Have you gone to the Flat-d.com site?  They have a cool invention for
ostomy patients. It uses the Osto-ez-vent and a activated charcoal
venting device. Now you will not get ballooning in your shirt and it
deodorizes the gas coming out. Way cool and simple, and you do not
have to take drugs for it - I am taking way too many drugs now.
Charcoal tabs actually affect the other medications you take.
Check out all their flatulence products, even gas masks.
Franko


--- In colostomy@yahoogroups.com, "rfountain666" <rfountain666@y...>
wrote:
> --- In colostomy@yahoogroups.com, Sylvia Ellis <elady38@y...> wrote:
> > In reference to gas, I take 2-charchol tablets or capsules, you
can
> buy them at your drug store or vitamin
> shop.                                              Hope it
> works////                                                 SYLVIA///
> >
> >
> >
> > ---------------------------------
> > Do you Yahoo!?
> > The New Yahoo! Search - Faster. Easier. Bingo.
>
> ________________________________________________
> Have you tried using a bag with a filter?

What type of problems did you have with the liners?
Kathy

--- In colostomy@yahoogroups.com, jhh11@a... wrote:
>
>  Jean-----
>
>  Glad to hear that things are getting better for you. By the way----
---tou
> mentioned that you are using disposable liners. I tried those , but
didn't have
> much luck with them. What brand do you use- I might try them again.
>
>  Jack H.

Here is a link to find an ET nurse near you.
http://www.wocn.org/services/ There are many different pouch systems
out there & an ET nurse can help find the most appropriate pouch for
you. Stomas in that location are difficult to keep a pouch system on
because they are in a crease. Without seeing you it is difficult to
say if you need a convex pouch system but I think you would benefit
from a more flexible pouch system. The rings on the 2 piece systems
are ridged & can pop off when in a crease. All companies do give out
samples. In the links section, I have links listed for different
manufactures. But it would be best to see an ET nurse.
Take Care,
Kathy

--- In colostomy@yahoogroups.com, "krafty1_1" <krafty1_1@y...> wrote:
> Hi!  My name is Jean.  I had a colostomy November 19.  When I loose
> 70 more pounds I can have it reversed or fixed back to normal.
> Here is the problem: Once I put the adhesive barrier (Big Bandaid
as
> I  call it) on and the pouch, it will only stay on for about a
day.
> Then it will start leaking waste on the right side into my belly
> button.  My stoma is about 4 inches to the left of my belly button,
> right in the crease of my stomach.
> Is there any thing out there that will help the adhesive stay on
> longer?
> I can't afford to buy 30 adhesive barriers a month.  The kind I use
> are between $64.00 to $100.00 for a box of 10.
>
> Any suggestions would be appreciated.  Thank you.

Jack,
  Try looking up the Hollister web page. They are good
about sending you samples so you can try their
products.
  I've had real good luck with their 2 piece.
                                   Lynn
--- jhh11@... wrote:
>
>  Jean-----
>
>  Glad to hear that things are getting better for
> you. By the way-------tou
> mentioned that you are using disposable liners. I
> tried those , but didn't have
> much luck with them. What brand do you use- I might
> try them again.
>
>  Jack H.
>


__________________________________
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Hi Jean,

I have had my colostomy for about two years now (permanent) and had the
same problem as you. My stoma is in about the same position. Try these
pouches by Hollister - HTP3279. They work pretty well for me. The
directions say to chance it every day, but if you don't rinse it out two
often, it will last longer. It's not as bad about leaking on the sides
and bottom as most others I had tried. Hope this is of some help.

Jim Johnson

-----Original Message-----
From: krafty1_1 [mailto:krafty1_1@...]
Sent: Saturday, January 24, 2004 1:19 PM
To: colostomy@yahoogroups.com
Subject: [colostomy] MY COLOSTOMY


Hi!  My name is Jean.  I had a colostomy November 19.  When I loose
70 more pounds I can have it reversed or fixed back to normal. Here is
the problem: Once I put the adhesive barrier (Big Bandaid as
I  call it) on and the pouch, it will only stay on for about a day.
Then it will start leaking waste on the right side into my belly
button.  My stoma is about 4 inches to the left of my belly button,
right in the crease of my stomach.
Is there any thing out there that will help the adhesive stay on
longer?
I can't afford to buy 30 adhesive barriers a month.  The kind I use
are between $64.00 to $100.00 for a box of 10.

Any suggestions would be appreciated.  Thank you.




