Brenda--

I know how to feel about the incisions. Serenity had 2
incisions because she had the same procedure done that
your doctor told you about. I even have pics of how
her 2 scars looked the day the cast came off (first
time I got to see them, 3 months after surgery). They
look kinda big but he assures me that as she grows,
they will be tiny little marks and she will be able to
wear a bikini when older. The pics are on my myspace
page http://www.myspace.com/wbdsgnr1 click on the Pics
link

And yes they learn to scoot themselves around on the
floor quite well. I have a pic of Serenity doing just
that also on my myspace page. Just click the Video
link.
Oh and to answer your other question......... they do
cast both legs, but the one that is normal/healthy
usually only comes down to the knee or slightly above.
Thats how it was with Serenity, but you will see that
in her pics and videos!

Im starting to get nervous about her upcoming surgery
the end of april/early may for getting the metal taken
out of her hip/leg. After that surgery we will be done
with hip displaysia.

I know its hard but good luck and Im here if you need
to talk!
BB, Joy and Serenity








Blessed Be - Joy & Serenity
(I was diagnosed with DDH in both hips at 6 months old, traction for 1 week,
closed reduction, spica cast for 6 months in 1983. Daughter, Serenity, diagnosed
at birth - Nov 2005 with DDH in left hip. 3 Pavlik harnesses, Rhino brace -
never used it. Open reduction with Pelvic & femoral osteotomy at 18 months,
spica cast for 3 months. X-ray on Oct 5th was excellent! Will be 2 in Nov 07)


      
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Hi!  It sure seems like u have a lot going on. My daughter Lucy was diagnosed
with hip dysplasia at 18 months of age. She was lucky that she only had a closed
reduction surgery then a full cast for four months. She is now 4 1/2 years old
and doing very well. She did learn to get around quite well in the cast. It was
hard of course, but u will get through it. U will need to make sure that u have
a car seat that will work with the cast. We have the Britax marathon which did
work ok. We used lots of pillows and cushions to help her get comfortable. A
bean bag chair is also a great help. I don't know where u r located but I know
there is some support out there. I am in California and met other people who
have experience with hip dysplasia which helped. Please feel free to contact me
anytime. Sincerely, Cristi in Orange County, CA
Sent via BlackBerry by AT&T

-----Original Message-----
From: "adamandbrenda" <adamandbrenda@...>

Date: Wed, 19 Mar 2008 14:20:07
To:clickyhipsclub@yahoogroups.com
Subject: [Clicky Hips Club] Alivia's hip dysplasia appt


We had Alivia's first appt on Monday. We were told that the Dr would
  first put her under & try to pop her hip into it's shallow socket.
  Since she's 2.5 and the xray shows a very shallow socket, the Dr
  assumes it will not work. If not, he will make a "bikini line"
  incision, deepen the socket with a graft of her own bone, insert the
  femur & cast her. If her leg has turned while out of the socket, he
  will need to make an incision a bit further down to straighten it too.
  The cast will be on for 6 weeks, then he will run a die test to see if
  it's healed enough to remove the cast.
  It all sounds so daunting. Alivia is getting her cleft lip repaired in
  the same surgery. Her recovery scares me too: several incisions on her
  body and entertaining a 2 yr old in a body cast.
  That's a question I forgot to ask...will they cast both legs if only
  one hip is out? I assume so. Do the kids have any mobility at all to
  scoot around on the floor while in the cast?
  We have pics posted on our blog at lovinsfamilyof5.blogspot.com

We had Alivia's first appt on Monday.  We were told that the Dr would
first put her under & try to pop her hip into it's shallow socket.
Since she's 2.5 and the xray shows a very shallow socket, the Dr
assumes it will not work.  If not, he will make a "bikini line"
incision, deepen the socket with a graft of her own bone, insert the
femur & cast her.  If her leg has turned while out of the socket, he
will need to make an incision a bit further down to straighten it too.
The cast will be on for 6 weeks, then he will run a die test to see if
it's healed enough to remove the cast.
It all sounds so daunting.  Alivia is getting her cleft lip repaired in
the same surgery.  Her recovery scares me too: several incisions on her
body and entertaining a 2 yr old in a body cast.
That's a question I forgot to ask...will they cast both legs if only
one hip is out?  I assume so.  Do the kids have any mobility at all to
scoot around on the floor while in the cast?
We have pics posted on our blog at lovinsfamilyof5.blogspot.com

