains and
extreme fatigue. Looking back, I think I have probably
had this for about 5 years but just thought it was
part of getting older! The fact that what I've got
doesn't seem to have a specific name makes it all harder
to come to grips with. Is it going to get worse, or
turn into lupus or something else??? Will be
interested to talk to others with this sort of thing and see
how they cope.<br>Cheers......Rosemary
Welcome Kim,<br><br>I don't really know that much about mixed connective tissue disease. They do not know what kind of connective tissue disease I have and I...
Hallo all,<br>I have been diagnosed with connective tissue disorder about 3 months ago and am still coming to terms with just what this means. It is not lupus,...
Hi Rosemary!<br><br>I am new to this board and things seem pretty dead around here lately! Maybe we are all in to much pain to type???? I have Ehlers-Danlos ...
I know Kristi, it has been dead. I really do not know that much about connective tissue diseases. I was diagnosed with cystic medial necrosis, which is a form...
Welcome Rosemary,<br><br>You, of course, are excused from roll all, unless you want to tell us more about yourself.. like for instance, if you prefer boxers or...
Hi JoAnna!<br><br>Okay here goes. I am Kristi, I am 26 years old from Springfield Illinois, I have been married for 6 years to my wonderful husband Aaron. We...
Kristi,<br>Wow, you really are dealing with a lot right now, aren't you? I know how hard it is to lose a child, even early in pregnancy, so my thoughts are...
Hello Everyone!<br>Reponding to the Roll-Call: My name is Carol Torp. I'm married with two children (Kirsten, 6 and Jared 2, almost 3). I live in Cincinnati, ...
Hi JoAnna,<br>Looking back on my pregnancys, I do remember some things. With Hunter, I had a lot of problems moving around towards the end, I remember what I...
Hi everyone,<br>Just to add a bit about me. I live in Melbourne, Australia with my husband, am 50 years old, have 2 sons, Dougall 26 and Yestin 21 and 1 ...
Hey,<br> All....Finally some action. Unfortunately we meet like this. I was recently (Jan '01) with Elhers-Danlos, they think type III, but as everyone knows...
Hi, my name is sassychemeleon and I am new here. I was mis-diagnosed at age 12 with JRA and re-diagnosed at 15 with MCTD (I am now 25). I have gathered a lot...
Thank you for such a warm welcome! MCTD is mixed connective Tissue Disease and JRA is Jr Rheumatoid Arthritis. (My MCTD has polymoyositis, vasculitis, sojrens ...
When I was diagnosed at age 12, they told me that I had most likely had it all my life. I have done some research on this disease, and would love to talk to...
Kim;<br><br>I attatched some links to sites that should be of some help to you! Hope the info helps! I know you feel right now like your life is over, but it ...
Dear Sassy,<br><br>Thank you so much for posting all of those informative links. I looked at all of them and found them very interesting.<br>I am 26 weeks ...
Dear JoAnna;<br>Thank you! The picture of my cat, Precious was taken 2 years ago - she was 3 years old. Unfortunatly, this past Christmas, she passed away, she...
You're welcome for the links! I guess I have been diagnosed for so long now that every little thing I find about this disease I mark and make a mental note of....
This is my first time connecting to this link, I found it while trying to find more information on this disease. I was diagnosed in March of this year. In July...
Sassy,<br>I am sorry you lost Precious, I know how hard it is to lose a cat that is like a member of the family. You were sure a cute little girl! Thanks for...
Dear "Yoda",<br>Although I am not diagnosed with EDS, nor am I in the military, I found a few sites that might be helpful for you. They are listed on the links...
My Story<br><br>I thought that I should probably tell you all a little bit about myself so, here it goes.....<br> <br>When I was 12 years old, I lived with my...
Dear JoAnna;<br>I am sad too that we had to put her down, but it really was the only humane thing to do. They said even if they drained the lung, that there...
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