Hello, and welcome to the Colon Cancer Support Group! There don't seem to be a lot of "open membership" Colon Cancer BBs out there...so I thought I'd add this...
I want to thank you for always having the answers. This board is destined to be one of knowledge, understanding, compassion and strength. Thank you for...
tinkami
olsen939@...
Jan 6, 2002 4:02 pm
4
Ah, my friend from Supportpath...glad you're here! Hope that everything is going well with you - feel free to give an update about yourself if you'd like! I...
Thankyou Keith for the invite to the group. Some things here have changed. We have to postpone the trip to Baltimore for the Radioactive Micropheres and...
Gee, I'm sorry to hear about that - I and everyone will certainly be thinking of you guys this week, please be sure you let us know what happens. I have a...
Keith: How you are able to do all of this for all of us is utterly amazing! I'm sure everyone, including me, appreciates it so much. I have been lost without...
I'll just take a moment to say hello to everyone after a long absence. I didn't post often on the CC board,and as far as I know,I don't have CC,but I read your...
mary baldwin
qmbaldwin@...
Jan 7, 2002 2:18 am
10
Hi Baylee, Thanks for posting! Actually, out of all of us, I suspect that you are most likely to get a response from Annette since you have already ...
Keith,if I hear back from her,I certainly will ask about getting a cd of the archived cc board posts.In fact,if I DON'T hear back in a week or so,I'll try...
mary baldwin
qmbaldwin@...
Jan 7, 2002 4:42 am
12
I need you guys to talk to me about a problem I am having. 7 months ago I had my rectum removed because of a tumor and since then I have not been able to get...
Welcome to the board Amie, I'm glad you're here! That's a good idea about posting a "summary story" (my own is in the first post!) as not only are the...
Hiya Amie, I too just started on CPT 11, Leucevorin and 5FU. I had some pretty bad side effects even AFTER a dose reduction, that they have decided to try me ...
I hope I am not the only one who has ever wondered the answers to my questions below. Does anyone know if it is normal to have pain when the chemo drugs are...
Hello All, Wow, I see new people are joining quickly. Thought maybe it would be appropriate to do a roll call, to see where everyone is from, how old they...
Hi, You are asking the $1,000,000 question. I tried to discuss the pain issue with my doctor............... He just said "It's the liver" No kidding, I want to...
tinkami
olsen939@...
Jan 7, 2002 6:35 am
18
Has anybody tried Glutamine for chemo side effects (diarrhea)? They seem to be encouraging patients to take this where I go, they even set up a clinical trial...
... cd of the ... so,I'll ... Thanks Baylee, I appreciate that! ... letter to all ... on "REPLY ... ask them ... something like ... The advantage of a board is...
... They ... I did use the Glutamine for a couple of months but not for that purpose. I was in so much pain at one time that I was unable to eat and loss most...
tinkami
olsen939@...
Jan 7, 2002 5:13 pm
21
Thank you, Keith, for setting this up. I also was really missing the bb, and am so glad to be in communication with everyone again. My story: 38 yr old F,...
oconnor@...
Jan 7, 2002 8:23 pm
22
I was diagnosed with colon cancer in July of 1999 with liver mets. I had radiation ...regular and a few treatments of 5FU. I had diarrhea from it and had a PET...
cliffmas@...
Jan 8, 2002 1:57 am
23
Hi Keith, GROOOAAANNNN!! I had a whole message just about ready to go to you,and hit a wrong key someplace by accident and POOF!! it was gone. Anyway,I did...
Hi Cliff, thanks so much for posting your story! Actually, you are partly responsible for my own decision to pursue Conformal Radiation, it is definitely not...
Hey that's great! I think you'll find that a lot easier than e-mails - your friends are gonna love it! I've run into the POOF problem too...a lot of times...
Hi Kathy, glad you're here! Your story brings up an interesting point... "Most" stage III's seem to be on 5-FU+Leucovorin only, I guess Camptosar is...
I forgot to add that I had four liver mets ..largest one was 2 CM. They shrank, but they didn't disappear and no new growth. I have been getting CTscans @...
cliffmas@...
Jan 8, 2002 7:55 pm
28
THANK YOU FOR FINDING ME!!! I TRIED FOR WEEKS TO FIND YOU GUYS AND SEE HOW ALL WAS GOING AND THEN YESTERDAY MY WORLD FELL APART AND ALL I COULD THINK OF WAS...
allcured
sherbear@...
Jan 8, 2002 9:28 pm
29
Hi, my name is Holly, I posted on the SupportPath board a couple of times, and would read it regularly until it went down. My mom is 61 years old, with stage...
Steve & Holly
shhayhoe@...
Jan 9, 2002 12:51 am
30
Sherry, I'm so sorry to hear of your husband's surgery & unpleasant discovery. This must have been his "first" surgery (to remove the primary) and he was on...
Thank you for responding........They discovered the cc in October during a resection (for Mike's Crohns disease) They were not looking for or expecting cc at...
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