Hey Chuck ,
The problem with this bill was that Joe was NEVER seen there, and more
specifically not AFTER his death, which is when they say he came in for
treatment.
Drives me nuts for sure.
The kids are doing fairly well. Our daughter will be 18 next month which seems
impossible. She has her own medical issues and has to see a neurologist (to be
scheduled hopefully soon) since the neuro surgeon can't seem to fix her anymore.
She starts her 2nd year of college this fall ( she graduated at 16) and still
doesn't know what she wants to major in, but who does at 17?
Our 10 yr old son has joined a new program called
West Michigan Flight Academy.
They teach the kids throughout their school years all about airplanes, weather,
flying etc.
The goal is by the time they graduate highschool they will have their pilot
license.
Ben has already been up and piloted a 4 seater will the instructor acting as the
co-pilot read a manual.
Within a year or two the instructor wants to have them flying totally solo!!!!
Gulp.
He gets his flight suit I believe within the next few months. When he gets it I
will post pictures with him in it.
Hope all is well , at least as well as can be .
Deb
33yrold husband Joe,
diagnosed with CC in Sept,
resection on Sept 27th 2004
mets to abdominal wall lining 3 lymph nodes involved
open wound from infection until Jan 2005
Chemo regiment begun Jan 2005
folfox added Feb 14 2005 (Happy Valentines :(
May 9 Plateletts are low 75,000
Chemo is DONE June 6th 2005. NED
First week of July 2006 ascites starts.
Rediagnosed July 9th 2006 , surgery not an option, cancer spread throughout
abdomen.
Aug 6 , chemo started Folfiri w/Avastin
Joe decided to end all treatment.
Oct 1st 2007 Joe enters Hospice care at home. Never has hospital bed, or any
other aids.
Joseph Peter VandenBos Jr. passed away
Oct 27, 2006 at the age of 35 yrs old , with me by his side.stubborn to the end
Joe's last saying "Remember me how I was not how I am"
--- On Sun, 7/5/09, Chuck <coyote613@...> wrote:
From: Chuck <coyote613@...>
Subject: [colon_cancer_support] Re: About Cancer Center of America
To: colon_cancer_support@yahoogroups.com
Date: Sunday, July 5, 2009, 3:52 PM
Hi Deb,
It's too late. Hospitals in California are sending out bills to patients for
services not charged to insurance. No matter how much insurance companies pay,
the patient gets another bill. There is no notice, no rate sheet nothing. Figure
$500.00 a day for unspecified charges. And if you think that you won't pay,
think again. Although a letter from a congressman is about the best you can do.
My point is... it might not have been a mistake.
How's the children, Deb? Anything interesting?
Chuck
--- In colon_cancer_ support@yahoogro ups.com, deb vamdembos <debbied31@. ..>
wrote:
>
> I would like to tell you our little bit of experience with Cancer Center of
America based out of Illinois.
> My husband called there when his reoccurence happened. Just to get information
on their protocol etc. We decided not to go there , since it was out of state.
> My husband passed away in Oct 2006
> In I want to say June 2008 I got a BILL from them for supposedly treatment my
husband received in 2007 , yes apparently he was receiving treatment there AFTER
he died!!!
> I was furious and called the billing department , where I was told they would
look into it.
> 2 months later I received this bill again.
> I called back again , and was told "Sometimes this happens"
> HOW THE HECK can this happen. Joe was NEVER EVER seen there, he just called
(free call by the way) to get info. that was IT.
> It took a call to the Illinois Attorney General's office to get this matter
settled.
> I am still irate thinking about it,
> If I had been newly widowed, I would have not payed attention and just paid
the damn bill ( 200 bucks!)
> Imagine how many similar situations their are like mine, and I am sure at
least one or two have been paid.
>
> UGH!!
>
>
> 33yrold husband Joe,
> diagnosed with CC in Sept,
> resection on Sept 27th 2004
> mets to abdominal wall lining 3 lymph nodes involved
> open wound from infection until Jan 2005
> Chemo regiment begun Jan 2005
> folfox added Feb 14 2005 (Happy Valentines :(
> May 9 Plateletts are low 75,000
>
>
> Chemo is DONE June 6th 2005. NED
> First week of July 2006 ascites starts.
