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Links > Death and Dying

Name Creator
Folder Medical Journal Articles
 
Folder Near Death Experience
 
1 Hospice net
Articles about hospice, death and dying
http://www.hospicenet.org/
altman23
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A Dying Person's Guide to Dying
Roger C. Bone, M.D. The central theme of the Home Care Guide for Advanced Cancer is that planning near the end of life is helpful. By thinking ahead about what could happen - and about how you will deal with problems if they do happen, you can create a better life and a better quality of life for yourself and for the people who love and care about you. What I have to say is for the person who, like myself, is dying. We, too, need to plan - to think ahead in order to fashion, out of the time remaining, the best of what is possible
http://www.acponline.org/public/h_care/contents.htm
altman23
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A story of love, fear, sadness, grief and death
Newspaper columnist tells the story of his wife's death from cancer
http://www.newsobserver.com/gearino/story/2770427p-2567723c.html
altman23
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An Agnostic's Encounter with God
by Arlene Harder
http://www.learningplaceonline.com/spirit/search/agnostic-1.htm
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Beyond Indigo
Essays on grief and loss
http://www.beyondindigo.com/
altman23
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Book Review - No Death, No Fear: Comforting Wisdom for Life
ISBN 1-57322-221-6
http://www.spiritualityhealth.com/newsh/items/bookreview/item_4553.html
altman23
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Books on Death, Dying, Hospice, Grief, Bereavement
from Growth House
http://www.growthhouse.org/books/books.htm
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Cancer patients' information needs and information seeking behaviour: in depth interview study
BMJ 2000;320:909-913 ( 1 April ) While all patients wanted basic information on diagnosis and treatment, not all wanted further information at all stages of their illness. Three overarching attitudes to their management of cancer limited patients' desire for and subsequent efforts to obtain further information: faith, hope, and charity. Faith in their doctor's medical expertise precluded the need for patients to seek further information themselves. Hope was essential for patients to carry on with life as normal and could be maintained through silence and avoiding information, especially too detailed or "unsafe" information
http://bmj.com/cgi/content/full/320/7239/909
altman23
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Casketstores.org
funeral choices, options and statistics
http://www.casketstores.org
savcash
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Collusion in doctor-patient communication about imminent death: an ethnographic study
BMJ 2000;321:1376-1381 ( 2 December ) FULL TEXT ARTICLE "False optimism about recovery" usually developed during the (first) course of chemotherapy and was most prevalent when the cancer could no longer be seen in the x ray pictures. This optimism tended to vanish when the tumour recurred, but it could develop again, though to a lesser extent, during further courses of chemotherapy. Patients gradually found out the facts about their poor prognosis, partly because of physical deterioration and partly through contact with fellow patients who were in a more advanced stage of the illness and were dying
http://bmj.com/cgi/content/full/321/7273/1376
altman23
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Creative Endings
http://www.globalideasbank.org/creend/CRETOP.HTML
altman23
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Crossing the Creek
Website of Michael Holmes, RN, a nurse who has worked with many end of life patients
http://crossingthecreek.com/
altman23
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Death as an Integral Part of Life
Learning Place Online - series of articles
http://www.learningplaceonline.com/stages/integral-intro.htm
altman23
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Death, Life and the Question of Identity
Dr. Sam Vaknin
http://samvak.tripod.com/death.html
altman23
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Dying Patients Who Acknowledge Terminal Prognosis Less Depressed
A groundbreaking Canadian study reveals that terminal cancer patients who are aware they are going to die are less likely to be depressed than those in denial
http://www.annieappleseedproject.org/studonterpat.html
altman23
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Dying Well
Resources for people facing life-limiting illness, their families, and their professional caregivers. Dr. Ira Byock, long time palliative care physician and advocate for improved end-of-life care, and a past president of the American Academy of Hospice and Palliative Medicine, provides written resources and referrals to organizations, web sites and books to empower persons with life threatening illness and their families to live fully.
http://www.dyingwell.com/
altman23
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Dying Words: How Should Doctors Deliver Bad News?
Harvard oncologist Jerome Groopman discusses his experiences with "terminal" patients
http://www.newyorker.com/fact/content/?021028fa_fact#top
altman23
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Ethical Wills: Preserving Your Legacy of Values
Every ethical will is as unique as the person writing it is. After reading a number of them, I was struck by the fact that whether simple or elegant, all conveyed the sense of coming from the heart. Writing an ethical will need not be difficult to do. It preserves the legacy of your spirit to your family and community. It may well be one of the most valuable gifts you can give
http://www.cancerlynx.com/ethical_wills.html
altman23
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Facing the End of Life Together
from Arlene Harder's Learning Place Online
http://www.learningplaceonline.com/stages/together-intro.htm
altman23
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Fasting to a "comfortable death"
In the Natural Death Handbook, there were stories from the partners of two people who had peacefully fasted to death. The advantages seemed to include that the method was slow and relatively dignified and called for determination whilst allowing for second thoughts (rather than just popping some pills and pulling a plastic bag over one's head); that it was already legal to refuse force feeding either verbally at the time or in advance through one's living will; and that as a way of dying it would tend to be hard on the relatives - and therefore it was less likely that the patient would feel pressured to adopt it.