Hello Friends.  If you have been following our blog or have spoken to
me recently, you know that I have a burden on my heart.  Let me
explain.  As you may or may not know, we came home with our China
doll just 2 weeks ago.  When she joined our family at 2.5 yrs old,
she was only on a bottle with formula.  The nipple on the bottle was
practically cut off so the rice/formula would just run down her
throat.  We were fortunate enough that she does not have any major
eating issues.
However, once we returned home, we were contacted by other moms with
babies from the same orphanage.  Seems that Alivia must have been
given extra attention during feeding time, probably because of her
cleft lip.  Many of the other babies have not been so lucky.  These
babies are needing a year or more of occupational therapy and/or
speech therapy to teach them how to use their tongue, to chew &
swallow.  The parents are having many more problems resulting from
the orphanage than what they were aware of.   Other issues are
continuing ear infections due to drinking a bottle lying down & many
more.....
Several of the parents have tried to find a solution to this & have
even contacted some organizations.  But the organizations have never
complied.  Amazingly, I contact Love Without Boundaries just days
ago.  They agreed to offer training to the nannies regarding feeding
the babies if the director would comply.
Just this evening I received an email that not only is the director
willing to let them do the training, but they are doing it NEXT
WEEK!!!!!!!!!!!!!  Plus, the cost is 1/2 of the original best guess
on the price.
So, what I am asking is, do you have room in your heart to help an
orphanage of orphans?  The money will be designated to help the
orphanage Alivia came from.  There are pictures of this orphanage on
my web site.  It is a very poor orphanage in a very poor area.  The
orphanage has no grass or carpet on the premises.
The nannies will learn how to feed these children which in return
with help the orphans for years to come.
If you decide to donate & feel comfortable doing so, please email
me.  I would like to keep a total on what we've raised so I know when
we've met our goal.  Thank you so much for your consideration.
Brenda
You can visit our blog at lovinsfamilyof5.blogspot.com

If you would like to donate online, you can do so at:
https://www.lovewithoutboundaries.com/Donate.cfm?
child_id=0&orphanage_id=26&category=116
Just mark in the NOTE field that this is for nutrition training in
Wanzhou, Chongqing

PS. I also joined this group because Alivia has congenital
dislocation of her hip.

Well Im not "from" here, I was born and raised in Cali and then lived in Arizona
for a long time.
But my husband was born and raised here. I live in Glasgow, KY
about 100 miles south of Louisville, near Bowling Green. Takes about an hour and
half to drive to Louisville from here. Ever heard of it? Ever been to mammoth
cave? its a tourist thing.

Will you be going to kosiars again or somewhere else? I think its an excellent
hospital myself.
Serenity was in the NICU there for 2 weeks and had her hip displaysia surgery
there and her cast change.
She will be having another surgery there this May to have her metal taken out of
her hip/leg.

Blessed Be - Joy & Serenity





----- Original Message ----
From: adamandbrenda <adamandbrenda@...>
To: clickyhipsclub@yahoogroups.com
Sent: Saturday, February 2, 2008 3:33:44 PM
Subject: [Clicky Hips Club] Joy..thanks!

Joy,
THanks for your information. My son had eye surgery at Kosair's, so I
am familiar with it. We are actually only one hour North of
Louisville. Where are you from?
Brenda





      
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[Non-text portions of this message have been removed]

Joy,
THanks for your information. My son had eye surgery at Kosair's, so I
am familiar with it.  We are actually only one hour North of
Louisville.  Where are you from?
Brenda

No I havent but if your close enough to the KY border....
Serenity had her surgery done at Kosair Childrens hospital (owned by shriners)
in Louisville, KY
with Dr. Antekeier. My daughter had an extreme case and he fixed her with one
surgery. We should be getting the metal out of her leg this May. Our next dr
appointment with him is on April 18th to discuss this.
Congrats on getting your daughter soon, Im sure your excited! And good luck with
the surgery, keep us posted.

Blessed Be - Joy & Serenity





----- Original Message ----
From: adamandbrenda <adamandbrenda@...>
To: clickyhipsclub@yahoogroups.com
Sent: Thursday, January 17, 2008 12:07:49 PM
Subject: [Clicky Hips Club] Surgery in Indiana?