> Rediagnosed July 9th 2006 , surgery not an option, cancer spread throughout
abdomen.
> Aug 6 , chemo started Folfiri w/Avastin
> Joe decided to end all treatment.
> Oct 1st 2007 Joe enters Hospice care at home. Never has hospital bed, or any
other aids.
> Joseph Peter VandenBos Jr. passed away
> Oct 27, 2006 at the age of 35 yrs old , with me by his side.stubborn to the
end
> Joe's last saying "Remember me how I was not how I am"
>
> --- On Sun, 7/5/09, goerne5 <goerne5@... > wrote:
>
>
> From: goerne5 <goerne5@... >
> Subject: [colon_cancer_ support] Re: My sister
> To: colon_cancer_ support@yahoogro ups.com
> Date: Sunday, July 5, 2009, 8:19 AM
>
>
>
>
>
>
>
>
> I go to the Cancer Treatment Center in Zion, IL. I haven't talked to anyone in
nutrition yet as my schedule when I'm there has not worked it in yet.
>
> I go back in August to start chemo. It will be Xeloda and either Erbitux or
Avastin, depending on a genetic test the dr. is doing. So, I'm sure I will see a
nutrionist then.
>
> Right now I am reading a book by Dr. Keith Block, "Life Over Cancer", which
gives you some tips about nutrition and exercise. It's interesting.
>
> Best of luck to your sister and I will be praying for her.
>
> Elaine
>
> --- In colon_cancer_ support@yahoogro ups.com, NARICE MAY <narice_may@ ...>
wrote:
> >
> > Hugs
> > I don't want to totally knock
> > Cancer Treatment Centers of America
> > but please note they are no better or worse than anywhere else.
> > In otherwords if you are near one and want to try it go right ahead but if
not
> > you might do just as well with her own doctor and a nutititionist where she
is.
> >
> > It is important to have good nutrition but understand
> > it is one weapon in the fight not a cure.
> > The other thing you'll want to check is what foods
> > and supplements interact with chemo. Some of the antioxidents
> > have to be spaced and some fruits and veggies must be cooked or
> > eaten later in a chemo round to get the best of both.
> >
> > Talk with whomever she goes with for treatment so you get the best advice
for her
> > Best Wishes
> >
> >
> > Narice
> > Erie,PA
> > "When there is nothing left but God
> > That is when you find out that God is all you need."
> >
> >
> >
> >
> >
> >
> >
> > ____________ _________ _________ __
> > From: homefelixblack <Cartsx3@ >
> > To: colon_cancer_ support@yahoogro ups.com
> > Sent: Friday, July 3, 2009 10:00:16 AM
> > Subject: [colon_cancer_ support] My sister
> >
> >
> >
> >
> >
> > It's been a LONG time since I've been on here. My sister made it through her
gruelling year of treatment in April, had her scan, deemed cancer-free, port
removed, then began the process of trying to be "normal". One week ago she had
an abdominal ct due to very rapid onset of ascites. She was told she has
peritoneal nodularities throughout her abdomen, likely a recurrence of the colon
cancer. We're waiting on diagnosics to come back on the needle biopsy that was
performed on Wednesday before a treatment regimen is determined.
> >
> > Does anyone here have experience with this horrible situation? I've read
articles that the Cancer Tx Centers of America do a chemo-perfusion technique
that has had good success in increasing intervals of health in a person with
advanced abdominal cancer, which is what I suspect Kelly will be diagnosed with.
Her nutritional status is atrocious, she barely skims 100 pounds. I see on the
CTCA website that they focus heavily on nutrition, which is what I think will be
Kelly's biggest problem.
> >
> > My heart is so heavy; can anyone help?
> >
> > Thank you,
> > Ginger
> >
> >
> >
> >
> > [Non-text portions of this message have been removed]
> >
>
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> [Non-text portions of this message have been removed]
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