Yahoo! Groups Links

To visit your group on the web, go to:
http://groups.yahoo.com/group/colostomy/

To unsubscribe from this group, send an email to:
colostomy-unsubscribe@yahoogroups.com

Your use of Yahoo! Groups is subject to:
http://docs.yahoo.com/info/terms/

Hi!  My name is Jean.  I had a colostomy November 19.  When I loose
70 more pounds I can have it reversed or fixed back to normal.
Here is the problem: Once I put the adhesive barrier (Big Bandaid as
I  call it) on and the pouch, it will only stay on for about a day.
Then it will start leaking waste on the right side into my belly
button.  My stoma is about 4 inches to the left of my belly button,
right in the crease of my stomach.
Is there any thing out there that will help the adhesive stay on
longer?
I can't afford to buy 30 adhesive barriers a month.  The kind I use
are between $64.00 to $100.00 for a box of 10.

Any suggestions would be appreciated.  Thank you.

On the links section of the group I loaded a file for support
information. The United Ostomy Association has groups you can find a
local group on their website.
Kathy

--- In colostomy@yahoogroups.com, Sylvia Ellis <elady38@y...> wrote:
> Hi Sara,
>      I had my colostomy done because of my severe incontinence and
also because of my muscles being severed while giving birth 16 yrs
ago.I had a hard time adjusting,it is all up to you and also, if you
can speak to other people who have an actual colostomy, I hated mine
because I had to use appliances w/convexity and at times the poop
would not make it into the bag,causing accidents,it is all a matter
of finding that appliance that will work for you,when your appliances
are doing great,everything is great.I had my colostomy removed in
June. When my surgeon reattached my muscles I did well,since I had an
accident (Impact landed on my stomach area), started having
incontinance again, accident happened in Oct. My surgeon tells me to
give it time,meanwhile I am either suffering for severe constipation
or severe diarehha. plus all this and my husband filed for divorce!
Has not been easy, Check w/your Dr. about an ostomy group in your
area. I had a nice young girl who came and spoke w/me
>  after my colostomy, one advice chew,chew,chew and drink lots of
water!!! I hope everything goes well, let me know!!!
>
  Sylvia////
>
>
> ---------------------------------
> Do you Yahoo!?
> Find out what made the Top Yahoo! Searches of 2003

Hi Trish I'm a stoma nurse & I'm sorry to hear about your situation.
Sadly that happens to a lot of people.  I'm glad she is going to an
ostomy clinic. She needs to be in a convex pouch system with paste,
belt. This will help fill in the concaved defect around the stoma &
push her stoma out a bit so it's not so retracted in. You will
probably need to change her pouch more often than once a week like
every 3rd day but sometimes you can get the right system to say on
longer. There ar a lot of products out there which they can determin
what to use on her when they see her. The companies also send samples.
Take Care,
Kathy

--- In colostomy@yahoogroups.com, "Trish B" <GirlNumber5@c...> wrote:
> Hello, just before Thanksgiving my mom had surgery, for
> diverticulitis, and now has a temporary colostomy.
>
> After her surgery for several weeks she went to an after care
> facility, to recover some & learn to care for her colostomy. As it
> turns out she was taught basically nothing & neither was I.  She
was
> supposed to be in this place for at least another four weeks,
> because she also has a open wound at the incision sight.  But on
> December 30 without barely 24 hours notice they discharded her to
> me, when I was not ready to care for her yet.
>
> Thus far it has been one exhausting incident after another.  From
> the time she was in the home the colostomy bag set up never
worked.
> No stool ever ends up in the bag, but ALWAYS out and under the
> wafer, time after time.
>
> Finally when VNA came yesterday, the girl was so helpful, she
> explained that it does not seem to be working correctly, because my
> moms stoma is inverted.  So, when I cut the wafer to her stoma size
> & place it on, it does not protrude thorugh the hole, like I am
told
> it should.
>
> We do have an appointment with a colostomy care clinic on Tuesday,
> and I am praying they we be able to help.  But, in the mean time I
> was wondering if any of you have this problem and could offer any
> words of advice to me.
>
> I am exhausted and distraught over the whole situation.
>
> Thank you,
> Trish in CT

Scissors is an item that you can't take on the plane. So you'll want
to precut your waffers.
Kathy

