Jaynee & Chris,

Happy Belated Birthday you two!!!!
Hope you had a wonderful time.
May you celebrate many more!!!

Susan


[Non-text portions of this message have been removed]

Sandra, the tingling  can last for months.  My feet still tingle and I have
trouble holding on to things because I can't tell how tight I am holding them. 
I've been done with my chemo for almost 2 years now.  It depends on your
body.  I still have trouble with very cold things from the freezer.  Glenda

 One second, one minute, one step, one day at a time!  Waiting patiently on
God's own time!

--- On Tue, 11/17/09, Sandra Esquivel <esq264@...> wrote:

From: Sandra Esquivel <esq264@...>
Subject: Re: [colon_cancer_support] Re Chris
To: colon_cancer_support@yahoogroups.com
Date: Tuesday, November 17, 2009, 2:23 PM







 









       I,ve finish Chemo last Sept, Have tingling in Fingers and Feet, how long
will that Last ?? Sandra



____________ _________ _________ __

From: "karima19@comcast. net" <karima19@comcast. net>

To: colon cancer support <colon_cancer_ support@yahoogro ups.com>

Sent: Mon, November 16, 2009 9:05:03 AM

Subject: Re: [colon_cancer_ support] Re Chris



 



Hi Chris,



lucky Friday the 13th was an oxymoron for me this time around.  IRS digging a
hole to knock me into.  Great you had the port removed.  i did that asas five
years ago and have since moved to NM, bought horses and chickens (the whole nine
yards of nuttiness).. ...



I have awful leftover issues from the treatment, surgery and radiation but it
is the price of seeing the glorious sun rise every day here in NM.  I have
neuropathy in my feet and it seems that will be with me forever.  Also since
all the general anesthetic I have developed tardive dyskinesia which is a
neurological problem where I am constantly making sucking noises in my
mouth/teeth.  Sounds awful but I have come to terms with it and if people
want to stare at me...well, oh well.



Being alive is such a blessing so hang in there

  ..stay positive and do your homework and if you read about alternative
therapies which can help, don't turn a blind eye to them.  Last year I ran
across hemp oil and use that now.  Sorry for all the blab...hope something
helped.



all the best,



karima



Hi,



I hope everyone is doing well. Friday (the 13th, felt lucky to me though) was my
birthday. The 1st birthday since I was diagnosed last December, I felt so lucky
to be here still. Went out with friends and celebrated. Had port removed Oct 5
and hope I never need it again. I still get stressed every time I do not feel
good and have some anxiety issue along with numb fingers and toes. Otherwise
things are good. How is everyone else?



--- In colon_cancer_ support@yahoogro ups.com , "Irene" <reeneeone@. ..> wrote:

>

> Hi Everyone,

>

> Where did everyone go? I know we all miss our favorites but don't you think it
is unfair to those that are gone and tried so hard to help everyone, to just
give in and say, I just can't do it anymore. These wonderful people gave their
all for us. Time we stand together and finish the job they can no longer do. I
also miss them, and it is hard to open the emails and not hear from them, but we
can do it for them. Come on, give a shout! Lets hear happy dancing for all of us
that are still here and have to plug along. Best wishes and praying for all of
you.

>

> Sincerely,

> Irene

>

> [Non-text portions of this message have been removed]

>



[Non-text portions of this message have been removed]



[Non-text portions of this message have been removed]

























[Non-text portions of this message have been removed]

--- On Tue, 11/17/09, s312r341@... <s312r341@...> wrote:


From: s312r341@... <s312r341@...>
Subject: Fwd: prayer request
To: deborahcansler@..., flowerchilde41@..., dnAHorn44@...,
gahillbillie2@..., jodykitty1@..., bsanches313@...,
happytoobe@..., gjstumpf@...
Date: Tuesday, November 17, 2009, 10:59 AM







 
 





 























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"For GOD so loved the world...............................John 3:16"

Prayer request for Gary and Cindy Hogman by way of Faith Presbyterian
Church.

Gary is serving in Iraq while his young wife is fighting cancer here.  See his
Request below.