Hello to you all. You have all been so helpful in my search for
information regarding our daughter's up & coming surgery. Looks like
we'll be going to China to get our daughter in about 4 weeks. Has any
of your children had hip dysplasia surgery in Indiana, more
specifically, Riley Children's Hospital? I'm looking for information
on Dr Loder's office.
Thank you,
Brenda





      
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[Non-text portions of this message have been removed]

Hello to you all. You have all been so helpful in my search for
information regarding our daughter's up & coming surgery.  Looks like
we'll be going to China to get our daughter in about 4 weeks.  Has any
of your children had hip dysplasia surgery in Indiana, more
specifically, Riley Children's Hospital?  I'm looking for information
on Dr Loder's office.
Thank you,
Brenda

If they do the bone graft, the pins are what holds the 2 bones together to let
them heal or fuse together.
And I would say the Dr could answer all your questions if he saw her Xrays, it
really has very little with actually seeing the child. My doc can't tell me
anything until he takes an updated xray every time we see him. Speaking of
which, our next appointment is next Fri Dec 14th 2007.

Blessed Be - Joy & Serenity
(I was diagnosed with DDH in both hips at 6 months old, traction for 1 week,
closed reduction, spica cast for 6 months in 1983. Daughter, Serenity, diagnosed
at birth - Nov 2005 with DDH in left hip. 3 Pavlik harnesses, Rhino brace -
never used it. Open reduction with Pelvic & femoral osteotomy at 18 months,
spica cast for 3 months. X-ray on Oct 5th was excellent! Will be 2 in Nov 07)



----- Original Message ----
From: adamandbrenda <adamandbrenda@...>
To: clickyhipsclub@yahoogroups.com
Sent: Tuesday, December 4, 2007 11:02:46 AM
Subject: [Clicky Hips Club] bone graft, our girl from china.

Thanks for everyone's advice on my question regarding an artificial hip
socket. My question now is, since both of your kids' (Martin & Joy)
circumstances were a little different... can I tell by the xrays if she
might need the pins & plates? Or if it'd just be fixed by surgery & a
bone graft? I haven't taken the films to the pediatric orthopedic
surgeon yet because I haven't received my very final approval from
China on her adoption. And since I don't have her here, we can't file
it to insurance. So, I'm researching what I can & may wait until we get
her home to have her seen personally. Do you think they could tell me
much more without seeing her & just having the films? I know a
consultation would be costly. I don't want to waste the Dr's time or my
money if he has to see her to determine treatment.
Thanks again for any advice. Everyone has been a tremendous help.
Brenda





      
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[Non-text portions of this message have been removed]

Thanks for everyone's advice on my question regarding an artificial hip
socket.  My question now is, since both of your kids' (Martin & Joy)
circumstances were a little different...can I tell by the xrays if she
might need the pins & plates?  Or if it'd just be fixed by surgery & a
bone graft?  I haven't taken the films to the pediatric orthopedic
surgeon yet because I haven't received my very final approval from
China on her adoption.  And since I don't have her here, we can't file
it to insurance. So, I'm researching what I can & may wait until we get
her home to have her seen personally.  Do you think they could tell me
much more without seeing her & just having the films?  I know a
consultation would be costly. I don't want to waste the Dr's time or my
money if he has to see her to determine treatment.
Thanks again for any advice.  Everyone has been a tremendous help.
Brenda

Brenda,

Welcome to you.  With the age of your soon to be daughter its most likely that
the ped orthos would do something called an osteotomy.  The ball of the femur
being smaller is not unusual if the ball has not been in the socket.  It a very
delicate balancing between the pelvis and the ball of the femur in order to get
a correct hip socket area.  At this age the docs do not put artificial parts
into the child.  This is because it is better to use parts of the person's body.
Artificial would have to be replaced in 10 years give or take a few, and that
would still put your daughter quite young.  And then it would be every 10 years
after that.  There is only so much bone to use, and when you start taking parts
out ( which you have to do for the artificial grafts) there is not much left
after 3 tries.

There is another group that seems to be more active with parents from all over
the world dealing with DDH, developmental dysplasia of the hip.  Hope this
helps.

Nancy ( owner and keeper of the www.hip-baby.org website, mom to Claudia,
misdiagnosed at 9 months, diagnosed at 16 months with bilateral DDH and both
hips dislocated, 8 days in traction, adductor tenotomy and closed reductions,
casts for 20 weeks, AVN in the left hip, full-time abduction brace wearing for 1
year, open reduction and bilateral pelvic osteotomies, cast wearing for 8 weeks,
now going for once a year check ups!)