--- In colostomy@yahoogroups.com, "francis thrasher" <lil092@m...>
wrote:
> Hi Duke
>
>  I hav,nt been on a plane yet but what I hear is they do a body
search  and that could be embarrassing . What I have heard was if you
have a card to show they might not search you . You could call the
airport and ask what you should do and what you can take aboard . I,m
sure they ran into this before . Good luck . I,m sure someone on this
site has been there and could answer your question
>
>  Frank.
>
>   ----- Original Message -----
>   From: Duke<mailto:dcharlan@y...>
>   To: colostomy@yahoogroups.com<mailto:colostomy@yahoogroups.com>
>   Sent: Wednesday, January 07, 2004 6:28 PM
>   Subject: [colostomy] flying with a colostomy
>
>
>   This will be my 1st time flying since I got my plumbing fixed. I
know
>   to bring stuff on the plane instead of in checked baggage. Any
tips on
>   what to expect during the flight?
>   -Duke
>
>
>
>
>
>
>   Yahoo! Groups Links
>
>   To visit your group on the web, go to:
>
http://groups.yahoo.com/group/colostomy/<http://groups.yahoo.com/group
/colostomy/>
>
>   To unsubscribe from this group, send an email to:
>    colostomy-unsubscribe@yahoogroups.com<mailto:colostomy-
unsubscribe@yahoogroups.com>
>
>   Your use of Yahoo! Groups is subject to:
>
http://docs.yahoo.com/info/terms/<http://docs.yahoo.com/info/terms/>

This will be my 1st time flying since I got my plumbing fixed. I know
to bring stuff on the plane instead of in checked baggage. Any tips on
what to expect during the flight?
-Duke

I would greatly appreciate that.  My email address is
streamsinthedesert@....  I check this email almost every night
now.  Thanks.  I will talk with ya soon.

Sara

--- In colostomy@yahoogroups.com, Ken Berglund <kenberg@i...> wrote:
> Hi Sara:    I would be very glad to e-mail you personally regarding
colostomy info.  Just what specifically did you want to know?  I can
tell you, not everything, but most info based on my own personal
experience as I have had a colostomy (permanent) for 11 years. ......
Please tell me your e-mail address........Mine is < kenberg@i... >
> streamsinthedesert wrote:
>  >
>  > [ Attachment: (text/html) ]

Hi Sara:    I would be very glad to e-mail you personally regarding colostomy
info.  Just what specifically did you want to know?  I can tell you, not
everything, but most info based on my own personal experience as I have had a
colostomy (permanent) for 11 years. ...... Please tell me your e-mail
address........Mine is < kenberg@... >
streamsinthedesert wrote:
  >
  > [ Attachment: (text/html) ]

I have one more question.  Are the pouches that catch the feces
washed out and reused or do you replace the soiled one with a new
one?  I know nothing about this. Thanks.

Sara

---

Yahoo! Groups Links

• To visit your group on the web, go to:
  http://groups.yahoo.com/group/colostomy/
   
• To unsubscribe from this group, send an email to:
  colostomy-unsubscribe@yahoogroups.com
   
• Your use of Yahoo! Groups is subject to the Yahoo! Terms of Service.

I have one more question.  Are the pouches that catch the feces
washed out and reused or do you replace the soiled one with a new
one?  I know nothing about this. Thanks.

Sara

Good Morning.  I thought that I was going to have to have a urostomy,
but I got by with a bladder augmentation surgery.  That helped with
that part.  I finally found something that will work for my
constipation, fleets phoso soda, i think is the name of it.  I took
it yesterday around 2 or so and am still going to the bathroom.  It
has given me diarrhea.  I tried to go to Church this morning, but
didn't make it past getting in my car.  That is one reason I am
considering getting a colostomy. I can't do anything on the weekends
without fearing that i will use the bathroom on myself.  I do wear
adult diapers but even then you never know.  I have a 6 year old son
that is into sports and cub scouts and wants to start karate and it
is so hard to do these things because they are mostly on the
weekends.  I know that soon this fleets stuff will stop working just
like everything else has.  and i really don't know if i can stomach
that stuff every weekend ( I work through the week).  I have just
heard so much about how nasty a colostomy is.  Either option I have
right now is pretty bad.  The only think about me getting a colostomy
is that it is permanent or that is at least what the doctor said. He
said that it was very hard to reconnect the bowels after getting a
colostomy.  If there is anyone out there that has a colostomy that
would be willing to email me privatley at
streamsinthedesert@... to answer some of my questions I would
greatly appreciate it!!  Thanks and God Bless,