From:
Bobby S. Briggs, MSgt, USAF
823 ESFS/SFOC
Flight Sergeant
BAGHDAD AB, IRAQ

My name is Gary Hogman.  Some of you receiving this know me, some do not.
My wife, Cindy, is 32 years old and has just been diagnosed with stage 4
Cervical cancer. Her chances for survival are very slim. She was pregnant with
our second child and had miscarried recently at 3 Months; and now we know why.
This is a request for you to forward this e-mail to everyone you
know asking for prayer. The more people that pray for her to be healed, the
better. Pray and forward. It only takes a second to hit 'forward.' Please do it
and don't delete this. Your prayer can, and perhaps will, save her life. Please
pray and ask everyone you know to pray for the HEALING of CINDY HOGMAN And the
removal of all cancer from her body, so she may enjoy all that life has to
offer, and to continue to be the wonderful mother to our 5-year-old son Michael.
The power of Prayer is unsurpassed. I want the whole world to have her in their
prayers the next few weeks. God will hear our cry. Please do not be offended by
my plea. This is only a request for
your help. Thank you from the bottom of my heart for reading this and helping
with our request for healing! No words can express the power we have when we
each do a little to come together.
Regards, Cindy's husband -
Gary

Thank you, and please send it to the far reaches of our world!




 
















[Non-text portions of this message have been removed]

I,ve finish Chemo last Sept, Have tingling in Fingers and Feet, how long will
that Last ?? Sandra




________________________________
From: "karima19@..." <karima19@...>
To: colon cancer support <colon_cancer_support@yahoogroups.com>
Sent: Mon, November 16, 2009 9:05:03 AM
Subject: Re: [colon_cancer_support] Re Chris

 


Hi Chris,

lucky Friday the 13th was an oxymoron for me this time around.  IRS digging a
hole to knock me into.  Great you had the port removed.  i did that asas five
years ago and have since moved to NM, bought horses and chickens (the whole nine
yards of nuttiness).. ...

I have awful leftover issues from the treatment, surgery and radiation but it
is the price of seeing the glorious sun rise every day here in NM.  I have
neuropathy in my feet and it seems that will be with me forever.  Also since
all the general anesthetic I have developed tardive dyskinesia which is a
neurological problem where I am constantly making sucking noises in my
mouth/teeth.  Sounds awful but I have come to terms with it and if people
want to stare at me...well, oh well.

Being alive is such a blessing so hang in there
  ..stay positive and do your homework and if you read about alternative
therapies which can help, don't turn a blind eye to them.  Last year I ran
across hemp oil and use that now.  Sorry for all the blab...hope something
helped.

all the best,

karima

Hi,

I hope everyone is doing well. Friday (the 13th, felt lucky to me though) was my
birthday. The 1st birthday since I was diagnosed last December, I felt so lucky
to be here still. Went out with friends and celebrated. Had port removed Oct 5
and hope I never need it again. I still get stressed every time I do not feel
good and have some anxiety issue along with numb fingers and toes. Otherwise
things are good. How is everyone else?

--- In colon_cancer_ support@yahoogro ups.com , "Irene" <reeneeone@. ..> wrote:
>
> Hi Everyone,
>
> Where did everyone go? I know we all miss our favorites but don't you think it
is unfair to those that are gone and tried so hard to help everyone, to just
give in and say, I just can't do it anymore. These wonderful people gave their
all for us. Time we stand together and finish the job they can no longer do. I
also miss them, and it is hard to open the emails and not hear from them, but we
can do it for them. Come on, give a shout! Lets hear happy dancing for all of us
that are still here and have to plug along. Best wishes and praying for all of
you.
>
> Sincerely,
> Irene
>
> [Non-text portions of this message have been removed]
>

[Non-text portions of this message have been removed]







[Non-text portions of this message have been removed]

Hemp oil is something that  has been used in Canada in years.  It comes from
one of the marijuana genus

and is now sold in Oregon.  I use it as a preventive measure.   Can't hurt. 
Let me see if I can find the articles and website for you.



Karima




----- Original Message -----
From: "Irene" <reeneeone@...>
To: "colon cancer support" <colon_cancer_support@yahoogroups.com>
Sent: Tuesday, November 17, 2009 8:11:29 AM GMT -07:00 US/Canada Mountain
Subject: [colon_cancer_support] Re: Re Karima

 




Hi Karima,

I was reading your message and you mentioned hemp oil, what is that used for.
I never heard of it before. Good to hear from you.

Sincerely,
Irene

[Non-text portions of this message have been removed]




[Non-text portions of this message have been removed]

Hi Karima,

I was reading your message and you mentioned hemp oil, what is that used for.
I never heard of it before.  Good to hear from you.