http://www.globalideasbank.org/creend/CRE-13.HTML
altman23
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Griefnet
GriefNet.org is an Internet community of persons dealing with grief, death, and major loss. We have 47 e-mail support groups and two web sites. Our integrated approach to on-line grief support provides help to people working through loss and grief issues of many kinds. Our companion site, KIDSAID, provides a safe environment for kids and their parents to find information and ask questions
http://rivendell.org/
altman23
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Growth House
Guide to Death, Dying, Grief, Bereavement,and End of Life Resources
http://www.growthhouse.org/
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Groww.org
GROWW - Grief Recovery Online Founded by Widowers and Widows. Chat rooms, Message Boards, Youth Board, Living with Cancer Board, Inspirational Writings, etc.
http://www.groww.org/
altman23
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Hospice Patients Alliance
We reveal what NO hospice will tell you! Make sure your loved one's needs are met. Get the best pain control available and avoid Hospice Horrors. Stop Hospice exploitation by knowing what your rights are. Recognize and report hospice fraud. Know what services your loved one is entitled to. Know what services the hospice must provide!
http://www.hospicepatients.org/
altman23
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Hospice and Palliative Care - Medscape Resource Center
http://www.medscape.com/pages/editorial/resourcecenters/public/hospice/rc-hospice.ov
altman23
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Lana's List of Things to Do
In the two and a half years since my diagnosis, I have come to accept my own death as inevitable (it is for everyone, just more real to us who face it constantly). At first I was very, very upset by the deaths of people I had come to know on the BC list and then gradually I began to feel that it was less an ending than a new beginning.
http://www.cancerlynx.com/todo.html
altman23
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Last Aid Manual
The present volume is a joint project between the Befriending Network, a charity which trains and supervises volunteer Befrienders who visit the homes of those with a critical illness, and the Natural Death Centre, a charity which gives advice on inexpensive, environmentally-friendly or family-organised funerals. This booklet is a digest of recent material covering everything from how best to be a companion to those who are dying to how best to arrange burials so as to return the body to nature
http://www.globalideasbank.org/LA/lacontent.html
altman23
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Last Chapters
Welcome to LastChapters, a site for:• Sharing stories about living with dying; • Hearing about people who are facing death or chronic illness; Dealing with grief; and Learning how others have coped.
http://www.lastchapters.org/
altman23
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Leaving a Legacy for Future Generations
An explosion of geneology sites on the Internet demonstrates just how widespread is our desire to know about our ancestors. But if we want to know about the lives of those who went before us, we can be certain that those who come after us will want to learn about our lives. This section focuses on several ways we can make certain your descendants have a chance to know who you are today.
http://www.learningplaceonline.com/stages/organize/legacy-intro.htm
altman23
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Life-threatening illness - its psychological dimensions
Josefine Speyer is a psychotherapist and a co-director of the Natural Death Centre. She was formerly a director of the Befriending Network in London, UK, which trains volunteer Befrienders who visit those who are critically ill at home. The following are adapted extracts from a talk given by Josefine Speyer to hospital and hospice nurses at the Centre for Cancer and Palliative Care Studies at the Royal Marsden Hospital in London SW3. It is aimed, however, at a wider group: the patient; the carer, family and friends; nurses and others in the medical team and the volunteer Befriender
http://www.globalideasbank.org/LA/LA-4.HTML
altman23
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On Death and Dying and Near Death Experiences
Gilles Bedard's series of interviews on Death and Dying
http://pages.globetrotter.net/inerson/ondeath.html
altman23
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Palliative Care Resource Guide - Missouri Baptist Medical Center
Contolling pain, doses of pain medication, links
http://www.bjc.org/BJC/PHYSICIA.NSF/242b687880f3ccf28564ef007960fe/2be9281d3dbae4d5852568e70053af19?OpenDocument
altman23
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Patient Refusal of Nutrition and Hydration
The general impression among hospice clinicians that starvation and dehydration do not contribute to suffering among the dying and might actually contribute to a comfortable passage from life. In contrast the general impression among the public and non-hospice medical professionals is that starvation and dehydration are terrible ways to die. Scientific support for either viewpoint has been scanty, yet modern medical practice has reflected an aversion to allowing a person to "starve to death."
http://www.dyingwell.com/prnh.htm
altman23
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Preservation of dignity needed in care of the terminally Ill
December 19, 2002 "The notion of dignity needs to be introduced into the clinical arena," lead author Dr. Harvey Max Chochinov told Reuters Health. "Maintaining dignity at the end of life needs to be set as the gold-standard in providing end-of-life care."