   ----- Original Message -----
   From: adamandbrenda
   To: clickyhipsclub@yahoogroups.com
   Sent: Friday, November 23, 2007 3:36 PM
   Subject: [Clicky Hips Club] Any advice? Artificial hip socket?


   Hello. I posted a while back regarding a little girl that we are
   adopting from CHina. She has been diagnosed with congenital
   dislocation of the hip. The orphanage says they noticed a limp when she
   first started walking at 24 months. (Aggravation from me since they
   didn't notice sooner!...) I received her xrays last week. Her pelvis
   shows no socket and the ball at the top of her femur is 1/2 the size
   it should be. Does anyone know if they will need to create an
   artificial socket? Or a bone graft? Does that mean she'll have
   surgeries all her life?
   Thank you so much for the help!
   Brenda





[Non-text portions of this message have been removed]

Hi there,



My son was in a harness for 17 weeks. It was called a Pavlik Harness and it
seems to have done the trick.



Best wishes,

Rebecca & Aidan



   _____

From: clickyhipsclub@yahoogroups.com [mailto:clickyhipsclub@yahoogroups.com]
On Behalf Of karenetodd
Sent: 26 November 2007 10:43
To: clickyhipsclub@yahoogroups.com
Subject: [Clicky Hips Club] Re: Hi, I'm new!





--- In clickyhipsclub@ <mailto:clickyhipsclub%40yahoogroups.com>
yahoogroups.com, "charlottebudd79"
<charlottebudd79@...> wrote:
>
> --- In clickyhipsclub@ <mailto:clickyhipsclub%40yahoogroups.com>
yahoogroups.com, "karenetodd" <karenetodd@>
> wrote:
> >
> > Hi,
> >
> > My darling Lola was diagnosed with clicky hip at 3 days old and
had a
> > splint fitted at 8 days old. I have posted a picture as I don't
know
> > the name of the splint and can't find any pictures anywhere,
Please
> > help?
> >
> > Lola is now 7 weeks old and scans are looking positive. Next
> > appointment is on 19th dec.
> >
> > Karen
> >
>
> Hi Karen, I've seen a picture of this harness on the steps charity
> website but can not for the life of me remember what it is called
> sorry!!!!
>
> Have a look on the steps website as it has been a god send for me
and
> my 5 month old daughter who suffers from CDH.
>
> Charlotte x
>

Hi,
Thanks for the reply, I have posted on the forum on Steps website
and looked for pictures but can't find it. There is a craig or
aberdeen splint which looks similar but it's not the same. I never
thought to ask when she had it fitted!

Karen





[Non-text portions of this message have been removed]

--- In clickyhipsclub@yahoogroups.com, "charlottebudd79"
<charlottebudd79@...> wrote:
>
> --- In clickyhipsclub@yahoogroups.com, "karenetodd" <karenetodd@>
> wrote:
> >
> > Hi,
> >
> > My darling Lola was diagnosed with clicky hip at 3 days old and
had a
> > splint fitted at 8 days old. I have posted a picture as I don't
know
> > the name of the splint and can't find any pictures anywhere,
Please
> > help?
> >
> > Lola is now 7 weeks old and scans are looking positive. Next
> > appointment  is on 19th dec.
> >
> > Karen
> >
>
> Hi Karen, I've seen a picture of this harness on the steps charity
> website but can not for the life of me remember what it is called
> sorry!!!!
>
> Have a look on the steps website as it has been a god send for me
and
> my 5 month old daughter who suffers from CDH.
>
> Charlotte x
>

Hi,
Thanks for the reply, I have posted on the forum on Steps website
and looked for pictures but can't find it. There is a craig or
aberdeen splint which looks similar but it's not the same. I never
thought to ask when she had it fitted!

Karen

--- In clickyhipsclub@yahoogroups.com, "karenetodd" <karenetodd@...>
wrote:
>
> Hi,
>
> My darling Lola was diagnosed with clicky hip at 3 days old and had a
> splint fitted at 8 days old. I have posted a picture as I don't know
> the name of the splint and can't find any pictures anywhere, Please
> help?
>
> Lola is now 7 weeks old and scans are looking positive. Next
> appointment  is on 19th dec.
>
> Karen
>

Hi Karen, I've seen a picture of this harness on the steps charity
website but can not for the life of me remember what it is called
sorry!!!!

Have a look on the steps website as it has been a god send for me and
my 5 month old daughter who suffers from CDH.