Sincerely,
Irene

[Non-text portions of this message have been removed]

Hi Chris,

So happy you are doing well, Happy Birthday to you, I know what you mean about
birthdays, we all are very happy everytime we have a birthday.  Stay positive,
pray alot, and enjoy your life.

Sincerely,
Irene

[Non-text portions of this message have been removed]

Hi Chris,



lucky Friday the 13th was an oxymoron for me this time around.  IRS digging a
hole to knock me into.  Great you had the port removed.  i did that asas five
years ago and have since moved to NM, bought horses and chickens (the whole nine
yards of nuttiness).....

I have awful leftover issues from the treatment, surgery and radiation but it
is the price of seeing the glorious sun rise every day here in NM.  I have
neuropathy in my feet and it seems that will be with me forever.  Also since
all the general anesthetic I have developed tardive dyskinesia which is a
neurological problem where I am constantly making sucking noises in my
mouth/teeth.  Sounds awful but I have come to terms with it and if people
want to stare at me...well, oh well.



Being alive is such a blessing so hang in there
  ..stay positive and do your homework and if you read about alternative
therapies which can help, don't turn a blind eye to them.  Last year I ran
across hemp oil and use that now.  Sorry for all the blab...hope something
helped.



all the best,

karima




Hi,

I hope everyone is doing well. Friday (the 13th, felt lucky to me though) was my
birthday. The 1st birthday since I was diagnosed last December, I felt so lucky
to be here still. Went out with friends and celebrated. Had port removed Oct 5
and hope I never need it again. I still get stressed every time I do not feel
good and have some anxiety issue along with numb fingers and toes. Otherwise
things are good. How is everyone else?

--- In colon_cancer_support@yahoogroups.com , "Irene" <reeneeone@...> wrote:
>
> Hi Everyone,
>
> Where did everyone go? I know we all miss our favorites but don't you think it
is unfair to those that are gone and tried so hard to help everyone, to just
give in and say, I just can't do it anymore. These wonderful people gave their
all for us. Time we stand together and finish the job they can no longer do. I
also miss them, and it is hard to open the emails and not hear from them, but we
can do it for them. Come on, give a shout! Lets hear happy dancing for all of us
that are still here and have to plug along. Best wishes and praying for all of
you.
>
> Sincerely,
> Irene
>
> [Non-text portions of this message have been removed]
>




[Non-text portions of this message have been removed]

Hi Everyone,

Denise, Glenda, Doug, Mamie, and Chris - I knew you were all out there.  Thanks
for coming through.  I know we can have this group fired up again.  I myself
don't come on as often as I could, but I will make the effort to do it more.  We
all need each other and each others idea's and wisdom.

Glenda, I wish you were not in so much pain, I will pray that God heals you, and
that you will feel better soon.

My love and prayers for you all,
Irene

[Non-text portions of this message have been removed]

Hi all,

I've been on but haven't had much to say.  Stopped chemo and feeling great.  Go
to see the onc. the day before Thanksgiving and will see what the CEA says at
that time.

Love reading all the posts and seeing the happy dances going on:)  Don't ever
give up hope that something can be done.  And take charge of your own
life...that's what I have learned from some of the best teachers here.  We can't
let others control us...it's our body and we have the right to decide what to do
and when to do it.

Wishing everyone a blessed day!

Elaine

--- In colon_cancer_support@yahoogroups.com, "Irene" <reeneeone@...> wrote:
>
> Hi Everyone,
>
> Where did everyone go?  I know we all miss our favorites but don't you think
it is unfair to those that are gone and tried so hard to help everyone, to just
give in and say, I just can't do it anymore.  These wonderful people gave their
all for us.  Time we stand together and finish the job they can no longer do.  I
also miss them, and it is hard to open the emails and not hear from them, but we
can do it for them.  Come on, give a shout!  Lets hear happy dancing for all of
us that are still here and have to plug along.  Best wishes and praying for all
of you.
>
> Sincerely,
> Irene
>
> [Non-text portions of this message have been removed]
>

Hi, Irene and everyone!  I am still here but mostly reading mail and sending up
prayers.  I have a lot going on trying to get SSI so we can get Medicaid for my
dd2 who has Spina Bifida.
  I am also dealing with some physical stuff myself.  I am having a time
figuring out what will and won't cause me severe bowel pains.  Some days are
better than others. However, I am keepin' on keepin' on!  I have joined a group
of ladies at the base.  They are mostly breast cancer survivors but tell me that
cancer is cancer and I am part of the sisterhood.
  So, there's where I am at for now!  Glenda
 One second, one minute, one step, one day at a time!  Waiting patiently on
God's own time!