Sara

--- In colostomy@yahoogroups.com, "francis thrasher" <lil092@m...>
wrote:
> Hi Sara
>
>  My wife had a colostomy for about 6 months ,at first she hated it
but after
> awhile she got use to it . As the other guy said it,s a way of life
. I myself
> have a urostomy witch I think is better in a way , not as messy .
Any operation
> is not a good thing but it looks like you are heading that way .
Good luck .
>
>    Frank
>   ----- Original Message -----
>   From: streamsinthedesert
>   To: colostomy@yahoogroups.com
>   Sent: Wednesday, December 31, 2003 11:53 AM
>   Subject: [colostomy] Good Morning everyone
>
>
>   Hi.  I am new here with several questions.  I am 30 years old and
I
>   have spina bifida and tethered spinal cord surgery a few years
ago.
>   I have no feeling in my back area and my anal muscles do not
work.  I
>   have been laxative dependent for about 7 or 8 years now.  My
problem
>   is that now the laxatives are not working any more.  I can't take
>   ducolax, ex lax, correctal, go lytely because i cramp to the
point of
>   dying and no bowel movement.  I seen my colon doctor yesterday
who
>   talked to me about a colostomy.  He has left the decision up to
me
>   saying that it was a quality of life thing and should be my
>   decision.  I asked him at what point not having a movement would
>   become dangerous and he said if I got a fever or started
vomiting.  I
>   always thought that if you went so long without a bowel movement
that
>   you could get yourself into some real trouble.  Can anyone help?
>   What is it like to have a colostomy?  Thanks
>
>   Sara
>
>
>
>
>   Yahoo! Groups Links
>
>   To visit your group on the web, go to:
>    http://groups.yahoo.com/group/colostomy/
>
>   To unsubscribe from this group, send an email to:
>    colostomy-unsubscribe@yahoogroups.com
>
>   Your use of Yahoo! Groups is subject to:
>    http://docs.yahoo.com/info/terms/

Hello, just before Thanksgiving my mom had surgery, for
diverticulitis, and now has a temporary colostomy.

After her surgery for several weeks she went to an after care
facility, to recover some & learn to care for her colostomy. As it
turns out she was taught basically nothing & neither was I.  She was
supposed to be in this place for at least another four weeks,
because she also has a open wound at the incision sight.  But on
December 30 without barely 24 hours notice they discharded her to
me, when I was not ready to care for her yet.

Thus far it has been one exhausting incident after another.  From
the time she was in the home the colostomy bag set up never worked.
No stool ever ends up in the bag, but ALWAYS out and under the
wafer, time after time.

Finally when VNA came yesterday, the girl was so helpful, she
explained that it does not seem to be working correctly, because my
moms stoma is inverted.  So, when I cut the wafer to her stoma size
& place it on, it does not protrude thorugh the hole, like I am told
it should.

We do have an appointment with a colostomy care clinic on Tuesday,
and I am praying they we be able to help.  But, in the mean time I
was wondering if any of you have this problem and could offer any
words of advice to me.

I am exhausted and distraught over the whole situation.

Thank you,
Trish in CT

Hi.  Thanks for answering back.  I am used to bad surgery's.  I had
surgery on my spinal cord two years ago and in May of this year I had
a surgery that was called bladder augmentation surgery where they
took part of my colon and made my bladder bigger.  Both of those were
pretty rough.

Sara

--- In colostomy@yahoogroups.com, richard fountain
<rfountain666@y...> wrote:
> Dear Sara, I have had a colostomy for almost two years now and it
realy is not that bad, I am getting more and more used to it, and it
is just becoming a way of life.
>
> It sounds like you would benefit from the colostomy. But be warned
it is a serious operation.
>
> streamsinthedesert <brave@t...> wrote:
> Hi.  I am new here with several questions.  I am 30 years old and I
> have spina bifida and tethered spinal cord surgery a few years
ago.
> I have no feeling in my back area and my anal muscles do not work.
I
> have been laxative dependent for about 7 or 8 years now.  My
problem
> is that now the laxatives are not working any more.  I can't take
> ducolax, ex lax, correctal, go lytely because i cramp to the point
of
> dying and no bowel movement.  I seen my colon doctor yesterday who
> talked to me about a colostomy.  He has left the decision up to me
> saying that it was a quality of life thing and should be my
> decision.  I asked him at what point not having a movement would
> become dangerous and he said if I got a fever or started vomiting.
I
> always thought that if you went so long without a bowel movement
that
> you could get yourself into some real trouble.  Can anyone help?
> What is it like to have a colostomy?  Thanks
>
> Sara
>
>
>
> ---------------------------------
> Yahoo! Groups Links
>
>    To visit your group on the web, go to:
> http://groups.yahoo.com/group/colostomy/
>
>    To unsubscribe from this group, send an email to:
> colostomy-unsubscribe@yahoogroups.com
>
>    Your use of Yahoo! Groups is subject to the Yahoo! Terms of
Service.
>
>
>
> ---------------------------------
> Do you Yahoo!?
> Find out what made the Top Yahoo! Searches of 2003