Charlotte x

Hi,

My darling Lola was diagnosed with clicky hip at 3 days old and had a
splint fitted at 8 days old. I have posted a picture as I don't know
the name of the splint and can't find any pictures anywhere, Please
help?

Lola is now 7 weeks old and scans are looking positive. Next
appointment  is on 19th dec.

Karen

hi,
I'm new to the group, Lola had a splint fitted at 8 days old and is
now nearly 8 weeks old!
I too was confused between the two.
Thanks
Karen

--- In clickyhipsclub@yahoogroups.com, "Rebecca Hollands"
<rebecca.hollands@...> wrote:
>
>
>
> Thank-you for the info. I thought I was stupid not being able to
work it
> out.
>
>
>
> Best wishes,
>
> Rebecca.
>
>
>
> [Non-text portions of this message have been removed]
>

When there hip is up and out, then that leg is usually shorter. Thats how it was
with Serenity. Then when they pull it back down and in, that leg is usually
longer, thats why they shortened Serenitys femur, I think he cut out 1 cm or so.
Well now that shes fine, we found out her left leg is longer (like he didn't
take enough off) but we aren't exactly sure about it, hes going to look at it in
depth at our next appointment on Dec 14th, but he said he can fix it in May of
next year when he takes her metal out of her hip/leg. all in one surgery ya
know? And when she starts walking on her own he could get her an orthopedic shoe
to even out the difference IF she needs it.

And my daughter had her cast on for 13 weeks (3 months) but I myself as a baby
had my cast on for 6 months, so I guess it just depends. I have never heard of
anyone having a cast for as long as 1 year though, yikes that would be rough!!

Blessed Be - Joy & Serenity
(I was diagnosed with DDH in both hips at 6 months old, traction for 1 week,
closed reduction, spica cast for 6 months in 1983. Daughter, Serenity, diagnosed
at birth - Nov 2005 with DDH in left hip. 3 Pavlik harnesses, Rhino brace -
never used it. Open reduction with Pelvic & femoral osteotomy at 18 months,
spica cast for 3 months. X-ray on Oct 5th was excellent! Will be 2 in Nov 07)

----- Original Message ----
From: adamandbrenda <adamandbrenda@...>
To: clickyhipsclub@yahoogroups.com
Sent: Saturday, November 24, 2007 11:07:36 AM
Subject: [Clicky Hips Club] Artificial hip socket?














             Thanks to all of you for your information. I was so afraid that
she'd

need a surgery now and then several throughout life as she grows.  I

also heard that kids could be in a cast from 3-12 months and that

really scared me.  I can't imagine carrying a 2 year old around with

that crazy cast for a year!  It's more hopeful for me to know the max

will probably be 3 months or as little as several weeks.

One more question...is the bone graft always taken from the pelvis? I

would not want her to need to be cut somewhere else too.  It already

looks like she'll have 2 surgeries at the same time (she has a cleft

lip also). Poor baby!  Her femur is "up and out" as the report states.

I don't know if this is already making her leg shorter or not without

seeing her in person. This is so hard because she is on the other side

of the world. She needs surgery ASAP, but the pediatric orthopedic

surgeons says she should definitely wait & not have it while in China.

He doesn't want to fix their mess-up.  For now it's a waiting game.....

Thanks again!  I always know I can count on you all for info, support,

etc.  I check here often, and keep up on everyone..not usually having

time to post.














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[Non-text portions of this message have been removed]

Thanks to all of you for your information. I was so afraid that she'd
need a surgery now and then several throughout life as she grows.  I
also heard that kids could be in a cast from 3-12 months and that
really scared me.  I can't imagine carrying a 2 year old around with
that crazy cast for a year!  It's more hopeful for me to know the max
will probably be 3 months or as little as several weeks.
One more question...is the bone graft always taken from the pelvis? I
would not want her to need to be cut somewhere else too.  It already
looks like she'll have 2 surgeries at the same time (she has a cleft
lip also). Poor baby!  Her femur is "up and out" as the report states.
I don't know if this is already making her leg shorter or not without
seeing her in person. This is so hard because she is on the other side
of the world. She needs surgery ASAP, but the pediatric orthopedic
surgeons says she should definitely wait & not have it while in China.
He doesn't want to fix their mess-up.  For now it's a waiting game.....
Thanks again!  I always know I can count on you all for info, support,
etc.  I check here often, and keep up on everyone..not usually having
time to post.

