Congenital_MMD : Congenital Myotonic Muscular Dystrophy

Congenital_MMD · Congenital Myotonic Muscular Dystrophy

Group Information

Members: 48
Category: Muscular Dystrophy
Founded: Oct 3, 2006
Language: English

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Description

This is a support group for caregivers of kids born with either Congenital Myotonic Muscular Dystrophy (CMMD) or the Juvenile form of MMD. If you are a parent or caregiver, please join us and share your story.

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Kayla's Debut on National TV for the MDA Jerry Lewis Telethon This L Dear Family and Friends, I have been out of touch with many of you over the years but something has happened in our lives over the last four years that I feel Posted - Fri Sep 4, 2009 12:07 pm	Lisa Vittek babykaylasmom Offline Send Email
Re: Army Virginia, I'm glad things worked out for you. I know it is so difficult to intervene when our kids get older, but sometimes it's just necessary. As far as how Posted - Tue Apr 21, 2009 6:43 pm	Cecilia flyinginca Offline Send Email
Re: Army YEAH!!! Is all I gotta say. Mar ________________________________ From: Virginia Pursley <vapursley@...> To: Congenital_MMD@yahoogroups.com Sent: Monday, Posted - Mon Apr 20, 2009 5:01 pm	Mary Bourgeois diznychic Offline Send Email
Re: Army Thank you Mary for sharing your pain and hardship. Luckily Ben didn't sign the papers so we are good. ... From: Mary Bourgeois <diznychic@...> Posted - Mon Apr 20, 2009 3:33 pm	Virginia Pursley vapursley Offline Send Email
Re: Army Thank you for your responses! They really have helped. Luckily we found out Ben didn't sign anything and I let them know I would keep going up the chain Posted - Mon Apr 20, 2009 3:32 pm	Virginia Pursley vapursley Offline Send Email
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Message History

	Jan	Feb	Mar	Apr	May	Jun	Jul	Aug	Sep	Oct	Nov	Dec
2009	1	3	3	39	1	3	1	1	3
2008	45	15	38	51	82	53	36	74	20	15	36	7
2007	28	39	18	14	71	13	14	12	5	16	2	14
2006										12	17	4

Group Email Addresses

Post message:	Congenital_MMD@yahoogroups.com
Subscribe:	Congenital_MMD-subscribe@yahoogroups.com
Unsubscribe:	Congenital_MMD-unsubscribe@yahoogroups.com
List owner:	Congenital_MMD-owner@yahoogroups.com

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