-















[Non-text portions of this message have been removed]

Hi Irene and Denise,
 
I'm here!  I don't always have the energy to answer e-mails.  Today is a good
day since tomorrow is chemo.  But I always love to hear from everybody even if
I seem invisible!
 
Doug

--- On Sun, 11/15/09, Denise Dawson <mystc1celt@...> wrote:


From: Denise Dawson <mystc1celt@...>
Subject: Re: [colon_cancer_support] Re: ..... plus just chat./ IRENE
To: colon_cancer_support@yahoogroups.com
Date: Sunday, November 15, 2009, 5:48 PM


 



Irene,

You're right, it seems like the group has just kind of dribbled away, hasn't
it.  I'm still here, I read all the time, but often don't have answers for new
people as I haven't experienced what they may be asking about.  But I'm always
here and I'll try to speak up more often.

Okay, that means Donelle, Narice, Joyce, Karima, and a few others I won't name
because I can't think of them at the moment...lol

So happy dancing for all good news and prayers for all of us here, always.

Denise

--- On Sun, 11/15/09, Irene <reeneeone@comcast. net> wrote:

From: Irene <reeneeone@comcast. net>
Subject: [colon_cancer_ support] Re: ..... plus just chat./ IRENE
To: colon_cancer_ support@yahoogro ups.com
Date: Sunday, November 15, 2009, 1:35 PM

 

Hi Everyone,

Where did everyone go? I know we all miss our favorites but don't you think it
is unfair to those that are gone and tried so hard to help everyone, to just
give in and say, I just can't do it anymore. These wonderful people gave their
all for us. Time we stand together and finish the job they can no longer do. I
also miss them, and it is hard to open the emails and not hear from them, but we
can do it for them. Come on, give a shout! Lets hear happy dancing for all of us
that are still here and have to plug along. Best wishes and praying for all of
you.

Sincerely,

Irene

[Non-text portions of this message have been removed]

[Non-text portions of this message have been removed]








[Non-text portions of this message have been removed]

Hi,

I hope everyone is doing well.  Friday (the 13th, felt lucky to me though) was
my birthday. The 1st birthday since I was diagnosed last December, I felt so
lucky to be here still.  Went out with friends and celebrated.  Had port removed
Oct 5 and hope I never need it again.  I still get stressed every time I do not
feel good and have some anxiety issue along with numb fingers and toes. 
Otherwise things are good.  How is everyone else?

--- In colon_cancer_support@yahoogroups.com, "Irene" <reeneeone@...> wrote:
>
> Hi Everyone,
>
> Where did everyone go?  I know we all miss our favorites but don't you think
it is unfair to those that are gone and tried so hard to help everyone, to just
give in and say, I just can't do it anymore.  These wonderful people gave their
all for us.  Time we stand together and finish the job they can no longer do.  I
also miss them, and it is hard to open the emails and not hear from them, but we
can do it for them.  Come on, give a shout!  Lets hear happy dancing for all of
us that are still here and have to plug along.  Best wishes and praying for all
of you.
>
> Sincerely,
> Irene
>
> [Non-text portions of this message have been removed]
>

Irene,

You're right, it seems like the group has just kind of dribbled away, hasn't
it.  I'm still here, I read all the time, but often don't have answers for new
people as I haven't experienced what they may be asking about.  But I'm always
here and I'll try to speak up more often.

Okay, that means Donelle, Narice, Joyce, Karima, and a few others I won't name
because I can't think of them at the moment...lol

So happy dancing for all good news and prayers for all of us here, always.

Denise

--- On Sun, 11/15/09, Irene <reeneeone@...> wrote:

From: Irene <reeneeone@...>
Subject: [colon_cancer_support] Re: ..... plus just chat./ IRENE
To: colon_cancer_support@yahoogroups.com
Date: Sunday, November 15, 2009, 1:35 PM







 









       Hi Everyone,



Where did everyone go?  I know we all miss our favorites but don't you think it
is unfair to those that are gone and tried so hard to help everyone, to just
give in and say, I just can't do it anymore.  These wonderful people gave their
all for us.  Time we stand together and finish the job they can no longer do.  I
also miss them, and it is hard to open the emails and not hear from them, but we
can do it for them.  Come on, give a shout!  Lets hear happy dancing for all of
us that are still here and have to plug along.  Best wishes and praying for all
of you.