Hi.  I am new here with several questions.  I am 30 years old and I
have spina bifida and tethered spinal cord surgery a few years ago. 
I have no feeling in my back area and my anal muscles do not work.  I
have been laxative dependent for about 7 or 8 years now.  My problem
is that now the laxatives are not working any more.  I can't take
ducolax, ex lax, correctal, go lytely because i cramp to the point of
dying and no bowel movement.  I seen my colon doctor yesterday who
talked to me about a colostomy.  He has left the decision up to me
saying that it was a quality of life thing and should be my
decision.  I asked him at what point not having a movement would
become dangerous and he said if I got a fever or started vomiting.  I
always thought that if you went so long without a bowel movement that
you could get yourself into some real trouble.  Can anyone help? 
What is it like to have a colostomy?  Thanks

Sara

---

Yahoo! Groups Links

• To visit your group on the web, go to:
  http://groups.yahoo.com/group/colostomy/
   
• To unsubscribe from this group, send an email to:
  colostomy-unsubscribe@yahoogroups.com
   
• Your use of Yahoo! Groups is subject to the Yahoo! Terms of Service.

Hi.  I am new here with several questions.  I am 30 years old and I
have spina bifida and tethered spinal cord surgery a few years ago.
I have no feeling in my back area and my anal muscles do not work.  I
have been laxative dependent for about 7 or 8 years now.  My problem
is that now the laxatives are not working any more.  I can't take
ducolax, ex lax, correctal, go lytely because i cramp to the point of
dying and no bowel movement.  I seen my colon doctor yesterday who
talked to me about a colostomy.  He has left the decision up to me
saying that it was a quality of life thing and should be my
decision.  I asked him at what point not having a movement would
become dangerous and he said if I got a fever or started vomiting.  I
always thought that if you went so long without a bowel movement that
you could get yourself into some real trouble.  Can anyone help?
What is it like to have a colostomy?  Thanks

Sara

----- Original Message -----

From: Sylvia Ellis

To: colostomy@yahoogroups.com

Sent: Monday, December 29, 2003 10:16 PM

Subject: Re: [colostomy] Hello, quick question for you?

Hi Regan,

     First and formost, if you liked when you had your colostomy then do it,also maybe it can also be a temp. until your uc gets better. How does your future husband feel about you having a colostomy?You know that when your uc acts up you can't rely on irrigation or on just using pads.My husband was very supportive at first,my in-laws did not want me in their swimming pool, I had a reversal done in June and my husband has since filed for divorce.Think about yourself,your baby and your health. Lots of Luck!!!

                                                              elady38yahoo.com////////////  

---

Do you Yahoo!?
Find out what made the Top Yahoo! Searches of 2003

---

Yahoo! Groups Links

• To visit your group on the web, go to:
  http://groups.yahoo.com/group/colostomy/
   
• To unsubscribe from this group, send an email to:
  colostomy-unsubscribe@yahoogroups.com
   
• Your use of Yahoo! Groups is subject to the Yahoo! Terms of Service.

----- Original Message -----

From: rmsprack

To: colostomy@yahoogroups.com

Sent: Monday, December 29, 2003 5:33 PM

Subject: [colostomy] Hello, quick question for you?

Hi all, I am a 32 yr old female. I had severe uc in 96 and had a
temp. colostomy in 97. I had a j-pouch built. Well I had a baby in
May and ever since I have been having severe problems. My UC came
back, they have me on asocal and  I have been having constant
pouchitis. My pouch was prolapsing, so about 2 wks ago, I had a
stapled proctoplasty. I am miserable. I am going to the Dr. tomorrow
to discuss getting the colostomy bag back. I cant live life like
this. My soon to be husband, wants me to do what will make me feel
better. I hated having the bag back then, but I felt so great. I am
so confused as what to do. Thanks for reading this far and any advice
would be great.  Regan

---

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• To visit your group on the web, go to:
  http://groups.yahoo.com/group/colostomy/
   
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  colostomy-unsubscribe@yahoogroups.com
   
• Your use of Yahoo! Groups is subject to the Yahoo! Terms of Service.

Hi all, I am a 32 yr old female. I had severe uc in 96 and had a
temp. colostomy in 97. I had a j-pouch built. Well I had a baby in
May and ever since I have been having severe problems. My UC came
back, they have me on asocal and  I have been having constant
pouchitis. My pouch was prolapsing, so about 2 wks ago, I had a
stapled proctoplasty. I am miserable. I am going to the Dr. tomorrow
to discuss getting the colostomy bag back. I cant live life like
this. My soon to be husband, wants me to do what will make me feel
better. I hated having the bag back then, but I felt so great. I am
so confused as what to do. Thanks for reading this far and any advice
would be great.  Regan