Hi Brenda

We 'spoke' a while ago - our daughter Abigail had virtually no socket either,
what the surgeon here did, was pin the top of her leg into what was there of her
socket, in the expectation that the hip would then develope around the ball at
top of her leg - which also was really small, half the size it should have been.
There were a few other bits like grafting of bone, and underpinning but it got
too technical for me I'm afraid.  She had surgery at 27 months, was in a cast
for 3 months - that was a long summer !! -  she still has a metal plate & pins
in and we go back next March, if all is well they will take these out this time
next year. She did have aother complications - like the leg first had to be
broken & twisted back into place, before being secured in the socket.

That was last April, cast came off at the end of July - she is bouncing around
like Tigger - she never sits still, and you wouldn't know that she still had a
huge metal plate inside her. It took her a while to walk afterwards, her legs
were very thin,  ( and really hairy !! ) but within 6/7 weeks she was walking
again, and another few weeks after that more or less full strength.

Hope this helps, if you got any more worries, then please ask

Hope she comes home soon

Eve & Martin, and of course Abigail

   ----- Original Message -----
   From: adamandbrenda
   To: clickyhipsclub@yahoogroups.com
   Sent: Friday, November 23, 2007 8:36 PM
   Subject: [Clicky Hips Club] Any advice? Artificial hip socket?


   Hello. I posted a while back regarding a little girl that we are
   adopting from CHina. She has been diagnosed with congenital
   dislocation of the hip. The orphanage says they noticed a limp when she
   first started walking at 24 months. (Aggravation from me since they
   didn't notice sooner!...) I received her xrays last week. Her pelvis
   shows no socket and the ball at the top of her femur is 1/2 the size
   it should be. Does anyone know if they will need to create an
   artificial socket? Or a bone graft? Does that mean she'll have
   surgeries all her life?
   Thank you so much for the help!
   Brenda





[Non-text portions of this message have been removed]

My daughter practically had no socket either.
With my daughter Serenity they used the bone they got when they made her femur
shorter, and bone grafted it onto her hip to make more of a socket and then put
her hip in. And also, after the hip is in, the ball helps to push into and
hopefully deepen the socket, especially when they start using it, weight bearing
and walking, etc. So to answer your question, no, the hip socket would not be
artificial. I have never heard of that happening with hip displaysia. Good luck
with your daughter.

Blessed Be - Joy & Serenity




----- Original Message ----
From: adamandbrenda <adamandbrenda@...>
To: clickyhipsclub@yahoogroups.com
Sent: Friday, November 23, 2007 2:36:08 PM
Subject: [Clicky Hips Club] Any advice? Artificial hip socket?

Hello. I posted a while back regarding a little girl that we are
adopting from CHina. She has been diagnosed with congenital
dislocation of the hip. The orphanage says they noticed a limp when she
first started walking at 24 months. (Aggravation from me since they
didn't notice sooner!...) I received her xrays last week. Her pelvis
shows no socket and the ball at the top of her femur is 1/2 the size
it should be. Does anyone know if they will need to create an
artificial socket? Or a bone graft? Does that mean she'll have
surgeries all her life?
Thank you so much for the help!
Brenda





      
________________________________________________________________________________\
____
Never miss a thing.  Make Yahoo your home page.
http://www.yahoo.com/r/hs

[Non-text portions of this message have been removed]

Hi Tuni

I would imagine by now Aleena's legs are looking normal and have straightened,
it takes a few weeks for the muscles to get working again.  Congrats on having a
normal x-ray - that's fantastic news!

Take care
Sara x
   ----- Original Message -----
   From: Tuni Begum
   To: clickyhipsclub@yahoogroups.com
   Sent: Tuesday, November 06, 2007 9:58 PM
   Subject: [Clicky Hips Club] (unknown)


   hi im tuni and my daughter aleena was born with ddh she wored the palvic
harness for 8 weeks full time and then 6 weeks part time. she just had an
ultrasound appt and they said her hips where normal. i just had a question how
long does it take for their legs to become straight
   __________________________________________________
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   [Non-text portions of this message have been removed]






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10:04


[Non-text portions of this message have been removed]

Hi Brenda

It does sound like your daughter may need an osteotomy which is an operation
whereby a socket is built with a bone graft.  This op is "normally" the fix it
all and it's very rare to have further ops after this (although it has been
known).  With this type of operation a cast is normally only on for about 6
weeks.  If you look at my previous post I have put some information on regarding
other websites/support groups that should help you.