Sincerely,

Irene



[Non-text portions of this message have been removed]

























[Non-text portions of this message have been removed]

You got that right Irene!  I like you miss everone also, but i need this
group.  I will happy dance if you will. Prayers for everyone.  Mamie

--- On Sun, 11/15/09, Irene <reeneeone@...> wrote:


From: Irene <reeneeone@...>
Subject: [colon_cancer_support] Re: ..... plus just chat./ IRENE
To: colon_cancer_support@yahoogroups.com
Date: Sunday, November 15, 2009, 1:35 PM


 



Hi Everyone,

Where did everyone go? I know we all miss our favorites but don't you think it
is unfair to those that are gone and tried so hard to help everyone, to just
give in and say, I just can't do it anymore. These wonderful people gave their
all for us. Time we stand together and finish the job they can no longer do. I
also miss them, and it is hard to open the emails and not hear from them, but we
can do it for them. Come on, give a shout! Lets hear happy dancing for all of us
that are still here and have to plug along. Best wishes and praying for all of
you.

Sincerely,
Irene

[Non-text portions of this message have been removed]











[Non-text portions of this message have been removed]

Hi Everyone,

Where did everyone go?  I know we all miss our favorites but don't you think it
is unfair to those that are gone and tried so hard to help everyone, to just
give in and say, I just can't do it anymore.  These wonderful people gave their
all for us.  Time we stand together and finish the job they can no longer do.  I
also miss them, and it is hard to open the emails and not hear from them, but we
can do it for them.  Come on, give a shout!  Lets hear happy dancing for all of
us that are still here and have to plug along.  Best wishes and praying for all
of you.

Sincerely,
Irene

[Non-text portions of this message have been removed]

Hi Jaynee,

I know everything will be allright with your colonoscopy,and how wonderful to
celebrate another birthday.  I can certainly understand how that is, I was 55
when I was diagnosed, and I will be 65 in January.  When I was first diagnosed,
I really thought I would be long gone by now.  But I guess God has another plan
for me.

Hope you have a wonderful birthday.  We will all be happy dancing for you.

Why don't doctors tell us about probiotics, instead they give us Imodium and
Lotril (Spelling) for diarrhea, which I hate, it makes me so bloated and crampy.
What you suggested sounds much better..  I will see my Onc on Monday and I will
tell her about it and see what see says.

Well, I will be praying for a good report for you and a wonderful Birthday.

Sincerely,
Irene

[Non-text portions of this message have been removed]

Hi Jaynee,
 
I checked the Internet and didn't find much on the levels.  My oncologist gave
me those figures.  I remember him also saying he didn't put much into the number
as long as it was going down.  This is probably one of those topics where there
are lots of answers depending on who is asked.
 
Doug

--- On Sun, 11/1/09, weisssoccermom <weisssoccermom@...> wrote:


From: weisssoccermom <weisssoccermom@...>
Subject: Re: [colon_cancer_support] Re:I am back again
To: colon_cancer_support@yahoogroups.com
Date: Sunday, November 1, 2009, 1:50 AM


 



I haven't been on the boards lately - very busy.  Just now reading all of my
emails.  I don't know where you got those figures from - could you elaborate
please, Doug??  I have always read and been told by my onc that normal CEA
levels for non smokers are from 0 - 2.5/3.0 depending on the lab and up to 5 for
a smoker.  I have NEVER heard of a 10 being normal for a smoker or non smoker.

Jaynee

____________ _________ _________ __
From: DOUG ANDERSON <douand1965@att. net>
To: colon_cancer_ support@yahoogro ups.com
Sent: Sat, October 17, 2009 9:05:25 AM
Subject: Re: [colon_cancer_ support] Re:I am back again

 
Hi Irene,
 
CEA is a measure of cancer in the blood and is mostly used for colon cancer.  A
normal CEA is 5 and 10 for smokers.  The number isn't usually comparable to
other patients.  Mine is 14 but was about 5600 when I started treatment.
 
Hope this helps,
 
Doug

--- On Sat, 10/17/09, Irene <reeneeone@comcast. net> wrote:

From: Irene <reeneeone@comcast. net>
Subject: [colon_cancer_ support] Re:I am back again
To: colon_cancer_ support@yahoogro ups.com
Date: Saturday, October 17, 2009, 12:00 PM

 

Hi Everyone.