http://www.oncolink.com/resources/article.cfm?c=3&s=8&ss=23&Year=2002&Month=12&id=9186
altman23
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Quotations and Passages about Death
from livingfully.com
http://www.livinglifefully.com/death.html
altman23
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Reincarnation: its meaning and consequences
Interesting essay offers critical insight into the concept of reincarnation
http://www.comparativereligion.com/reincarnation.html#top
altman23
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Signs and Symptoms of Approaching Death
http://www.hospicepatients.org/hospic60.html
altman23
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Sociology of Death and Dying
http://www.trinity.edu/~mkearl/death.html#di
altman23
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Spirituality
from Arlene Harder's Leraningplaceonline. Not affiliated with any organized religion.
http://www.learningplaceonline.com/general/maps/spirit.htm
altman23
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The Conclusion that Actions Speak Louder than Words
by Arlene Harder
http://www.learningplaceonline.com/spirit/life/conclusions-1.htm
altman23
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The Final Journey
A collection of short stories about people and death and dying
http://crossingthecreek.com/finaljourney/
altman23
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The Grace in Dying: How we are transformed spiritually as we die
An interview with Kathleen Dowling Singh. In her brilliantly and beautifully written book, Kathleen Dowling Singh illuminates the profound psychological and spiritual transformations experienced by the dying as the natural process of death reconnects them with the source of their being. Examining the end of life in the light of current psychological understanding, religious wisdom, and compassionate medical science. The Grace in Dying offers a fresh, deeply comforting message of hope and courage as we contemplate the meaning of our mortality.
http://pages.globetrotter.net/inerson/ondeath/singh.html
altman23
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The Last Deal
Disturbing article by Harvard oncologist Jerome Groopman will make you ponder "what does it all mean?"
http://www.jeromegroopman.com/ld.html
altman23
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The Meaning and Value of Death
Since, philosophically I cannot know anything with certainty about death, I must accept that death itself may (or may not) be meaningless. Nevertheless, it is apparent that the fact of death profoundly impacts our understanding – and experience – of meaning in life. Although it remains unknowable, death’s relationship to life is essential and as profound as the relationship of darkness to light. Death need not illuminate life;, it is sufficient for death to provide the background against which the light of life is seen. It is from this perspective, both clinically and philosophically, that the question: “What is the meaning and value of death?” becomes relevant and approachable.
http://www.dyingwell.com/jpm0502.htm
altman23
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The Mourner's Corner
Resources For Mourners
http://www.centerforloss.com/mourners.asp?Function=ShowArticle&Article=billofrights.htm
altman23
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The Nature of Suffering and the Nature of Opportunity at the End of Life
Encountering a patient who is suffering in the midst of terminal illness is an all-too-common occurrence for clinicians who care for the elderly. This chapter explores the personal experience of suffering in the context of life-limiting illness. The concept of personhood is utilized to illuminate the nature of suffering. Clinical observation documents that some persons experience a subjectively heightened sense of well-being as they die. The concept of personhood and the model of life-long human development is applied to the explication of this apparent paradox, enabling an understanding of the nature of opportunity at the end of life.
http://www.dyingwell.com/suff-opp.htm
altman23
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To Flee or not to Flee: The Problem of Denial When Dying
Essay by a minister with metastatic cancer
http://www.cancerlynx.com/denial.html
altman23
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Voluntary Dehydration to Hasten Death
Medscape July 22, 2003 Most patients (85%) died within 15 days of refusing sustenance. On a scale rated by the nurses from 0 for a very bad death to 9 for a very good death, the median score was 8. Compared with 55 patients who died by physician-assisted suicide, patients who died after refusing to eat or drink were older (74 vs. 64 years of age; P < .001), less likely to want to control the circumstances of their death (P < .001), and less likely to be evaluated by a mental health professional (9% vs. 45%; P < .001).
http://www.medscape.com/viewarticle/459099
altman23
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When Suffering Persists....
The transcendent realm looms for the dying person. This is repeated clinical observation, not religious dogma. Among the dying most suffering that is not based in physical symptoms derives in some way from the loss of critical aspects of the self. Yet, dying is inevitable; the loss of our selves inevitable. Suffering is the alarm that will not stop ringing, it demands attention to the inevitable. Despite its horror, the suffering associated with dying can serve to stimulate growth as no other human experience. It is an opportunity no one would ask for, but must not be ignored. Again, the prevailing medical model will not admit such observation, has no place to put it. Perhaps we need to incorporate more of the wisdom of the world's religious traditions into the care we give in our programs and institutions.
http://www.dyingwell.com/suff-per.htm
altman23
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Widow Net
WidowNet, an information and self-help resource for, and by, widows and widowers. Topics covered include grief, bereavement, recovery, and other information helpful to people, of all ages, religious backgrounds and sexual orientations, who have suffered the death of a spouse or life partner
http://www.fortnet.org/WidowNet/
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