Hi Everyone, My Name is Zoe and I have 2 beautiful girls, Kacey is 13months and Shannon is 3 1\2yrs. Kacey was diagnosed with DDH in July this year and wears a...
Hi Zoe Welcome to the group! I'm pleased to hear that Kacey is making progress in her brace. Good Luck for your appointment next week and make sure you let...
Hi there, my name is Alison and I am mum to 8 month old Ella who has just come home from hospital after having a closed reduction and a hip spica cast fitted....
Hi Alison We had the Britax Clubclass car seat and this worked really well when Emily was in her spica. We spoke to Britax and they sent us an extension strap...
Hi. Amy is now 10 months old, and had an adductor tenotomy, closed reduction and hip spica fitted 6 weeks ago (changing it tomorrow!! Yipppeee!!! Half way...
Hi Alison My daughter had an abductor tenotomy, closed reduction and full spica fitted on 1st Nov. Five weeks ago today! Next week we go in for a new one to be...
Hi Andrea & Lottie Thanks for your reply re the car seat, I think we may have it sorted now as I've had a few e mails from people in the club pointing me in...
Hi Barbara & Amy Thanks for your advice re the car seat, I think we have it sorted now, we're going to look at a Britax Club Class Extra tomorrow and I've...
Hi Sara Thanks for your e mail re the car seat, I've managed to locate a Club Class Extra Seat and we've ordered the extension straps from Britax, so hopefully...
Hi Alison Emily was aged 7 months when she had her open reduction and had just about learnt to sit up. Within weeks of being in her cast she was crawling...
Hi Alison, I know what you mean! When Amy was 4 months old, she was put into a Pavlik harness, then went onto the spica (with an 8 week break in between). But...
Oops! Sorry - forgot to mention what the consultant said (sorry to go on about us, but soo proud of my little one at the moment!). Apparently, in his words,...
Hi Everyone We have been to see the consultant today and Shannons hips are perfect!!!!! Kacey has to wear the brace for another 3 months to play cautious but...
Hi Zoe What good news! Lovely to hear. I'm sure it made your day, your month even! And very well done Kacey. Lottie is 13 1/2 months so very close in age to...
... Hi Andrea, Thanks for your message, it sure has made our month! we have been so worried Shannon would be diagnosed. We was hoping Kacey would be "set free"...
Just wondered if any UK people post here? I live in London and would love to hear from anyone from UK to share information with. My daughter is scheduled for...
Hi Sally. I think there are a lot of people here from the UK. I live in Guildford - my 10 (nearly 11 now!!) month old, Amy, had a closed reduction at the end...
Hi Sally I am an adult who as a child and as an adult have had treatment at RNOH and it is a very good hospital. The staff are brilliant. I'm not sure if your...
Hi Sally I'm from the UK. I live in Cheshire and my daughter Emily is being treated at Alder Hey in Liverpool. I recognise you from the other forum and have...
Hi Rob & Sara Dudley! Great to meet up with some UK people! The Website is quite young yet, need to fill it up with info (most of which will probably be...
Hi Sally (Harrison) Thanks for your email, it is good to hear from people who have had treatment at the RNOH! My daughter is going through her first operation...
Hi Mr Nejad is my surgeon as well and he is very good. I had surgery in June and the results have been excellant. I hope all goes well. I am returning there in...
(DDH sufferer, birth-13 years) Hi everyone, My name is Catriona and my daughter, Cassidy was diagnosed late with bi-lateral DDH at 18mths, despite our...
Hello everyone Anyone here live in the North West of England? I am arranging a coffee morning for local hip-babies and parents for 11th March in Lymm...
Hi there, I would love to come as I originally from Widnes, however I now live in Luxembourg so slightly too far for a coffee morning!!! Bethany (our 4th...
Hello, I have a five and a half month daughter currently in the Pavlik harness. We knew Lucie could have bad hips because my Mum has C.H.D. It still came as a...
Hi Kirsty, My daughter was diagnosed late but was still put in the pavilk at 8m. Because she was crawling before having it fitted she began crawling again...
... How old is your daughter now? and do you know what is likely to happen long term . I guess you just hope and pray for the best , like we do and remain...
Hi Kirstie, Kacey is now 15m, she has made good progress in the brace,(since july last year) even I can see the difference in her x-rays!. She has another...
... That's such good news. I bet you can't wait to be 'free!' . I too have read some not so happy stories about relapses, but also so many positive stories of...
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