Last time I wrote i said my scan came back clean. Well, now my CEA is
34, does anyone know what that means? I am having a pet scan on Wednesday,
hopefully nothing will show up. I could use a few prayers. Thanks for all of
your support in the past.

Sincerely,
Irene

[Non-text portions of this message have been removed]

[Non-text portions of this message have been removed]

[Non-text portions of this message have been removed]
















[Non-text portions of this message have been removed]

Has anyone heard from Chuck?

Has anyone heard from Chuck?

Irene,

Thanks for asking.  I am doing fine - birthday is coming up on Monday (16th) so
am happy that there is another one to be celebrated and hopefully still NED! 
My two year colonoscopy is scheduled for Thursday (19th) so I'm not at all
excited about prepping for that.  I take the OsmoPrep pills so don't have the
worry about the nasty taste part of it but I am getting very stressed about the
whole ' try to find a vein' part of the procedure.  Last time it took two
anestheioslogists (I am allergic to the demerol and versed so have my scopes
done in the hospital with propofol) over 45 minutes looking for a vein before
they gave up and gassed me and then stuck the needle in - actually I don't know
and don't want to know!  So, understandably, I'm not looking forward to that at
all.  The pills are great BUT they easily can dehydrate you making vein finding
even more difficult.  Once you have chemo, as we all know, finding a vein is
difficult - then add to
  that being dehydrated and it's an even bigger nightmare!  So, really not
looking forward to that.  Yesterday I had to have blood tests (yearly physical
also coming up as well as the normal blood work) and my arm looks like a black
and blue pincushion!  My numbers on yesterday's blood work were still ok, but
my Hgb and Hct both did drop - still well within 'normal' range but that also
has me nervous!  I know I'm overreacting but we all know how easy it is to do
that with this nasty disease.

Hopefully a probiotic will help you with the diarrhea.  Nothing about it should
hurt you as it's no different than what's in yogurt or anything else that has
added probiotics.  Just remember that the chemo, like an extended course of
antibiotics, will kill off the good bacteria in our GI tract and that bacteria
is essential in helping us digest our food correctly.

Hope you all have a good weekend and stay warm and dry.  I know we're having
another bad storm here in the Pac NW and I've heard and seen on the news that
the eastern seaboard is also getting hit with some nasty weather.  Everyone
stay dry and be careful out there - particularly if you live near coastal
waters.  Our surf is supposedly running pretty high.  We're also potentially
going to get hit with some snow in the elevations around 750+ feet which means
us.  The mountains - well that's another story - glad I'm not going over the
pass this weekend for any reason!

Have a good weekend.  Irene, take care and take it easy.  You'll get through
this - am confident about it.

Hugs to everyone,
Jaynee




________________________________
From: Irene <reeneeone@...>
To: colon_cancer_support@yahoogroups.com
Sent: Thu, November 12, 2009 1:05:36 PM
Subject: [colon_cancer_support] Re: ..... plus just chat./ IRENE

 
Hi Jaynee,

Thanks for all the good info. I just came from Wal-Mart and got the Sustenex, I
will wait to ask my doctor before I take it though. I had my first treatment of
Avastin on Monday and I have been taking Xeloda since then as well, and I have
not had a bowel movement yet. This is how it is always when I start treatment of
any kind. With my first bowel movement will come misery, I can't get it to start
and when it does I can't get it to stop. So many times I have passed out of the
toilet, and my husband is on the phone to 911. I usually convince them that I
will be alright - that this is normal for me, and they believe me and go along
their way. Not looking forward to first movement.

How are you doing? I think of you often, we have been through a lot of the same
things so I know that it hasn't been easy for you. Take care and keep a positive
attitude. I pray for everyone of this site.

Sincerely,
Irene

[Non-text portions of this message have been removed]







[Non-text portions of this message have been removed]

Donna, hope your scans went well.  Take care, Susan



On Sun, Nov 8, 2009 at 10:35 PM, Donna Wilkinson <wilkinsondjm@...>wrote:

