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clickyhipsclub · Clicky Hips Club - Support &Advice for parents of CDH Babies/Kids
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Topics   (List as Individual Messages) Messages Latest Post

Update on sarah she fell out of wheelchair last sunday and now has two arm casts to compliment the spica. so if anyone needs a mini mummy for entertainment let...
2 Feb 28, 2009
12:46 am

jtspellman
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My husband and I adopted a beautiful 6 month old baby in December in China. We named her Lia Shu Grace. She will be 9 months old on March 4th and is currently...
2 Feb 25, 2009
2:50 pm

jtspellman
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Hi all, my name is Jenn and I wanted to shoot a quick introduction with our story. I was born with bilateral hip dysplasia 36 years ago and wasn't diagnosed...
1 Feb 21, 2009
2:31 pm

jtspellman
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thank you to those who have commented and mailed me. seems every doctor has a different view. still no specific diagnosis just that she should remain imobile...
1 Feb 21, 2009
2:21 pm

ldhswilson
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thanksall. louies is settling down. sleeping better and more regular. she still looks like amummy. im getting bored with people asking if she was hit by a...
4 Feb 17, 2009
2:01 pm

Nancy Sanders
njssanders
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hi all I am Louise, single mother to 2 girls my eldest has complained for ages on and off of leg pains, for years. when 18months old she was put in pavlec...
3 Feb 13, 2009
11:04 pm

Nancy Sanders
njssanders
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HI everyone well i didnt think i would be posting on here again but OH WELL. Erm my now 5 year Jessica had bilateral DDH full dislocation which was found at...
3 Apr 28, 2008
9:48 am

hazelsmith2000
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Hello everyone, Thank you for your encouraging thoughts & comments. It was heartwarming to see while we were in the hospital. Caroline ended up having an open...
3 Apr 5, 2008
1:54 pm

Joy Bush
ladysylpher
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Hello all, Just writing one more time ps (pre-spica) to ask for thoughts and calming vibes, my dd goes in for surgery tomorrow morning. They will try closed...
3 Mar 31, 2008
3:39 am

Joy Bush
ladysylpher
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Hello! I'd just like to introduce myself - my name is Amanda and my youngest child, Tess who is 13 months, had a closed reduction on 30th September (we've...
21 Mar 26, 2008
11:26 pm

Brenda Lovins
adamandbrenda
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We had Alivia's first appt on Monday. We were told that the Dr would first put her under & try to pop her hip into it's shallow socket. Since she's 2.5 and...
3 Mar 20, 2008
2:03 pm

Joy Bush
ladysylpher
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Hello Friends. If you have been following our blog or have spoken to me recently, you know that I have a burden on my heart. Let me explain. As you may or...
1 Mar 14, 2008
2:13 am

adamandbrenda
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Joy, THanks for your information. My son had eye surgery at Kosair's, so I am familiar with it. We are actually only one hour North of Louisville. Where are...
2 Feb 2, 2008
9:59 pm

Joy Bush
ladysylpher
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Hello to you all. You have all been so helpful in my search for information regarding our daughter's up & coming surgery. Looks like we'll be going to China...
2 Jan 17, 2008
8:04 pm

Joy Bush
ladysylpher
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Thanks for everyone's advice on my question regarding an artificial hip socket. My question now is, since both of your kids' (Martin & Joy) circumstances were...
2 Dec 4, 2007
6:42 pm

Joy Bush
ladysylpher
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Hello. I posted a while back regarding a little girl that we are adopting from CHina. She has been diagnosed with congenital dislocation of the hip. The...
5 Nov 29, 2007
2:39 am

Nancy Sanders
njssanders
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Hi, My darling Lola was diagnosed with clicky hip at 3 days old and had a splint fitted at 8 days old. I have posted a picture as I don't know the name of the...
4 Nov 26, 2007
11:05 am

Rebecca Hollands
lady0fpern
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I know this might sound like a stupid question but what is the difference between CDH & DDH? I know that CDH is congenital dislocated hip and DDH stands for ...
4 Nov 25, 2007
8:05 pm

karenetodd
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Thanks to all of you for your information. I was so afraid that she'd need a surgery now and then several throughout life as she grows. I also heard that kids...
2 Nov 24, 2007
6:02 pm

Joy Bush
ladysylpher
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Hi Tuni I would imagine by now Aleena's legs are looking normal and have straightened, it takes a few weeks for the muscles to get working again. Congrats on...
1 Nov 23, 2007
10:54 pm

Rob & Sara Dudley
sara_dudley
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I posted a introduction message(2432-a little bit about me)on 16/9/07. I still have not recieved any replys, i feel alone and joined because i thought i could...
4 Nov 23, 2007
10:46 pm

Rob & Sara Dudley
sara_dudley
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Hello everyone,I'm a new member and I would like to tell you a little bit about me. I'm 31 years old and I am a single mum with a daughter who is almost 8....
3 Nov 21, 2007
2:39 am

kaykles
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Hi You still around? Haven't seen or heard from you in a very long time! Haven't got your email add or mob number now, just wondering how you are? It would be...
1 Nov 16, 2007
8:06 am

andreajean65
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hi im tuni and my daughter aleena was born with ddh she wored the palvic harness for 8 weeks full time and then 6 weeks part time. she just had an ultrasound...
1 Nov 6, 2007
9:58 pm

Tuni Begum
heavenlymade...
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Thank you ladies. Wow! This seems like a daunting ordeal. I want so badly to help her. She's in China and we are trying to convince a Dr at Riley's...
2 Oct 22, 2007
11:13 pm

Joy Bush
ladysylpher
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Hello. I am new to this group. We are adopting a little girl from China. I was told up front that she has a cleft lip. However, just recently, after we...
3 Oct 16, 2007
2:54 am

Nancy Sanders
njssanders
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Hi There I have little girl Emily who is 8 months. She had an open reduction at Alder Hey 5 weeks ago and is now in a Hip Spica. Emily has coped amazingly...
12 Sep 27, 2007
6:33 pm

Rebecca Harvey
lady0fpern
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Hi Eilanna & Janna, Thanks for the advice regarding post hip spica. Sorry to hear that you both had such a hard time but glad that it has resolved itself. It's...
1 Aug 6, 2007
6:38 am

Martin Tweedie
martin943634
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Hi All, Our daughter Abigail has recently had her Hip Spica removed after 12 weeks -oh bliss! However we are a bit concerned about the leg operated on, the...
2 Aug 5, 2007
4:57 pm

angeldust2400
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Hi Sounds ridiculous but I'm not really sure. I only know that maddie has DDH as that is what it says on her notes at hospital. I think CDH might be when it...
1 Aug 5, 2007
2:37 pm

caroline peachey
carolinepchy
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