The purpose of this Group site is to provide families affected by Coffin-Lowry syndrome a forum in which to exchange information, ideas, pictures, anecdotes and advice.

CLSF provides family matching services, telephone support, an informational database and publishes a newsletter, CLSF News. The newsletter is available in hard-copy and on the CLS Foundation web site.

CLSF is a non-profit organization and is funded solely by donations and change I find under the couch cushions.

Contact CLSF at 425-427-0939 M-F after 6pm PST or at CoffinLowry@Gmail.com .

Coffin-Lowry Syndrome Foundation
Attn: Mary C. Hoffman
3045 255th Avenue S.E.
Sammamish, WA 98075

Please familiarize yourself with the Terms and Conditions for use.

To post a message, just send an email to CLSFoundation@yahoogroups.com. You must send from the same email address that you are registered with on this site.