>
>
> I too have not been on so trying to catch up here a bit.
> I went into panic mode in Sept when my cea went up to 2.9 because the max
> was 3.  I have been increasing slowwwllllly over a few months.  My cea seems
> to be more of a trend. When I had mets to liver my cea was 8 which is the
> highest it has been vs some of you who talk about such high counts.  Anyhow,
> my onc said that the range changed and I think it now goes to 5 and higher
> for smokers.  I can't remember but he showed me something that the ranges
> had been raised.
> I missed my scans last week so I will go on Tuesday!
> Praying for everyone - hugs to you - donna
>
> --- On Sun, 11/1/09, weisssoccermom
<weisssoccermom@...<weisssoccermom%40yahoo.com>>
> wrote:
>
> From: weisssoccermom <weisssoccermom@...<weisssoccermom%40yahoo.com>
> >
>
> Subject: Re: [colon_cancer_support] Re:I am back again
> To:
colon_cancer_support@yahoogroups.com<colon_cancer_support%40yahoogroups.com>
> Date: Sunday, November 1, 2009, 1:50 AM
>
>
>
>
> I haven't been on the boards lately - very busy.  Just now reading all of
> my emails.  I don't know where you got those figures from - could you
> elaborate please, Doug??  I have always read and been told by my onc that
> normal CEA levels for non smokers are from 0 - 2.5/3.0 depending on the lab
> and up to 5 for a smoker.  I have NEVER heard of a 10 being normal for a
> smoker or non smoker.
>
> Jaynee
>
> ____________ _________ _________ __
> From: DOUG ANDERSON <douand1965@att. net>
> To: colon_cancer_ support@yahoogro ups.com
>
> Sent: Sat, October 17, 2009 9:05:25 AM
> Subject: Re: [colon_cancer_ support] Re:I am back again
>
>
> Hi Irene,
>
> CEA is a measure of cancer in the blood and is mostly used for colon
> cancer.  A normal CEA is 5 and 10 for smokers.  The number isn't usually
> comparable to other patients.  Mine is 14 but was about 5600 when I started
> treatment.
>
> Hope this helps,
>
> Doug
>
> --- On Sat, 10/17/09, Irene <reeneeone@comcast. net> wrote:
>
> From: Irene <reeneeone@comcast. net>
> Subject: [colon_cancer_ support] Re:I am back again
> To: colon_cancer_ support@yahoogro ups.com
> Date: Saturday, October 17, 2009, 12:00 PM
>
>
>
> Hi Everyone.
>
> Last time I wrote i said my scan came back clean. Well, now my CEA is
> 34, does anyone know what that means? I am having a pet scan on Wednesday,
> hopefully nothing will show up. I could use a few prayers. Thanks for all of
> your support in the past.
>
> Sincerely,
> Irene
>
> [Non-text portions of this message have been removed]
>
> [Non-text portions of this message have been removed]
>
> [Non-text portions of this message have been removed]
>
> [Non-text portions of this message have been removed]
>
>
>


[Non-text portions of this message have been removed]

Hi Jaynee,

Thanks for all the good info.  I just came from Wal-Mart and got the Sustenex, I
will wait to ask my doctor before I take it though.  I had my first treatment of
Avastin on Monday and I have been taking Xeloda since then as well, and I have
not had a bowel movement yet.  This is how it is always when I start treatment
of any kind.  With my first bowel movement will come misery, I can't get it to
start and when it does I can't get it to stop.  So many times I have passed out
of the toilet, and my husband is on the phone to 911.  I usually convince them
that I will be alright - that this is normal for me, and they believe me and go
along their way.  Not looking forward to first movement.

How are you doing?  I think of you often, we have been through a lot of the same
things so I know that it hasn't been easy for you.  Take care and keep a
positive attitude.  I pray for everyone of this site.

Sincerely,
Irene

[Non-text portions of this message have been removed]

Cabbage is a vegetable crop that is easy to find in the vegetable market
or even in our garden.But do you know what is the benefits of cabbage?
In fact, many substances or compounds contained in the cabbage that can
be used as natural medicine, one of the most famous is to treat stomach
ulcers. Read more at http://healtnhappyness.blogspot.com/
<http://healtnhappyness.blogspot.com/>


[Non-text portions of this message have been removed]

