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Description
The purpose of this Group site is to provide families affected by Coffin-Lowry syndrome a forum in which to exchange information, ideas, pictures, anecdotes and advice.
CLSF provides family matching services, telephone support, an informational database and publishes a newsletter, CLSF News. The newsletter is available in hard-copy and on the CLS Foundation web site.
CLSF is a non-profit organization and is funded solely by donations and change I find under the couch cushions.
To post a message, just send an email to CLSFoundation@yahoogroups.com. You must send from the same email address that you are registered with on this site.