I hope this helps and if you want any further info let me know.

Good luck and congratulations on your new baby!!

Take care
Sara


   ----- Original Message -----
   From: adamandbrenda
   To: clickyhipsclub@yahoogroups.com
   Sent: Friday, November 23, 2007 8:36 PM
   Subject: [Clicky Hips Club] Any advice? Artificial hip socket?


   Hello. I posted a while back regarding a little girl that we are
   adopting from CHina. She has been diagnosed with congenital
   dislocation of the hip. The orphanage says they noticed a limp when she
   first started walking at 24 months. (Aggravation from me since they
   didn't notice sooner!...) I received her xrays last week. Her pelvis
   shows no socket and the ball at the top of her femur is 1/2 the size
   it should be. Does anyone know if they will need to create an
   artificial socket? Or a bone graft? Does that mean she'll have
   surgeries all her life?
   Thank you so much for the help!
   Brenda






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   Version: 7.5.503 / Virus Database: 269.16.4/1147 - Release Date: 23/11/2007
09:19


[Non-text portions of this message have been removed]

Hi There

Sorry for the late reponse, but I am way behind with all my emails.  If you go
to the chat forum on the steps website www.steps-charity.org.uk   there is a
member with an older child who has had multiple surgeries (like your daughter)
she may be able to give you some advise.  I think her name is Claire.  Also
there is another group like this on Yahoo called hipbaby and it is a very active
group so you may get more support there.

I hope this helps.
Take care
Sara x


   ----- Original Message -----
   From: kaykles
   To: clickyhipsclub@yahoogroups.com
   Sent: Thursday, November 15, 2007 11:10 PM
   Subject: [Clicky Hips Club] member since sept.-please help!!


   I posted a introduction message(2432-a little bit about me)on 16/9/07.
   I still have not recieved any replys, i feel alone and joined because i
   thought i could get some support. I would love it if someone would read
   my previous message and could give me some advice my daughter may be
   going back into hospital this school holidays....






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   Checked by AVG Free Edition.
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16:54


[Non-text portions of this message have been removed]

Hello. I posted a while back regarding a little girl that we are
adopting from CHina.  She has been diagnosed with congenital
dislocation of the hip. The orphanage says they noticed a limp when she
first started walking at 24 months. (Aggravation from me since they
didn't notice sooner!...) I received her xrays last week.  Her pelvis
shows  no socket and the ball at the top of her femur is 1/2 the size
it should be.  Does anyone know if they will need to create an
artificial socket? Or a bone graft?  Does that mean she'll have
surgeries all her life?
Thank you so much for the help!
Brenda

Thanks andreajean for the tip, i will ask the hospital next time she
goes in for her op.Hope all goes well with your daughter and your
son,take care kuana --- In
clickyhipsclub@yahoogroups.com, "andreajean65" <andreajean65@...>
wrote:
>
> Hello there
> I can't really help I'm afraid but wanted to wish you all the best
> with your daughter. My daughter is just 4 years old and started 6
> months of treatment at 1yr, it's just her left hip that's affected.
> I'm sorry I can't give you any advice but I do understand the worry
> of it all, my son has treatment for something completely unrelated
> and will have surgery until he's 18yrs. Be brave, you can cope and
> get through this, you are lucky that you have a supportive family
> that do there do their best to understand. Why not ask at the
> hospital if their is anyone with similar circumstances that you
> could be in touch with? Anyway, Good luck, take care
> Andrea
>
> --- In clickyhipsclub@yahoogroups.com, "kaykles" <radha333@>
> wrote:
> >
> > Hello everyone,I'm a new member and I would like to tell you a
> little
> > bit about me. I'm 31 years old and I am a single mum with a
> daughter
> > who is almost 8. Radharani(my angel)has had Bilateral congenital
> > dislocation of her hips (BCDH)since she was born but it was not
> > diagnosed untill she was 2 1/2! over the years she has had about
5
> > operations (some where she was in a spika cast)and when she was
> > actually about 5 we found out that she also has Agenesis of the
> > acetabular(no sockets formed when I was 3 months pregnant). She
> maybe
> > having more ops when she turns 8 or will have to wait until she
> turns 18
> > (hope not!)She never complains and seems to cope better than me
> most of
> > the time, she's just amazing anyway what I wanted to ask was if
> there
> > is anyone who has been diagnosed with the same condition? If so
> i'd
> > love to know how they have been coping and what they feel. I feel
> like
> > I am so alone in my plight most of the time,my family is a great
> > support but they can not entirely know how we[my daughter & I]
> feel. It
> > upsets me to see Radharani being picked on or feeling bad about
> her
> > self because of her hips and i'm don't always know the right
> things to
> > do to help her so any advice would be very welcome and
> appreciated,Look
> > forward to your replies,Many Blessings to you all, Love Kuana....
> >
>

