colostomy : Message: Re: [colostomy] I'm new here

Desiree,

I had my surgery on an emergency basis in April 2005.

I had a ruptured colon caused by who knows what, they had to remove several pieces of my intestines. Then the doctor said there were too many adhesions to attempt a reversal.

I was very unhappy afterward about the colostomy, for a long time. I just have to remember, that without it I would be dead.

It does change your lifestyle somewhat, the clothes you where, what you eat and drink, etc...

For example, for me, any kind of beans, corn, or raw vegetables cause terrible gas. I also cannot drink milk, or beer, or I get the runs, which is not a fun thing for a colostomy patient. Your fiance will have a tough time in the beginning, we all do, but I can assure you that it gets better as time goes on and you learn how to manage it.

Make sure that your fiance is informed about irrigation, it has helped me manage my colostomy greatly.

As far as intimacy is concerned, I still am uncomfortable about getting too close to someone, for fear that they will be turned off or appalled because I have the colostomy.

Anyway, the best of luck to you, feel free to contact me directly if you have anymore questions.

Sincerely,

Jon

----- Original Message ----
From: Desiree <desid21775@...>
To: colostomy@yahoogroups.com
Sent: Monday, September 11, 2006 7:08:51 PM
Subject: [colostomy] I'm new here

Hi everyone!
I am really looking for some assistance. To be honest, I am not the
one that will have the colostomy done. My fiance will have the
colostomy surgery at the end of October. He has a disease called
Hidradenitis Suppurativa, which attacked the muscles/tissues
surrounding his colon. This caused them to become severly diseased.
He has the top Colo-Rectal Surgeon in the SF Bay Area.

I have a lot of questions and am unsure of where to start. So I'll
start with the basics. Was the colostomy used as a last resort? Why
did you have the colostomy done? How has your life changed, and has
it changed for the better or worse. What can I, as a significant
other expect?

I do understand that this is a group for people with Colostomy's so
if I don't belong here, I completely understand.

Thank you!!!
Desiree

California State Contact/Owner
http://groups. yahoo.com/ group/california _hs
california_hs@ yahoogroups. com

HS_Spouses Group Owner
http://groups. yahoo.com/ group/hs_ spouses
hs_spouses@yahoogro ups.com

To learn more about Hidradenitis Suppurativa please visit:
www.hs-usa.org

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