Irene,

Xeloda + Avastin is a common protocol.  There're or have been a fair amount of
people on it (check out the colonclub).  One of my friends, Terry, is now on
just the Xeloda + Avastin.  Her doctors had her on XELOX + Avastin for 4 months,
then Xeloda + Avastin for an additional 4 months and after the first of the
year, she'll be on XELIRI (too much neuropathy from the oxi) + Avastin.  I just
talked with her today and she's had absolutely NO problems with the
Xeloda/Avastin protocol and says it so much easier for treatment - very quick. 
Another clubber in Vancouver BC is also on the Xeloda + Avastin with great
results for both people. As for the diarrhea with the Xeloda long term, I
suggest you get a good probiotic.  When I was on Xeloda for 5- 6 months, I
noticed that with the probiotic the diarrhea issues were pretty non existent. 
Remember that the Xeloda, while very good at killing off cancer cells, is also
helping to kill off the good bacteria
  in your intestines that your body needs for digestion.  Honestly, you need more
of this than you can get in eating yogurt which is why I highly recommend taking
a probiotic.  I tried a few different ones and particularly felt that Sustenex
(found in the tummy aisle in places like WalMart or Walgreens) did the trick for
me.  During chemo I would take one in the AM and one in the PM - now three years
later, I still take one a day.

Hope this helps.

Jaynee




________________________________
From: Irene <reeneeone@...>
To: colon_cancer_support@yahoogroups.com
Sent: Wed, November 4, 2009 8:23:16 AM
Subject: [colon_cancer_support] Re: ..... plus just chat./ IRENE

 
Hi Everyone,

I was wondering if any one here has had the combination of Xeloda and Avastin
like I will be having starting on Monday. I had Xeloda for three years by itself
and had good results but lots of diarrhea. I had Avastin with good results but
had it with Camptosar. Kind of afraid of the two together. Any feedback from
someone who had the two would be greatly appreciated.

Sincerely,
Irene

[Non-text portions of this message have been removed]







[Non-text portions of this message have been removed]

Hello to all,

I am new to this group.  Last year my husband was diagnosed with colon cancer,
genetic, and had his entire colon removed, this year he had more polyps now on
his rectum and a twist in the intestine requiring more surgery.  I am curious if
there is any information about nutrition and diet out there -- he does not hold
food in his system very long, his energy level has diminished considerably, and
everything I find on the internet involves the diet immediately following the
surgery.  I am looking for informatin regarding a long term diet to help his all
over health.  Any advice or direction would be greatly appreciated.

Bobbie

Thanks Donelle, Chris & Irene!



On Wed, Nov 11, 2009 at 12:36 PM, Irene <reeneeone@...> wrote:

>
>
> Hi Susan,
>
> I am so happy for you, it is great to hear good news here. I will pray that
> you stay well and you keep a positive attitude.
>
> Sincerely,
> Irene
>
>
> [Non-text portions of this message have been removed]
>
>
>


[Non-text portions of this message have been removed]

Hi Susan,

I am so happy for you, it is great to hear good news here.  I will pray that you
stay well and you keep a positive attitude.

Sincerely,
Irene

[Non-text portions of this message have been removed]

*throws confetti*  Susan I am so happy for you! I remember we were both going
through our chemo around the same time.  Such a relief to know that you are
doing well.

--- In colon_cancer_support@yahoogroups.com, Susan W <javabean117@...> wrote:
>
> Good afternoon group!
>
> Just got back home from appointment with oncologist.....
> Good News, scans I had done last Thursday came back
> looking good!  What a relief, it was my 1st 3 month  checkup
> since finishing chemo so still new at this, but I'm sure it's
> stressful even after years.
>
> Next week marks the anniversary of my surgery to have the
> tumor removed so I guess it's normal procedure to have a
> colonoscopy done, oh joy!  Now that I have a colostomy I
> don't know if  it will be better or worse, anyone here have
> experience in that department and give me any pointers?
>
> Best wishes to everyone here!!!!
>
> Susan
>
>
> [Non-text portions of this message have been removed]
>

Doing the Happy Dance for Susan!

Hugs, Donelle


-----Original Message-----
From: Susan W <javabean117@...>
To: colon_cancer_support@yahoogroups.com
Sent: Tue, Nov 10, 2009 2:27 pm
Subject: [colon_cancer_support] Sigh of Relief : )



Good afternoon group!
Just got back home from appointment with oncologist.....
ood News, scans I had done last Thursday came back
ooking good!  What a relief, it was my 1st 3 month  checkup
ince finishing chemo so still new at this, but I'm sure it's
tressful even after years.
Next week marks the anniversary of my surgery to have the
umor removed so I guess it's normal procedure to have a
olonoscopy done, oh joy!  Now that I have a colostomy I
on't know if  it will be better or worse, anyone here have
xperience in that department and give me any pointers?
Best wishes to everyone here!!!!
Susan

Non-text portions of this message have been removed]

------------------------------------
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ttp://ourworld.compuserve.com/homepages/suthercon/
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