thanks "charlottebud79" i'll take your advice and visit 'steps
charity website and see how i go,good luck to you and your daughter
also--- In clickyhipsclub@yahoogroups.com, "charlottebudd79"
<charlottebudd79@...> wrote:
>
> --- In clickyhipsclub@yahoogroups.com, "kaykles" <radha333@> wrote:
> >
> > I posted a introduction message(2432-a little bit about me)on
16/9/07.
> > I still have not recieved any replys, i feel alone and joined
because
> i
> > thought i could get some support. I would love it if someone
would
> read
> > my previous message and could give me some advice my daughter may
be
> > going back into hospital this school holidays....
> >
>
>
> Hi I can't really help I'm afraid sorry, my daughter is only 4
months
> old and has cdh of the right hip, we are currently under going
> treatment in southampton, Have you tried contacting the people on
the
> steps charity website? they have been really helpfull for me! you
can
> get alot of support from them they are great!
>
> Take care hope all goes well x
>

--- In clickyhipsclub@yahoogroups.com, "kaykles" <radha333@...> wrote:
>
> I posted a introduction message(2432-a little bit about me)on 16/9/07.
> I still have not recieved any replys, i feel alone and joined because
i
> thought i could get some support. I would love it if someone would
read
> my previous message and could give me some advice my daughter may be
> going back into hospital this school holidays....
>


Hi I can't really help I'm afraid sorry, my daughter is only 4 months
old and has cdh of the right hip, we are currently under going
treatment in southampton, Have you tried contacting the people on the
steps charity website? they have been really helpfull for me! you can
get alot of support from them they are great!

Take care hope all goes well x

Hi
You still around? Haven't seen or heard from you in a very long time!
Haven't got your email add or mob number now, just wondering how you
are? It would be lovely to hear from you
Andrea
    x

Hello there
I can't really help I'm afraid but wanted to wish you all the best
with your daughter. My daughter is just 4 years old and started 6
months of treatment at 1yr, it's just her left hip that's affected.
I'm sorry I can't give you any advice but I do understand the worry
of it all, my son has treatment for something completely unrelated
and will have surgery until he's 18yrs. Be brave, you can cope and
get through this, you are lucky that you have a supportive family
that do there do their best to understand. Why not ask at the
hospital if their is anyone with similar circumstances that you
could be in touch with? Anyway, Good luck, take care
Andrea

--- In clickyhipsclub@yahoogroups.com, "kaykles" <radha333@...>
wrote:
>
> Hello everyone,I'm a new member and I would like to tell you a
little
> bit about me. I'm 31 years old and I am a single mum with a
daughter
> who is almost 8. Radharani(my angel)has had Bilateral congenital
> dislocation of her hips (BCDH)since she was born but it was not
> diagnosed untill she was 2 1/2! over the years she has had about 5
> operations (some where she was in a spika cast)and when she was
> actually about 5 we found out that she also has Agenesis of the
> acetabular(no sockets formed when I was 3 months pregnant). She
maybe
> having more ops when she turns 8 or will have to wait until she
turns 18
> (hope not!)She never complains and seems to cope better than me
most of
> the time, she's just amazing anyway what I wanted to ask was if
there
> is anyone who has been diagnosed with the same condition? If so
i'd
> love to know how they have been coping and what they feel. I feel
like
> I am so alone in my plight most of the time,my family is a great
> support but they can not entirely know how we[my daughter & I]
feel. It
> upsets me to see Radharani being picked on or feeling bad about
her
> self because of her hips and i'm don't always know the right
things to
> do to help her so any advice would be very welcome and
appreciated,Look
> forward to your replies,Many Blessings to you all, Love Kuana....
>

I posted a introduction message(2432-a little bit about me)on 16/9/07.
I still have not recieved any replys, i feel alone and joined because i
thought i could get some support. I would love it if someone would read
my previous message and could give me some advice my daughter may be
going back into hospital this school holidays....